#ist

[disabled-dippy]

things to put in a dysautonomia emergency bag/cart ✿

having one place (near your bed preferably) where you can keep all the essentials for bad symptom days has been absolutely key in getting me through those bad days. these are some ideas for what you can put in yours, if you want to make one as well!

prescription medications

painkillers

antacids

anti-diarrheals or laxatives (maybe both)

salt pills or packets

electrolyte drink packets (the powdered stuff)

disposable water bottles

salty snacks

compression socks

pulse oximeter

blood pressure monitor

mini electric fan

ice pack

heating pad

hand warmers

change of clothes

sweatshirt

gum or mints

alcohol wipes or hand sanitizer

disposable toothbrushes

floss

mini hairbrush

dry shampoo

wet wipes

sunglasses

noise-cancelling headphones

[crippledcryptidd]

I don’t see many post on inappropriate sinus tachycardia so i’m gonna make some starting with an explanation of it

inappropriate sinus tachycardia (IST) is a form of dysautonomia causing someone to experience sinus tachycardia, this makes the heart rate 100+ bpm at rest and and 90+ bpm over a 24 hour period without an identifiable cause. IST can be asymptomatic but many with it experience symptoms

Before i go on i will explain some of these terms

Dysautonomia is an umbrella term for conditions causing dysfunction of the autonomic nervous system, which is part of the nervous system that controls functions that we don’t think about or control. Things like heart rate, sweat production, pupil size, and much more

Sinus tachycardia is when the sinoartiral node of the heart send signals to make the heart beat fast. Causing tachycardia which is a faster than normal heart rate, normal heart rate is 60-100 bpm, 100+ bpm is tachycardia

IST is defined as a heart rate of 100+ bpm while at rest and a heart rate of 90+ bpm over a 24 hour period. There is no identifiable cause and IST is a diagnosis of exclusion and other things must be ruled out.

IST can be asymptomatic but many people with it experience distressing symptoms like (not a full list)

Palpitations (uncomfortable feelings in chest from fast heart rate)

Chest pain

Shortness of breath

Issues with exercise

Presyncope (feeling like you’re going to pass out

Syncope (passing out

Some with inappropriate sinus tachycardia will also have jumps in their heart rate from mild exertion

Treatment for IST may include certain medications such as beta blockers, calcium channel blockers

ivabradine is shown to be effective but is not yet approved for treatment of IST

People may also use other forms of treatment like exercise training and lifestyle changes

Sinus node ablation is a surgery some get for IST which is seen to be effective at first but a lot of people with it notice that it reoccurs in a few months

Lowering heart rate in those with IST may not always improve symptoms

Sources and more information

https://www.dysautonomiainternational.org/page.php?ID=228

[interskyned]

“i’m not disabled” i say, folding my cane to be put in my bag and immediately nearly falling over in an elevator because my body can’t handle bending down

[johnegbertlover413]

I’m an artist

[sentryhex]

giggles @dr1vingwithmydarl1ng waves hi hello ur the reason this man exists now i love him sodearly i wamnt to shake him like a cocktail AUFHAUIFIAHFUIA

id .. draw more if it was nt 3 am. .... .and i wasnt exhausted... wew 3am moment so scary and spooky and evil

[bishiglomper]

I made it out shopping today. My heart rate didn't kick up until after I got home. I even had coffee this morning. I kept checking it every time I had a wave of not feeling good but it was reasonable. Carrying in groceries bumped it up to 130 for a minute and that was it.

I get waves of general malaise all the time, but for the last few weeks it's upgraded to something slightly more intense. Like I feel sick. That whole vibe that reminded me of being in a hospital for a week and almost refusing to leave, I felt so icky.

I can't even name any symptoms.. I don't know what's wrong. I just feel sick.

It's low key starting to freak me out

At first i thought it was associated with this IST flare. But it doesnt flare up in tandem, so I cant tell. Like there's a thing called fibro flu... It does sort of feel like I've come down with something but it's too damn vague and nebulous. And it comes and goes like a flare.

I just really fuckin hope this isn't my new normal every day crap. I don't think I'll be able to take it. 😣

Seriously the fact that I can't even take ibuprofen or aleve... even my muscle relaxants don't do anything anymore... I had to stop taking duloxetine and amitryptaline. lyrica and gabapentin did absolutely nothing for me...

I don't have anything left to try. And they won't give me pain meds 🥺

I don't know what to fuckin do

Also just to add insult to injury, I seem to be having both a regular and abdominal migraine. So that's fun. 🙃

[adam-sztuk]

"And although I don't understand why, you and I have this special thing that makes me want to return to your lips one more time."

[aelianated-star]

Being loaded into an ambulance: Sorry am I ruining the vibe?

[normal-with-adhd-is-a-joke]

Lately when I've felt like I was going to pass out I've taken my heart rate and it's been in my normal range (~90-100bpm) so I expected this time to be the same.

It turns out my body was right about me needing to lay down this time.

[zurko48]

[disabled-dippy]

triggers for dysautonomia flare-ups ✿

these are some things I have noticed, either in myself or in other people, which tend to make symptoms of dysautonomia worse or even cause a flare.

environmental / external:

heat

cold

humidity

changes in barometric pressure

not meeting body's needs:

dehydration

hunger / low blood sugar

sleep deprivation

poor quality sleep

not taking breaks

other bodily-related stressors:

stress

exercise

being upright for too long

drugs / certain medications

raising arms above head

lifting heavy objects

squatting / bending over

strong emotions

standing up too fast

period / menstrual cycle

dietary:

caffeine

sugar

carbs

dairy

alcohol

fatty foods

artificial sweeteners

eating too much / too little

eating too quickly

[mgnifiqueyoo]

Book: "Vessel." Pairing: Oh Junseok (ATBO) x Reader 1.10 - "ΝΥΚΤΕΡΙΝΟΣ." Word Count: 2,191

(prev. | next.)

───── ❝ nocturnal. ❞ ─────

My eyes shifted from side to side, constantly checking if there was someone still awake – well, more specifically, someone I knew. 

It was four in the morning and I had just woken up from my three-hour nap, which made the other two believe that I had already fallen asleep. Was I smart for doing that? Maybe but god, that painful headache was a horrible aftermath. But was it my fault that I couldn't stop myself from feeling tempted to know more? Okay, maybe but that's not the point.

The feeling was uncontrollable. It was like a rope was tightened around my waist, dragging me into a cave of untold stories. A room of forgotten memories. 

And I just can't bear standing here, doing nothing even if I already knew that he was… not alright.

My hand was balled into a fist as it hovered above the door of his room, resulting in me gulping as I braced myself before letting my knuckles lightly hit the door's surface. For a while, I stood there, wondering if my choices were even worth doing as the door soon opened, revealing him in another all-black outfit. 

This time, he actually looked like he was about to take a rest and not on a runway.

“Hm? Hey, there.” Junseok was acting weirdly relaxed as if nothing had happened earlier, causing me to slightly frown, which made him a bit ashamed of it. The door was quickly opened wider, allowing me to come in as I saw how organized his room was.

Something far from mine.

Well, it wasn't just the organization of his belongings that I was impressed at but also the extra furniture he had; like porcelain figures and such.

All of it looked amazing.

Turning around to look back at him, Junseok made his way to pull the chair next to his desk forward as he later sat on the edge of his bed. 

“You know why I'm here,” I told him, gaining a nod from him as I sat on the chair he pulled out, resting my arms over the desk as I leaned my chin over my knuckles. It was quiet and the two of us were equally awkward around each other. 

Well, who wouldn't? The topic was too surreal for me to understand in one day. 

But then, it was real. “How were you… found?” I asked, nervous about how he'd answer me as he took a deep breath, probably feeling the same way as I did. 

“All I remember was I was laying down on the shore and the council was looking down at me… Well, the representatives of the Nocturnal realm.” He gave a name for the place he's stayed at and I nod, letting out a hum as a sign for him to continue. “It happened in Crete... in Greece. I think it was cold that night because of the storm.”

Oh, I should've been a lot more prepared to hear that from him. “And listen, I don't have any memories except for what I told the council that night.” He emphasized, which made my brows furrow as I leaned in forward in curiosity. Well, isn't it like going back to school all over again? Thankfully, he's now in a more calmed position.

"What was it?” I questioned, pursing my lips shut.

“That I wanted to protect you,” Junseok answered in a tone as if it was obvious to him. “That I wanted to keep a girl named Y/N safe.”

I was out of words, shoulders slouched as if I wanted to hide from everything. I was hurt to know that it was the last thing Junseok said. 

That it was the last thing he said when he was still my best friend. “I didn't even know who you are but now, I know why my past self would want to do that,” Junseok said right after, having a small yet noticeable smile on his face.

Maybe I left a bizarre impression on him. That's for sure.

“Well, what happened next?” I asked a question quickly, shoulders rising up as I felt a bit shy to listen to him say that. 

Well, maybe not just a bit since I changed the topic. “No, wait. Do you feel good about yourself?” Junseok was still on that topic, shifting himself closer to me as his eyes glistened under the dimmed light of his room, his dimples showing again in a matter of seconds. 

“Not that much,” I muttered back, causing him to chuckle.

“I know you do but sure, let's not talk about that.” He teased, leaning back as he even took the pillow next to him, hugging it close to himself. “What happened next was that I was brought to the realm and training started soon,” he answered, still relaxed as if it was not a big deal for him to tell me almost everything about the past he kept from me.

Not for long, though. “Was I really an athlete in the past?” Junseok asked, scrunching his nose and furrowing his brows, not having a single clue about what he really was like in the past. 

And there was a glimpse of one of his competitions, where he successfully took down someone from a different academy. 

A time when everything's not too complicated.

“Yeah, you were… and you were great,” I told him with full honesty as he looked into my eyes as if he could see how I felt. 

I don't know exactly how I am feeling while talking to someone who died and was brought back to life for a new purpose but I could say that I was holding back a lot of my emotions. “That's what they said about me too,” Junseok said, breathing deeply before looking somewhere else as he probably wondered how his life was before that trip. 

“They said I was physically fit for the thing I have to do.” He continued, having a blunt smile across his face as I did the same to him. For some reason, it was upsetting yet comforting to talk to him like this. 

Where we were both honest with each other. “And every day, I kept on thinking about meeting you and I didn't know it was going to happen so soon,” Junseok revealed, breathing out in relief as he probably felt free.

For the first time, maybe?

Junseok then rests his chin on top of the pillow he's been hugging tightly, still breathing deeply. “Why did you say those things, then? You know, those words hurt.” I joked, which half of it wasn't as the boy had a gloomy look on his face. The experience of someone I once loved suddenly acting as a rude stranger to me was so painful that I didn't know whether to give up or not. 

I even had to talk it out with Seunghwan to collect myself.

“Because I didn't want you to be involved… My life- This mission... It's dangerous for you,” he said, truthfully as he couldn't even look at me anymore. I didn't know what he felt but now that I understood why he had to do it, I just hope he didn't feel so bad about himself. He did it for a reason that I never expected.

I actually thought he only did it for fun. 

“But now, I am involved and you can’t just not include me here, you know?” I shrugged, giving him a smile as he sighed, shaking his head right after. “If you could do things like that, then is it possible for you to teach me your ways? How can I protect myself?”

The moment I asked him that question, his face was full of nothing but terror as he pointed his finger at me. “No, you are not learning anything. Leave that thing to me. That’s my mission. That’s partially why I’m here.” He warned, his brows arched and his teeth gritted tightly as I felt my back lower down, underwhelmed. 

“But I don't want you to worry about my safety all the time!” I fought back.

Junseok shushed me, reminding me that it was already almost five in the morning as he didn't want to get any complaints from the students sleeping in the rooms next to his.

“Come on, wouldn't it be better for me? I mean, you do want to keep me safe…” I wasn't planning to give up easily on him as he took in a deep breath, his eyes slightly closed and his jaw tensed up. 

He was probably trying to control his temper, slowly opening his eyes afterward as he rolled them at me. “Well, aren't you right about that?” His sarcasm never failed to gloss over his words, resulting in me winking at him in satisfaction.

Junseok lets out another sigh as he gets up from the edge of his bed, making his way behind me as he takes both of my wrists in his hands carefully. “I want you to close your eyes,” He whispers softly, sending shivers down my spine yet I choose to ignore it, closing my eyes shut as quickly as possible. 

It was an odd experience. “Think of a weapon. Any weapon of your choice.”

And I thought of a weapon that was something simpler. Well, I don't know a thing about guns or knives so I wouldn't know how to think of those. 

So, I ended up with a bow and an arrow.

“Then, visualize the darkest place you've ever been in.”

When he told me that, I had no idea what he meant as I fought the urge to ask him to clear it all up for me. No, of course, I haven't been in any dark places except for Rakwon's party but if he was talking about it metaphorically, I could name a few.

But there was one situation that I thought was the darkest place I've ever been in.

It was the day after the ship sank and I was completely clueless over what had happened the night before. I remembered how I went outside of my bedroom, expecting my parents to be working as usual. 

I thought that I'd see my father go inside the living room with a white towel on his shoulder and his favorite red cap on top of his head – to keep away from the heat outside, where he always repaired the car engines of the neighbors. That day, I thought I'd see my mother in the kitchen, waiting for another batch of cookies to bake as she'd normally check her ten-year-old wristwatch, which was given to her by Dad.

But it was far from that.

They were seated in the living room, both of their heads bowed down as the younger me even asked if Junseok had sent me a text because every night, my parents would take my phone from me so that I could just sleep.

One text was all I needed just to know if he was safe. 

“Sweetheart, we need to tell you something.” My mother was quick to stop me from asking any more questions as she wanted me to sit between the two of them. 

“What’s going on?” I asked, still not catching up on the sorrow they've felt.

“We were contacted by the school and they told us that… Junseok and his family drowned from the trip.”

I was broken. So numb and bitter over it that there were no tears falling down my face. 

I felt angry. Disgusted at myself for doing nothing at all. As far as I could tell, that was the darkest place I've ever been in as Junseok might've noticed how I breathed silently like I was the ghost in his room.

“Open your eyes,” Junseok said as I did, seeing a form of the bow and arrow lying on both my palms. 

I was taken aback by the sight of it. Black mist swaying in different directions like air yet managing to have the image of a bow and an arrow. “Woah.” I was amazed by it, fixated on the arrow's stem that was a little intertwined with the bow's string.

“But don't linger too much in the darkness,” He suddenly spoke with a louder voice, causing me to flinch in shock as the weapon disappeared from my grasp – leaving only his hands wrapped around my wrists. “Use it for safety… Not for the downfall of others.” He reminded me once more, later letting go of my wrists as he sat on the edge of the bed, facing me again but this time, he looked a lot more comfortable around me. 

“So, we're actually friends now, huh?” Junseok casually commented as I snickered at him. 

A whole new world yet still the same person.

[interskyned]

happy new year, i’m still disabled!!!!! crazy i know but here i am being chronically ill in 2025 like a loser

[je-suis-ronflex]

J'ai un plan cul avec qui j'ai couché il y a un petit moment qui vient de m'écrire pour me dire qu'il avait été testé positif à une MST et qu'il voulait me prévenir au cas où, j'ai aucun symptôme mais le boug me dit qu'il n'en avait pas non plus et j'étais là en mode

mais c'est pas grave, je devais me faire dépister quoi qu'il arrive donc surprise mdr même si j'apprécie l'honnêteté du monsieur

[ceces-thoughts]

October 1 2024

I was diagnosed with Inappropriate Sinus Tachycardia (IST) last month. i finally have an answer to my heart issues. i was also diagnosed with ADHD which explains so much in my life and im happy i can get that figured out. my doctor now instead of blaming my heart, fatigue and joint issues on anxiety is now blaming that on the meds (minus my heart issues. proved her wrong lol) and i keep telling her it’s not the meds and something is seriously wrong.

other news i still haven’t talked to my mom and it’s been almost 3 months. i was thinking about what i want to say to her to try and resolve our issues but it made me nauseas. idk what to do about it. she’s immature and cant communicate healthily