#nf awareness

[aceoffangirls]

NF AWARENESS DAY

Today Neurofibromatosis (NF) Awareness Day.

NF is a group of complex genetic conditions that cause tumours to form on the nerves throughout the body.

NF includes Neurofibromatosis type 1 (NF1), Neurofibromatosis Type 2 and Schwannomatosis.

[hopskip-andajump]

AIGHT CHAT WE'RE GONNA GO IN A CIRCLE AND SAY 3 THINGS WE LOVE ABOUT OURSELVES MEOW

I'll go first :3

1) My hair. It's a dark brown most of the time but there are little flecks of red that shine in the sun :3

2) My eyes. Most of the time they're a brown-black color, but in the sun they turn a very nice and pretty amber ^w^

3) My thighs. I know most people hate having large thighs but I honestly love them. I can stim on them, I can use them to warm up my hands, and they make it easier to trap my partners in snuggles >:3

Have a nice day and stay safe out there <3

[24-guy]

hi im the 'mitchell' ask, sorry my autocorrect was being funky, i meant richie (idk how it got there??)

hagd!

Hello! Yeah that’s a bit of an odd one.

Since your post was talking about ship art of any kind, however. It gave me the perfect excuse to finally get this sketch out of the art program:

[a-world-in-grey]

Do Prompto's parents know about her health issues? Or did she manage to hide it from them?

Oh, Prompto's parents are fully aware of her health issues. The issues don't develop until at least a few years after she discovers her magic, so probably when she's ten or eleven, but even with how often her parents aren't around it's just not possible to hide that from them. Partially because her babysitters notice and tell her parents, but also because before she's taken to various doctors her health issues are obvious enough that her parents would have to be blind and dumb not to notice them.

Prompto's parents, of course, are really fucking concerned about Prompto's sudden health issues. They take her to doctor after doctor, but no one can figure out exactly what's causing the issues or how to fix them, which just leaves mitigation and coping strategies. Unknown to Prompto, Prompto's parents figure that her health issues are inherited from her biological parents and debate asking Cor or the King for more information. I haven't decided if Prompto's parents know she's a clone or not, but Regis and Cor, who do know, probably figure Prompto's health issues are a result of the cloning process when they hear about Prompto's health problems.

Meanwhile, Prompto - and by extension Noctis, Ignis, and Gladio - never really think too hard on the cause of Prompto's health problems. Her health is what it is, they don't really put much thought into it beyond helping her cope. Which, they probably should, what with Prompto's health noticeably improving after they start training her magic, but dumb teenagers will be dumb teenagers and they're more focused on hiding Prompto's magic from anyone that might report it back to Regis. (Might even have Prompto's doctor put her on a new drug around this time, so Prompto's improvement gets attributed to that instead.)

[partypanic]

Doodle of... Tommy coolatta..hrm . No idea who this man iss.....

(PLS reblog if you like. Reblogs>>likes)

[staarchild]

thinking abt doing fanfic commissions but i'm scared i won't have the mental energy bc i put A Lot of mental energy into my writing 💀

[unapologeticallyzayn]

In my head, Zayn and NF are friends!

[chronicallyqueercoining2]

"We need more mental health acceptance and awareness!" Y'all still call ppl with cluster b disorders evil 💀

"We need more weird people!" Y'all COMBUST when someone is xenic 💀

"Healthy coping mechanisms are important!" When someone age regresses, you call them creepy 😭

"More people need to be proud of who they are!" When you see a furry, you cry 😭

(U should totes follow me if ur a supporter of these so I can b on the good side of tumblr XD /nf!)

[funkylilomen]

aaaaa hey peeps go interact with @thybrotherskeeper plz i'm bored

[webcrawler3000]

Gonna reinvent NF.

[giftedpoison]

the most interesting observation I’ve made (and promptly said to my friend who was like how dare you read me like that you did not know that about me because i never told you) was that Eminem dads make NF daughters.

[aftonsparv-bugzz]

:33 < iHATE having to fight EVERYTHING for the SMALLEST amount of representation in this community. therians get SO MUCH representation in this community, nobody talks of objectkins, or fictionkins, or plantkins, or conceptkins, or elemental kins, or space/voidkins, or songkins, or LITERALLY. ANY. "UNCOMMON". ALTERHUMAN IDENTITY. it is SO UNFAIR ON THE REST OF THE COMMUNITY THAT WE LITERALLY HAVE TO FIGHT TOOTH AND NAIL JUST TO GET THE SMALLEST REPRESENTATION IN THIS COMMUNITY. WE NEVER GET TALKED ABOUT. EVER. (also, ihave NOTHING against therians. iam one. but iwont post about it because iwant to fight for representation of "uncommon" kins.)

:33 < shout out to alterhumans/non humans with NO kin identity, just saying they arent human. youdont "need" to have an identity and fit into a box. youre perfect just the way you are.

:33 < shout out to plantkins. every single plant/fungi. from the DEADLIEST venus fly traps to the BRIGHTEST boquet of roses. have a fresh ray of sunlight to beam upon you, youre shining so much its insane.

:33 < shout out to all the objects. whether it be a small eraser, or your favourite plushie, youre still valid, and awesome, and soooo cool /gen

:33 < shout out to elemental kins. burning fire, cold breezes of wind, all elements. the most HURTFUL, DEADLIEST elements to the ones that arent so dangerous. your kintype is never too dangerous for me. keep living life the way youwould

:33 < shout out to fictionkins. the weirdest characters, the "prettiest" characters, your favourite characters, your hated characters, your least favourite characters, characters from an uncommon source or from a common source, all of you.

:33 < shout out to songkins. from the strangest, most unusual melodies, to the songs everyone knows. you are the most beautiful, melodic songs ever. you keep being you bro.

:33 < shout out to placekins. youre a little cottage in the woods ? thats awesome. youre that corner shop down the street ? so cool. youre massive theme park, with flashing lights and fireworks and everything ? genuinely so amazing.

:33 < shout out to daykins/monthkins/seasonkins/yearkins. all the several days, seasons, months passing by us is so beautiful to watch

:33 < shout out to number/letter kins. all the numbers formed to make mathematics, all the letters we have in languages today, all so beautiful

:33 < shout out to spacekins. all the stars, cosmos, voids, even those who identify with being space as a whole. so beautiful.

:33 < shout out to conceptkins. strangest concept to comprehend, the easiest concepts, idont care. yall are amazing.

:33 < and shout out to any "unusual" or "uncommon" kintype ihavent mentioned.

:33 < yall are SO BEAUTIFUL !!

:33 < if you identify with an "uncommon kintype" PLEASE interact with this blog iwant more cool people to follow /nf

:33 < and if you are a therian blog iwould hope you to repost this so youcan show awareness for other kintypes in this community. (but youdont have to !! idont mind if youdont, do not worry !! :3 its perfectly ok with me not to reblog it, I understand why you wouldnt !! :33)

:33 < /nf

[eurovision-del]

We’re going to get our second Eurovision song this year tonight when Albania pick their entry! So before that happens, I’ve ranked every one of this year’s FiK songs:

Erma Mici – Kozmosi i dashurisë

Rezarta Smaja – N’eden

Lynx – Nëse ke besim

Vanesa Sono – Aroma jote

Albina dhe familja Kelmendi – Duje

Enxhi Nasufi – Burrë

2Farm – Atomike

Sergio Hajdini – Vështirë

Elsa Lila – Evita

Franc Koruni – Në pritje

Anduel Kovaçi – Malli

Petrit Çarkaxhiu – Emri yt mirësi

Evi Reçi – Ma kthe

Manjola Nallbani – Duaj

Gent Hoxha – Ajër

Arsi Bako – Sonte dua të jem me ty

Rovena Dilo – Motit

Urban Band – Në çdo hap

Sara Kapo – Para teje

Melodajn Mancaku – Gjysma e zemrës sime

Gjergj Kaçinari – Dje

Permit of Stay – Fobia

Fifi – Stop

Fabian Basha – Një gotë

Luna Çausholli – Jetën ta fal

Alban & Lore – Melodi

I listened to these songs in the order they appeared on the RTSH youtube page, and thought we were off to a fantastic start after hearing Kozmosi I dashurisë first. Although there are plenty of other good songs here, by time I’d got through everything else, nothing had surpassed it! I was hooked from that opening line, it’s an interesting sound that gives the whole song a unique flavour. The chorus is soaring and intense, and Erma has a powerful rich voice and sings with so much passion. I love the orchestration of this song so much, I hope it can be just as good without the live orchestra!

Back when we only had the names of the competitors, I was very excited to see Rezarta Smaja and Urban Band listed, who were both at the top of my ranking last year. Once we got to the songs, however, I was disappointed. I loved E jemja nuse last year, and was hoping for more of the same from Rezarta, however instead of another upbeat number she sent an emotional ballad. Once I got over that, though, I realised that N’eden is a great song! It’s flowing and dramatic in all the right ways, and I love how it builds, that final section gives me chills. It also gives Rezarta a chance to really show off her gorgeous voice, more so than her previous entry.

It was a different story for Urban Band, whose entry this year I just find dull, but thankfully another returning act, Lynx, was here to fill the rock slot! Nëse ke besim starts a little slow, but once it gets going with the drums picking up the pace in the second verse I’m really into it!

I really like my entire top 6 here, they’re the ones I’m hoping to get the ticket to Eurovision. I don’t think Albania have a Eurovision winner here, but they’ve got plenty of options which I could see doing well in the final if staged right. With the public completely in control of selecting Albania’s entry for the first time, I’m very curious to see what they pick!

[1990jeevas]

i would choose love (in a loh situation) in a v platonic mutual way bc 1.) our interests match up v well 2.) u like hollywood undead (instant love tbh) 3.) i’d have guilt picking host HDHDB

OMG HOLLYWOOD UNDEAD MUTUAL??? holding u in my hands so carefully, we r now bound by our shared love for hu :0

[necroangelz]

sobbing , that menhiraa person now stole your user , its @/necroangelzz now 😭

IM GOING TO CRY WHAT THE HELL DUDE 😭😭 IVE HAD THEM BLOCKED FOR WEEKS SO THAT MAYBE THEYD AVOID MY ACCOUNT AND NOT STEAL MY SHIT BUT THEN THEY STEAL ??? MY URL ??????

I'm sure this account is already very well known and notorious within the community but guys please avoid interacting with them at all costs because they can't really be talked to or stopped so just blocked them. AND IDK IF I STILL HAVE TO STATE THIS BUT THAT ?? ISNT ME ??? SO PLEASE DONT MISTAKE THEM FOR ME HELP ME

I DO NOT HAVE ANY OTHER ACTIVE ALT ACCOUNTS OTHER THAN THE ONES LISTED IN MY PINNED.

also I'm tagging others to spread awareness pls reblog!! /nf @whisfer @lavendergalactic @c-ralique @cherryshh uhh dunno who else to tag I literally just woke up dude oml

[yunusaziz]

Softly reminder nih guys ya...

Khususnya bagi siapapun yang udah berusia 25+ mending mulai pertimbangkan serius buat alokasikan penghasilan buat investasi kesehatan. Apapun bentuknya, mau yang preventif ataupun interventif atas rekomendasi ahlinya tentunya.

Apalagi kalau tubuh udah mulai ngerasa dikit-dikit capek, ngantuk di jam-jam padat aktivitas, mudah lapar, dsb lebih lagi kalau udah gampang sakit. Semakin kesini nyadar nggak sih, kalau makanan semakin beragam, dan kebanyakan kalau nggak yang berminyak ya bergula wkwk.

Mulai cek gaya hidup kamu, mulai dari apa yang kamu makan seharian atau bagaimana kamu spend waktu sehari buat apa saja, ada nggak dalam sehari/sepekan waktu yang kamu alokasikan buat olahraga baik itu kardio (lari, sepedaan, dsb) atau weightlifting (khusus buat ini, kita bahas next).

Dalam kasus gula nih ya, coba hitung berapa banyak gula yang masuk seharian, kebutuhan harian yang direkomendasikan KemKes 50 gram/hari, sedang misal tiap habis makan, minum-minuman manis, asumsi 3 sdm udah setara 45-50 gram sendiri. Belum kandungan karbohidrat pada nasinya, dan tepung-tepungan lainnya. 😂

Asli gaya hidup sehat itu semenyenangkan itu. Saya Alhamdulillah udah di tahap picky buat milih minuman. Tiap habis makan, mending air es/mineral, atau kalau nggak ya serba tawar. Misal beli AMDK, selalu cek NF/Ingrd. kalau dibawah 11 g auto blacklist~ dsb. Intinya mulai dari hal kecil, trust me little things always matter!

Ini beneran guys, intinya mulai pertimbangkan buat alokasikan at least 5-10% pengeluaran bulanan buat investasi kesehatan. Tubuh yang terlihat atau terasa sehat belum tentu sehat lohh. Biar nggak jadi boom waktu, kalau udah sakit saldo tabungan bisa boom! 😭

Kalau uang yang udah ditabung nggak kepakai, boleh dipakai?

Jawabannya, enggak! Anggaplah itu "dana darurat", jadi biarkan tetap mengendap atau spend hanya untuk hal-hal berkaitan soal kesehatan. Soalnya kan kalau pakai rumus dana darurat, 3x pengeluaran bulanan orang masih jarang aware, at least itu, alokasikan 5-10% pengeluaran bulanan buat investasi kesehatan.

Sehat-sehat ya guyss semua, kalian punya impian masing-masing yang masih harus diperjuangkan! ✨