#spooniesunited

[painfreemumma-blog]

Smile ☺. Only you can make that choice. Choose to be happy and grateful. . . . . . . . . #smile #chronicillness #chronicpain #painfreemumma #grateful #choosetobegrateful #creatyourownenergy #energyhealing #healing #healthyliving #spooniesunited #painfree #instapic #instalike #inspiration #spreadpositivevibes #momsinpain #livingwithchronicpain #cbd

[roseleevader]

I have a fear of being seen moving my body or not standing ‘normally’. I have a fear that I will be judged or told I am faking. These fears are especially strong when posting online and especially when I’m using my mobility aids in public. Today I’m facing that fear head on by calling it out and talking about it. Some part of my brain believes that if I’m as disabled as I talk about being, I wouldn’t be able to kick my leg up. But I AM as disabled as I talk about being, and I CAN kick my leg up! This is my disabled experience. It’s not a one size fits all. I am disabled, and I can still move my body. I have limitations, and some days I have less. I am a cane user, and I am not required to “look” like I need it. I’m disabled but I’m still goofy, dorky me and that’s totally allowed 💛 • • • Photo id: two photos of Rose in her backyard wearing a green beanie, glasses, a black sweatshirt, and jeans. Her floral cane is helping her keep balanced in both pictures. In the first, she stands facing the camera with her arm up behind her head. In the second, she has turned to the side and kicked her leg out behind her and she has her tongue out. Not pictured: intense pelvic cramping, and a subluxed hip about an hour after the picture was taken • • • #disabledandproud #disabledblogger #chronicillness #motivation #mentalhealth #disabilityawareness #chronicallyill #disabled #spoonie #spoonielife #spooniesupport #spooniestrong #spooniecommunity #spooniesunite #spoonieblogger #invisibleillness #butyoudontlooksick #chronicpainlife #edsawareness #chronicfatiguesyndrome #lowbackpain #dysautonomia #babewithamobilityaid #potsie #gastroparesisawareness #spoontheory (at Portland, Oregon) https://www.instagram.com/roseleevader/p/CZP5N_svKbb/?utm_medium=tumblr

[hannahcrazyhawk]

The wonderful barber, Jacob (@jacobs_cuts) @trailheadbarbershop shaved my head yesterday for free. 💈 I COULD NOT BE HAPPIER!!! I've never felt better after ANY haircut in my life. My neck pain is GONE. I FEEL FREE. I feel beautiful, and empowered as fuck. Today I took my power back. These diseases cripple me and make every aspect of my life excruciatingly difficult. Why continue to suffer and adhere to societal standards of what constitutes beauty? I am donating my hair to Children with Hair Loss. @cwhl_org 💟 Reasons: 1. I don't need reasons 2. Chemotherapy 3. Trigeminal Neuralgia 4. Occipital Neuralgia 5. Chronic Fatigue 6. Less shampoo 7. Chronic fevers 8. Degenerative Disk Disease 9. I'm a Viking 10. Bald is supreme Only regret - that I didn't do this sooner. #baldwoman #baldfade #spooniesupport #spoonielife #chemotherapytreatment #cutpasslove #baldisbeautiful #chemotherapysupport #chemotherapy #trigeminalneuralgia #chemotherapysideeffects #baldhead #spooniewarrior #bald #spoonies #braintumor #hairdonation #newhairdontcare #spoonie #spooniesunite #spooniestrong #chemotherapysucks #Paintudes #occipitalneuralgia #raredisease #chronicfatigue #autoimmunedisease #chronicpain #chronicallyill #vikings www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CFTcC8ClWoQ/?igshid=t86s122oseq3

[lovesilentfury]

Y'all still think it's great? Reposted from @theunchargeables Isn’t this what you want to ask everyone complaining? This is basically our every day lives! It sucks, and they’re getting a little taste of what we’ve been dealing with for so long. Y’all are welcome to share this to show everyone complaining! 💜 -Meena⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ 🌟 WIN unique chronic illness clothes from The Unchargeables Shop. Link to giveaway in bio.🌟⠀⠀⠀⠀⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chronicillness #chronicillnesswarrior #chronicpain #chronicpainwarrior #migraine #fibromyalgiaawareness #spoonieproblems #spooniewarrior ⠀⠀⠀⠀⠀⠀⠀⠀⠀ #chroniclife #autoimmunedisease #chronicillnessawareness #anxietywarrior #sicklife #disabledandcute #invisibleillnessawareness #disabled #zebrastrong #spooniesunite #raiseawareness #butyoudontlooksick #disabilityawareness #invisibedisability #spoonie #invisibleillness #fibromyalgia #autoimmune #endometriosis #disability #raredisease #ehlersdanlos ~GoddessStrong (at Park Hill, Denver) https://www.instagram.com/p/B98EjXmJkdD/?igshid=19lpaqlyvln4

[jessicajean08]

I am so excited that my cores getting stronger as is this pose and flow! I am excited to see muscle and fat forming on my body. I weighed in at 109lbs last week. Which is concerning, but i must keep on. Over the summer i had to try on bathing suits...while in the dressing room i was put into shock by my body...my pale, skin and bones body...i began bawling in JCPennys dressing room. My mother open my door and began to cry with me. That was the day i decided to fight! That was the day i realized i want to live! That was the day i literally said "please jessica, please love yourself you have to." yes i begged myself in public to give a damn about my own life. Thats the day i realized i never really had cared about my own life, just others. What good am i to them sick or gone? I wont go down that way. Im a fighter damnit!! ✊👊That day i weighed in at 114 lbs...no muscle. My diet transition caused me to drop the fat i had. I am now on a fruit and nut based diet, minimal greens and seafood. I swear if i hadn't started yoga, gone holistic&organic, or hadnt had #cannabis Id be in the hospital with a feeding tube. The docs told me to give up. To "retire". I'll die quicker if i dont they said. No i dont think i will. Yes i still strugfle with pain beyond belief and seizures here and there. But in general i feel so much better. because i chose to #lovemyself. 😀💪👸✌👍🙌🙆#jessicajeantheholisticqueen #yogaeverydamnday #yogi #yogaislove #yogavideo #iloveyoga #yogaheals #spooniewoman #spoonie #spoonielife #gettoned #health #spooniespeak #spooniesunited #raynauds #erythromelalgia #neurondisorders #mentalhealth #iamcapable #notgoingdownwithoutafight #yogaislife #holistic #healyourself (at Kalamazoo, Michigan)

[jp-journals]

I really wanted to explain what POTS is. I fell ill with this condition at 14 and it left me housebound during my teenage years. Eight years on and I still struggle with it but I try to stay positive. I really want to spread awareness to help others who are worse of than I am and who do not recieve support for their condition. This is a very short post and will only take you two minutes to read but your awareness alone will help me and so many others. Link in bio. . . . . . . . . . #POTS #posturalorthostatictachycardiasyndrome #potssyndrome #chronicfatiguesyndrome #chronicfatigue #chronicallyill #cfs #invisibledisability #invisibleillness #spoonie #spooniesunite #spoontheory #chronicillness #dysautonomia #dysautonomiaawareness #warrior #spooniewarrior

[fox-and-roses]

I am Utterly Sacred. An #altar piece celebrating my #survival of the #medicalindustrialcomplex and four days last week of being in the Intensive Care Unit. #consent and #disability is exhausting and complicated- they were working to save my brain/body, but in that they gave me medications and treatments without my consent. #transphobic medical professionals handled my body with disgust when I wasn’t able to move my own body, completely vulnerable. So I’m #recovering from what’s haunting me. The altar is representing my survival, as well as a way for me to honor all the people who stayed with me, loved me, and tried to shield me from the scary #ableism and transphobia. I am Utterly Sacred. You are too. #cripplepunk #cpunk #spooniesunite #spoonie #cripplewitch

[clovercoin]

Sadly not feeling great tonight, been shaking so bad I can't even comfortably sit up to play some games. Here's to hoping tomorrow will be better. Just to prove to my friends I'm taking it easy!! Snuggling up with bunzie, ice pack for stress fever, and ice water a grab away. I'm even lounging on my extra weeby pillow case! Even as I get older, #Sesshomaru is by babe. I'm okay. 💕 #spoonies #spoonie #spooniesunite #spooniestrong #spoonieproblems #spoonielife #spooniesupport

[nicoleflanagan]

You know your brain fog is bad when...

YOU USE A PILL BOX AND STILL GET MUDDLED UP WITH WHAT YOU’VE TAKEN AND WHEN.

This afternoon I went to take my next lot of medication and I realised I’d taken my night meds with my breakfast 🤦🏻‍♀️

[jennsheelen-blog]

Anyone else make this face when they have to go to yet another new doctor? Even my hair is anxious?!?! 😂 I get terrible anxiety about being poked and prodded (a feather light touch on my back can drop me to my knees), and have to tell my loooong complicated story all over again. But... this could be the doc that helps. Every time I go I have to think that and go in positive. Without too much hope that can be crushed too. A delicate balance... #ivegotthis #youvegotthis #jennsheelen #jennsheelenpodcast #chronicpain #invisibleillness #spoonie #fchronicpain #chronicpainwarrior #spoonielife #spooniestrong #spoonies #spooniesunite #invisibleillnessawareness (at Town of Hingham, MA)

[aprilcornwall]

Tell me again I'm not strong! Living with all of this makes us #warriors #chronicillnesswarrior #chronicillness #illnesses #whatswrongwithyou #spoonies #spoontheory #spooniesunite #me #cfs #fibromyalgia #seid #ibs #depression #anxiety #ptsd #celiacdisease #lactoseintolerant #asthma #allergies #insomnia #chronicallyill #weakbodystrongmind

[hannahcrazyhawk]

I love my shirt from @ndrenegade. I am an Autistic woman. I was only diagnosed two years ago. It was extremely isolating and painful existing for most of my life as, "odd, strange, or stupid." I am differently wired and like many women who are Autistic, I mask it well. This is me today, no makeup, just relaxing in my soft (I am very sensitive to textures) Neurodiversity shirt. 🌼🌺💐 #nomakeup #spooniesunite #modelling #influencerstyle #spooniewarrior #fashionmodel #autismacceptance #differentlywired #newclothes #neurodiversity #diversitymatters #bodydiversity #autismfamily #influencermarketing #modellife #spooniecommunity #diversityisbeautiful #spooniesupport #baldisbeautiful #celebratediversity #autismmemes #autismlife #neurodiversity #chronicallyill #nerdygirl #trigeminalneuralgia #styleinfluencer #lgbtlove #girlswithgreeneyes #girlsinglasses www.hannahcrazyhawk.com (at Eugene, Oregon) https://www.instagram.com/p/CGOInsklwKK/?igshid=1rxly6dfxtmki

[alishawhittam]

We all have different abilities in life, some of us can run really fast but that doesn’t mean the ones who can’t are useless. You wouldn’t bully someone because they can’t run fast. Just because my body doesn’t work properly doesn’t mean anything. I know my worth. Nobody is perfect , regardless of what they show on social media. If you have an illness or disability and you are having a tough time coming to terms with it , I’m here for you. If you need a friend, I’m here for you. This will pass and while your life will be different , you are still the person you were before your illness. #chronicfatiguesyndrome #spoonie #invisibleillness #chronicpainlife #autoimmunewarrior #invisibledisease #spooniesisters #chronicpainsurvivor #spooniesunite #healthanxiety #imatter #anxietywarrior #bekindtoyou #thinkbeforeyouspeak #dontchangeforanyone #stopjudging #lowselfesteem #kindnessalways #spoonielife #chronicpainawareness #spoonies #chronicillnesscommunity #chronicfatigue #youdontlooksick #painwarrior https://www.instagram.com/p/CCpDVVEnHUc/?igshid=1e82lwwvojo33

[jessicajean08]

I am loving my progress. ✊👸😉✨💪 #jessicajeantheholisticqueen #yoga #yogaeverydamnday #yogi #loveyoga #yogalove #yogis #yogaislove #yogainspiration #fear #love #breathe #inspire #loveyourself #quotes #determination #spoonie #spooniewoman #spooniesunited #fighter #woman #yogavideo #recovery #addict #mantra: #iamcapable