#I support people who self diagnosis with research!

[zebulontheplanet]

Not going to tag a very icky post that I found but it’s not hard to find. So, here’s your reminder that;

Self suspecting and self diagnosed autistic people are NOT taking resources from diagnosed people. You can’t get autism services without a diagnosis, you can’t go to any therapies really without a diagnosis and so on.

Autism accessories have a abundance supply. So yeah, get those ear defenders, get those sunglasses, get those stim toys.

You aren’t taking anything from diagnosed people.

Stop saying self diagnosed people are taking away from diagnosed people, because they’re not. They have their space in the community. The community is big enough for them.

[serialunaliver]

How can narcissistic personalities result from trauma?

While narcissism as a personality trait has existed for a long time, there is an increasing amount of people who associate the term the diagnosis "narcissistic personality disorder". I have put this in quotes because I believe cluster B personality disorders should not exist as diagnoses because they stigmatize maladaptive personality traits developed in response to trauma, and this stigmatization hinders a victim's ability to seek support and advocate for themselves.

I am a child abuse victim diagnosed borderline personality disorder with narcissistic traits and this post is based on a combination of research and personal experience. As mentioned above, I am opposed to referring to victims as narcissists, but for the sake of this post, I'll be using phrasing recognizable to people with misconceptions about the topic. Please bear with me.

Childhood trauma is a common contributing factor in cluster B personality disorders even in the psychiatric diagnosis; however, when most people think of these disorders, they think of an abuser and not a victim, especially in the case of narcissism--after all, the term 'narcissist' is a pejorative with synonyms such as 'conceited' and 'self absorbed'.

In order to grapple with the source of a narcissistic personality developed in response to trauma, you must first be aware of what narcissism in NPD is actually like. These narcissists are not supervillains who successfully gain the love and support of everyone. Narcissism holds you back in life. For example, it makes rejection and criticism especially difficult to deal with, which can make maintaining relationships or even having a consistent career difficult. The confident demeanor of a narcissist--while it lasts until narcissistic collapse--is not genuine self-love. It's a way to mask vulnerability to avoid harm that was inescapable in the past. A narcissist is significantly more self-conscious than the average person, as they must inflate themselves in every scenario in order to feel safe and secure. This is where we can see the internal suffering of a narcissist and how such a personality is, at its core, a defensive reaction to trauma.

But what about entitlement?

"I deserved the pain." Self-blaming response to trauma.

"I deserve better". Healing response to trauma.

"Others deserve worse". Vindictive response to trauma.

While narcissism is associated with the last response, it's entirely possible for narcissists to have escalated from the first, or even cycle between all three. You have to keep in mind a narcissist is not actually in love with themselves--but in order for a person to be entitled, you may be thinking they must see themselves as superior in some way, right? Well, it's more complicated than that. Different responses to trauma can arise depending on the person's life experience, past trauma, and current situation. Interaction with victims that have similar trauma, such as in a group therapy setting, can provoke a narcissist's view on vulnerability. With their perception of the world and human relationships, they may view other victims as weak if they appear to have a more 'sensitive' reaction, because this is the type of reaction narcissists try so badly to hide in themselves in order to avoid potential harm. If a narcissist views an abuse victim--or anyone, really--as 'weak' in comparison, they will feel wounded and experience vindictive jealousy when a person that triggers their vulnerability in some way has successes in life. This is where the sense of entitlement comes in. As a defensive reaction, narcissists try to convince themselves they are in some way more deserving of a better life. "A better life" for a narcissist, as developed through trauma, often involves some sort of power. This can lead to fixation on things like wealth, fame, and material items. Anything to appear 'better'. Anything to appear secure. Any way to feel in control and invincible from abuse.

It's not a sympathetic reaction to trauma, but it is equally painful and damaging as any other. If you are a victim with this sort of behavior, you're not "hopeless" like the internet will tell you. At age 25, I have not intentionally caused anyone pain in 6 years. The vindictive feelings are there, but I choose to back away when I feel I may involve others in my own pain. "I don't deserve it, but neither do you."

[cosmereplay]

Kaladin Didn’t Invent Therapy (And Why That’s Actually Great)

“...You need someone to talk to, Noril, when the darkness is strong. Someone to remind you the world hasn’t always been this way; that it won’t always be this way.” “How do you … know this?” Noril asked. “I’ve felt it,” Kaladin said. “Feel it most days.” - Rhythm of War, Ch. 25 Devotary of Mercy

I’m writing as someone with a background in psychotherapy and peer support, and I'm bursting with excitement about one of my favourite topics. You can imagine why I love Kaladin’s arc in Rhythm of War so much! I actually yelled out loud when I read some of these parts the first time.

I’ve seen people online saying and making jokes that Kaladin invents therapy, and while that could eventually be true, what Kaladin actually invented in RoW is mental health peer support. Psychotherapy as most people would understand it simply doesn’t exist yet on Roshar. However, peer support is a legitimate modality for healing on its own merits. Even more importantly for the story, peer support is something Kaladin would personally really benefit from, and it fits his narrative arc way better than therapy would.

1. Therapy as we know it won’t exist for a while yet.

“We need to study their responses, use an empirical approach to treatment instead of just assuming someone who has suffered mental trauma is permanently broken.” - Rhythm of War, Ch. 25 Devotary of Mercy “Someone needs to talk to them, try different treatments, see what they think works. What actually helps.” - Rhythm of War, Ch. 25 Devotary of Mercy

Obviously, Kaladin has not been educated in battle shock or melancholia or any other diagnosis. In Alethkar there's hardly any knowledge to be had on the subject. Even now in real life, research into effective interventions for various diagnoses is still ongoing, over 100 years after modern therapy was founded.

Building an empirical knowledge base* will take time, not to mention the years it will take to train new therapists across Roshar in how to provide interventions specific to various issues. Therapy as we know it today generally includes time in mentorship with another therapist, so in a way, the first therapist isn't a therapist. 😅 In the meantime, there are people who need help today, including Kaladin.

Peer support can fill that gap because its knowledge base is different. Peers bring their expertise, which is their years of trial and error, successes and failures - their lived experience. Peer facilitators need to know the basics of managing a group, and they have to be willing to share their own experiences and learn from the group. Thus, training peer leaders is relatively quick, and incredibly scalable and adaptable across cultures and many issues/diagnoses.

2. Peer Support is a distinct path to recovery that doesn’t require an expert in therapy.

Kaladin located six men in the sanitarium with similar symptoms. He released them and got them working to support each other. He developed a plan, and showed them how to share in ways that would help...Today they sat in seats on the balcony outside his clinic. Warmed by mugs of tea, they talked. About their lives. The people they’d lost. The darkness. - Rhythm of War, Ch. 33 Understanding “While you can’t force it, having someone to talk to usually helps. You should be letting him meet with others who feel like he does.” - Rhythm of War, Ch. 25, Devotary of Mercy

Kaladin is already positioning himself to align with the values of peer support. Some of these values overlap with therapy, such as dignity, respect, inclusion, hope, and trust. What makes peer support different is a particular emphasis on equal relationships, self-determination, and personal growth (Peer Support Canada, 2022).

In peer support, the group facilitator is not considered an authority like a therapist would be. A peer leader may be further on the road to recovery, but they may not be. They are expected to listen and grow just like any other group member.

Because the leader of the group is also a learner, peer support groups tend to be more collaborative and open-ended. Everyone in the group has something they can take out of it and something to give. Everyone in the group is responsible for managing their own self care, and everyone in the group is responsible for the direction of their own growth. This is different from most therapy groups, which often have a specific focus or goal that the therapist is responsible for implementing. And speaking of responsibility...

3. Peer Support Fits Kaladin’s Narrative Arc Better than Therapy

At his father’s recommendation—then insistence—Kaladin took it slowly, confining his initial efforts to men who shared similar symptoms. Battle fatigue, nightmares, persistent melancholy, suicidal tendencies. -Rhythm of War, Ch. 33 Understanding …he’d learned—these last few months—that his battle shock could take many forms. He was getting to where he could confront it. -Rhythm of War, Ch. 39 Invasion

I think everyone can agree that Kaladin needs to participate in therapy just as much as the other battle-shocked men he finds in the Devotary of Mercy.

However, in therapy, the focus is solely on the needs of the clients. A therapist should not be distracted by their own issues (when this happens, it’s called countertransference). Further, therapy is generally framed such that the therapist is the only expert in the room, which means therapists have a higher level of responsibility for how the clients are doing (which varies depending on the issue, the therapy modality, and the circumstances).

In his own recovery, Kaladin is working on trying to take less responsibility for others, so setting him up as a therapeutic authority could be harmful for him. In a position of authority, he might be tempted to replicate the hierarchical structure he was in before (which would impede his own growth), or try to save everyone (which could impede everyone's growth). He simply doesn’t have the mentorship or knowledge base he'd need to work through those issues before leading as an expert.

In contrast, the point of peer support is the mutual sharing of lived experience. The group facilitator is expected to share their own struggles (as a model of recovery), and allow others to support them. In the context of a more balanced power dynamic, Kaladin can give the other group members the space they need to grow, and he can pursue his own recovery without feeling like he’s letting others down. Also, he will be able to leave the group during KOWT without worrying that the group won't be able to run without him. Everyone in the group carries some responsibility for each other, so group members can come and go with less stress than a change in therapist would cause in group therapy.

This is the beauty of peer support. It can happen anywhere people with similar experiences get together. No formal education is required. What is required is a willingness to know yourself as well as you can; to share your experiences; to listen to others tell their stories; to question your own assumptions as you learn how others handle things differently; to look out for each other's safety; to care.

Peer support creates a place of belonging and a community repository of shared wisdom. Kaladin almost had it on Bridge Four, but his position of authority wouldn’t allow him to grow the way he needed. Peer support is what Kaladin needs - he needs a place where he can take off his armour among people who get it because they're struggling with similar issues, and without having a position of responsibility over them. When he (eventually**) attends the groups, they help him grow!

Anyway, that's why Kaladin didn’t invent therapy, and why I think that's great.

For the men chatting together softly, the change was in being shown sunlight again. In being reminded that the darkness did pass. But perhaps most important, the change was in not merely knowing that you weren’t alone—but in feeling it. Realizing that no matter how isolated you thought you were, no matter how often your brain told you terrible things, there were others who understood. - Rhythm of War, Ch. 33 Understanding

---

*Funny enough, empirical research could lead Rosharan researchers right back to peer support. Empirical research on Earth has shown that modern therapy and peer support have similar levels of effectiveness (for example, for depression and PTSD).

**Look who’s resisting attending the groups he founded…KALADIN!! (shakes fist in the general direction of the sky) (This is the most relatable passage for me in this whole book, by the way, helper types unite lmao):

Kaladin looked down at the table. Had it? Had talking to Noril helped? “He’s been avoiding joining in,” Teft said. “I haven’t,” Kaladin snapped. “I’ve been busy.” Teft gave him a flat stare. Storming sergeants. They always heard the things you weren’t saying. - Rhythm of War, Ch. 38 Rhythm of the Terrors

Peer Support Canada. (2022). Peer Support Core Values. Accessed from https://peersupportcanada.ca/ Jun 27, 2022.

[lemon-tea-leaves]

If you're gonna go around talking about how invalid self-diagnosis is and how you should ALWAYS just go to a doctor because they're the experts, consider doing the following instead:

Reminding yourself that no doctor is infallible, and unfortunately there are shitty and VERY misinformed doctors out there

Advocate for the spreading of accurate information about the neurodivergence or illness or disorder or etc.

In that same vein, dispel myths and misconceptions about said Brain And Body Things™

Advocate for easier access to evaluation and diagnosis

Support people who have been medically gaslit in the past and just want to know what's going on with themselves

Support people who have had their life affected by their symptoms (despite not knowing what was causing them) and just want to know what's going on with themselves

Support people who just Feel something Wrong and just want to know what's going on with themselves

Just fucking support people and stop tearing others down because you're white knighting

There are people intentionally making a mockery of things like DID or being autistic, among other things. And there are people who mis-self-diagnose (usually due to research that isn't deep enough) and are fed misinformation which leads to them misrepresenting the disorder.

But there are also people who have the symptoms, looked into the symptoms, found something that matched the symptoms, and maybe FINALLY felt they had an answer when they couldn't find one because they didn't have the means or whatever the reason.

And you're telling them that they're making a mockery of a disorder because they wanted to find a reason. And it's because you associate them with the people on TikTok that you roll your eyes at. And it's fucking annoying.

TL;DR:

Maybe instead of being a dick about self-diagnosis, you could help set a path towards making it so people don't have to in the fucking first place.

(Also, as for my opinion on self-dx, self-dx with a good amount of research from verified accurate sources = A-OK. I'm saying this as a professionally diagnosed person who has had to self-dx in the past. I've been wrong about some things and right about others, and professionals have been right about some and wrong about others. But it helped to set me down the right path. I wouldn't be where I am if I hadn't.)

[bolshefem]

if you think people are more empathetic to women than men you are straight up fucking delusional. men have proved themself almost INCAPABLE of empathy for women, and this is statistically and empirically supported. they are incapable of understanding that women have an internal life, do not see us as humans with emotions who exist external to them. look at the comments on a post of a man talking about self harm vs a woman. "men's mental health matters too🥺" "I'm proud of you" vs "attention whore" "sideways for attention downwards for results" "ugly bitch trying to get sympathy"

this is what happens for ANYTHING regarding sexual assault, mental health, suffering, trauma.

or an overweight man vs woman "keep your head up king👑" "you got this bro, I believe in you" "these women don't deserve you." (like totally unprompted not discussing relationships) Or often no comments on his weight at all if he's not talking about it. For a woman, no matter WHAT she is posting about "landwhale" "starve yourself" "put down the burger" "kys fat b*tch" and the most vile and insanely cruel comments The amount of threads and forums dedicated to eviscerating degrading and insulting overweight women on places like lolcow and kiwi farms and just social media in general and I genuinely have never seen one for a man. Same thing with things like facial deformities, the comments are unbelievably cruel to these women.

the level of vitriol is not even remotely comparable, and I don't even think it's mostly a double standard. I think they just lack the capacity to feel empathy towards women and perceive them as human and capable of feeling pain. Things are solely perceived in how they relate to them and thought to be performances for men. Women exist to serve them and if they don't give them a boner they don't deserve to be alive. If something, no matter how innocuous, pisses them off in the slightest they don't have a single qualm because they just don't view them as real people and full human beings with internal lives. women having emotions is inherently manipulative, anything they say or do is a performance for men. And like look at things such as the gender credibility gap https://www.tedxmilehigh.com/gender-credibility-gap/ Women are systematically less believed as witnesses in a courtroom, reporters, academic authorities, in claims of sexual assault, discrimination, or harassment.*

Women's reports of pain symptoms are less likely to be believed by doctors, and they are staggering more likely to not receive proper medication, go undiagnosed and untreated. Women are 32% more likely to die post-op if their surgeon is a man. "Womens' pain not taken as seriously as mens' pain. Researchers found that when male and female patients expressed the same amount of pain, observers viewed female patients' pain as less intense "(sciencedaily.com/releases/2021/04/210406164124.htm) "Nearly three-quarters of cases where a disease primarily affects one gender, the so-called “men's diseases” are overfunded, while the “women's diseases” are dramatically underfunded."

https://www.concernusa.org/story/gender-bias-in-healthcare/ https://www.washingtonpost.com/wellness/interactive/2022/women-pain-gender-bias-doctors/ https://www.medicalnewstoday.com/articles/gender-bias-in-medical-diagnosis#how-does-it-affect-diagnosis https://www.health.harvard.edu/blog/women-and-pain-disparities-in-experience-and-treatment-2017100912562 I could literally go on on this topic forever. The gender empathy gap is a form of epistemic violence against women.

* "Suicidal behaviour and self-harm in women can be viewed by family, health professionals and the community as attention-seeking, manipulative and non-serious, which can negatively influence how young women are treated." (Curtis, 2016) *Men with overweight tend to be perceived as wise or experienced, while women's credibility tends to decrease with excess weight... women seem to experience higher levels of weight stigmatization than men, even at lower levels of excess weight (Flint et al., 2016)

*Women are at greater risk for weight/height discrimination than men (Puhl et al, 2008)

*so many papers on this but "Across the board, women are perceived to be less credible than men. Especially women’s testimonies of rape and sexual harassment are widely trivialized and disregarded, even though reports of sexual abuse are not more likely to be false than reports of other crimes" (Schreurs, 2020) more like Mack, 1993

[inkskinned]

i both firmly believe that self-diagnosing saved my life and i think that the way tiktok and instagram have recently been spreading misinformation about mental illness/neurodivergence is incredibly harmful.

people who are looking for answers are already people who are in a vulnerable situation.

much of the misinformation appears logically sound; and is presented as definitive fact (prefaced with claims such as "research shows"). it's imperative we remember correlation does not prove causation. it is incredibly dangerous to make definitive statements like "if X happened in your childhood, you now Z as an adult." real scientists will almost always use may or other less-definitive terms. similarly, equating one behavior/experience with any single condition is also unsafe. many conditions have overlapping symptoms; and many people "mask" their key symptoms, even to themselves.

we cannot discern from a singular data point any conclusion. in official diagnosis, for a behavior/experience to be considered a symptom, it must significantly influence your life. many people enjoy an organized space. that is a preference. disrupting your daily life even at personal cost in order to prioritize organization is more likely a symptom.

again, a single data point is not an effective diagnostic tool. it is necessary and important work to catalogue and consider all unwanted/distressing behaviors in order to understand a complete picture of the person.

i will see creators in paid partnerships make generalized behavioral/emotional claims that apply to a large portion of a community, and then they will suggest that the "solution" to that behavior is through their paid partner/through their personal support. "follow for more psych tips/facts" is an incredibly evil marketing tactic. i very rarely see unpartnered/unbranded content on how to aid/comfort those behaviors and feelings.

much of the misinformation employs a subtle technique (called confirmation bias) of setting up a conclusion before "proving" the conclusion. "you know you have X when you experience A,B, and C." no person's experience of their conditions/behaviors will look exactly the same as another's. while knowing certain things might be a sign/symptom of a condition, it is irresponsible to consider it definitive.

confirmation bias is unfortunately extremely effective on tiktok specifically. the algorithm will notice that you interacted longer with the video that "proves" (through a singular video) that you "have" a condition. it will continue to feed you related videos that further confirm what you believe.

this is dangerous because we are, unfortunately, not good at knowing ourselves. i did not know it was unusual to vividly nightmare every night; i didn't consider it a symptom. i was similarly dismissive also of any other signs of my PTSD - i incorrectly assigned them to anxiety/adhd. on the small scale, this can mean a longer journey to healing. on the larger scale, it can mean people with extremely difficult situations are unable to get the help they need.

please, if you can, and you're looking to self-diagnose: be careful about what you assume about yourself. try to keep an honest journal of what you're thinking/feeling/doing for a few days.

do not go in with an assumption. try to keep an open mind. i think we all "suspect" we have something - but like i said, i completely missed my own PTSD symptoms, because i suspected the ADHD the most, and only "saw" those symptoms.

do your own research. if the tiktok says "research shows", google that research. figure out who paid for that research. do further research related to that study - has it ever been repeated? is it peer reviewed? do other researchers seem to accept it as conclusive?

if you feel you really resonate with the materials of one person's experience with a condition, find other examples. see if you relate to other creators who identify similarly.

and please - please do not stop once you come to a conclusion. i fully believe that the diagnostic process should be seen as a first step, not a destination. by knowing what you might be struggling with, you gain an incredibly powerful tool on how to gain peace with that condition.

if you feel yourself emotionally respond to a tiktok/etc that suggests something that might be true about yourself, i'm glad you had that experience. but it's also important to not relax into the "easy" answer. interrogate it. start googling what else that could mean; what ways you could work on healing that wound.

healing does not "belong" to any one condition. i want you to begin to look into healing no matter if you have "proven" you have a condition or not. it is never selfish to practice responsible self-care. even if you don't relate to having adhd, you are not harming me by using adhd-inspired study tips. it is not making my condition worse for you to seek peace by asking for more time on tests. even if it was - the fault would be with the system, not in your need of something the system makes inaccessible.

remind yourself that everything you experience is real. and because it is real, it is complicated. while things might be related - even sometimes clearly related - a stranger on the internet cannot make that discernment for you. you as a person deserve the work, attention, and care that goes into the process of unravelling the harm that has been done to you.

it makes me very, very upset to see how popular these videos have become, because they're so irresponsible. and they clearly are targeting a vulnerable group. for example, making generalized claims about children of unloving caretakers is targeting those who have experienced neglect. there is no way to use 30 second videos to correctly analyze what that neglect might have caused in your adult life. i'm sorry, but it's snake oil.

i know it is so powerful soothing to recognize that you aren't broken. that others exist like you out there. i want every person looking for answers to find their answer. i want you to feel seen and heard and understood. i want you to find your community.

i just want it to happen safely.

[am-i-the-asshole-official]

AITA for possibly invalidating a self-diagnosed autistic person

I (20sNB) met D (20sM) in an online server for an anime fandom we're both in. I'm a psychology student who was professionally diagnosed with autism in early childhood. D and I developed a friendship based on having similar fandom opinions. I don't remember how me being autistic came up in conversation but when I mentioned it, he described himself as "autistic as f#ck". Sometimes he would get into arguments with other people in the server and bring up his autism if he was called out on how he spoke to people. On his twitter he said his autism was self-diagnosed and he has no interest in getting a professional diagnosis but he could if he wanted to.

I have complicated feelings on self-diagnosis; I think there's pressure in the autistic community to accept every single self-diagnosed person as valid. I personally would never definitively say I had something that I hadn't been professionally diagnosed with. That being said, I understand that there are factors that would prevent someone from getting a diagnosis so some people *have* to only be self-diagnosed. I don't have a problem with it as long as people aren't spreading misinformation or being actively harmful, which is what I (and others) thought D was doing. My issue wasn't him being self-diagnosis, it was that he was using his self-diagnosed autism to justify incorrect (and harmful) claims.

I noticed a few times that he would make comments like "autism isn't a disability" and "some autistics have high support needs because of intellectual disability", which is just flat out wrong. D also claimed that if he was to get a diagnosis, his would be level 3 autism (which would be for someone with high support needs with severe social and communication deficits, generally nonverbal) but he also is a college student who's been in a relationship for over a year and he works part-time in retail. For context, my diagnosis happened when there was different terminology but my psychologist considers me to be somewhere between level 1 or 2 and I am also studying and working part time.

Another person in the server (let's call them P, also 20sM) brought up a different disorder that they'd been diagnosed with (not autism although P is autistic as well) and D immediately said "I probably have that too but I can't be bothered to do anything about it".

P and a few other people in the server expressed some frustration in a separate group chat about D's tendency to (a) say things about autism that just aren't true and (b) say "omg me too" every time one of us brings up things we have. Once D said autism isn't a disability the third or fourth time we'd had enough and I responded "D, that's not right". D took offense to that and claimed as a fellow autistic person I should agree with him. I said "D, I'm autistic and it's a disability, I call myself disabled because my autism is literally disabling". D said he felt like disabled is a bad word and he doesn't like using it about himself. I said "D, no one's forcing you to use it about yourself if you don't want to, but saying autism isn't a disability is just wrong". P pointed out that every time someone in the server talks about being neurodivergent D is like "omg me too" and P also said that D doesn't get to claim to be autistic while also spreading misinformation, especially when the misinformation being spread is ableist. D got mad at P for calling him ableist; he insisted he's autistic and self-diagnosis is valid. I said "I get that, but when the information you're spreading is flat-out wrong, it kind of makes me question your researching skills".

D called P and I both ableist, told us we were so privileged to be diagnosed (which neither of us disputed but also D *could* have been diagnosed but chooses not to be even though he has the resources to access a professional diagnosis) and we're "f#cking assholes" for invalidating self-diagnosed autistics. D's partner (20sF) also got involved and claimed we were bullying D and we both have "pick-me" attitudes. P and I both muted the server and disengaged for a while.

Later on, D messaged P and I both. D claimed his reaction to what was said was because of his autism. P had had enough and said "buddy, you don't get to say that" and D got mad and blocked P. I told D I was going no-contact and D could block me if he wanted. D called me an asshole and I blocked him.

It's probably worth noting that my autism means that I have difficulty interpreting people's messages in text form and tend to take what people say at face value. Sometimes D getting overly confrontational triggered my anxiety and caused me to feel very uneasy around him since it was in text form and there was no vocal tone to decipher (if that makes sense). The thing is, I don't think D is necessarily not autistic, I just think D has some internalized ableism and doesn't really understand the nuances of the autism spectrum enough to make a sound judgement and he should have maybe not made claims about an identity he knows very little about, but maybe P and I might have been a little harsh because we'd been stewing on our feelings for so long.

What are these acronyms?

[reasonsforhope]

"While mainstream media increasingly cover violence and legislative attacks against trans people, many scholars and activists worry that focusing just on violence and discrimination fails to capture the full experience of being trans.

Drawing on the success of movements like the Black Joy Project, which uses art to promote Black healing and community-building, trans activists are challenging one-dimensional depictions of their community by highlighting the unique joys of being transgender.

My research on trans parents affirms the reality of trans joy. From 2019 to 2021, I interviewed 54 transgender women — both current and prospective parents — from diverse racial and class backgrounds across the country.

I found that while many have navigated discrimination in their parenting journeys, they also have fulfilling parent-child relationships, often with the support of partners, families of origin and their communities.

Gender euphoria

Scholars and community members use the term gender euphoria to describe a “joyful feeling of rightness in one’s gender/sex.”

It diverges from the diagnosis of gender dysphoria, or a sense of conflict between assigned sex and gender identity typically associated with feelings of distress and discomfort.

Gender euphoria celebrates feeling comfortable with who you are and how you are perceived by the world.

Some people transition with a specific set of goals, while others discover new sources of joy and new facets of their identity over time.

Many of the trans women I interviewed expressed their gender euphoria in relation to their role as mothers. A Black trans woman in her 20s, whom I will call Gloria, experiences joy in being recognized as a mother.

“I love being called Mom. That’s the greatest thing,” she told me. “I love waking up every morning to see [my child’s] beautiful face. It keeps me motivated.” ...

For many trans people, transitioning opens up a new set of possibilities. When I asked Adriana, a trans Latina in her 30s, what it was like to come out as trans, she told me,

“I’ve never been happier. The happiest day of my life was when my daughter was born, and the second happiest day of my life was when I [started transitioning].”

Family and community connections

While some trans people do experience rejection from their families of origin, that is not true for the majority of the community.

In a 2015 national survey of over 27,700 trans adults, the U.S. Trans Survey, 60% of respondents reported having families who are supportive of their trans identity.

Trans women also form chosen families with friends, co-workers and other community members. Relationships with other trans people can have particularly positive effects on identity development and overall well-being, including emotional resilience, self-acceptance and a sense of connection.

Trans community care

In addition to caring for their biological and adopted children, the trans women I interviewed felt a responsibility to take care of their community.

Sometimes this care manifested as parent-child relationships, in which respondents provide financial or emotional support to LGBTQ+ youth.

Maggie, a white woman in her 50s, didn’t know she was a parental figure for her “queer kids” until they tagged her on Instagram to celebrate Mother’s Day.

“Someone might go, ‘Hey, can I stay on your sofa tonight? I’m having a hard time.’ Well, yeah, of course,” she said.

“Or they might hang around the shop [I work at], and only later it dawns on me, ‘Oh, this was the only place they could come and get affirmed and not feel weird.’” ...

Miriam, a white trans woman in her 60s, agreed that she has a lot to learn from younger trans people.

“A lot of my community today, people who I count as family and my beloveds, are not of my generation,” she said. ‘Beloveds’ is the term she uses to describe her platonic loved ones.

“I learn a lot from my beloveds in their 20s and 30s, who don’t have the same baggage I [dealt with] about how I could be and who I could be.”"

-via GoodGoodGood via The Conversation, July 14, 2023

[warcrimesimulator]

A 33-year-old New Zealand woman who was accused of faking debilitating symptoms has died of Ehlers-Danlos Syndrome (EDS).

Stephanie Aston, 33, passed away in her home in Auckland on 1 September, the New Zealand Herald reports.

Aston became an advocate for patients' rights after doctors refused to take her EDS symptoms seriously and blamed them on mental illness. She was just 25 when those symptoms began in October 2015. At the time, she did not know she had inherited the health condition.

EDS refers to a group of inherited disorders caused by gene mutations that weaken the connective tissues, according to the National Institutes of Health (NIH). These tissues are responsible for many important functions, and they support the skin, bones, blood vessels, and other organs.

Symptoms of EDS include fragile, small blood vessels; loose joints; abnormal scar formation; abnormal wound healing; and soft, stretchy, velvety skin that bruises easily, per the NIH.

There are at least 13 different types of EDS, and the conditions range from mild to life-threatening. EDS is extremely rare: Only one in every 5,000 people have it. Patients with EDS can sometimes receive treatments that might help manage their symptoms—such as physical therapy—but there is no cure for the illness. People who live with EDS often have to restructure their lives to learn how to protect their joints and prevent injuries.

Aston sought medical help after her symptoms—which included severe migraines, abdominal pain, joint dislocations, easy bruising, iron deficiency, fainting, tachycardia, and multiple injuries—began in 2015, per the New Zealand Herald. She was referred to Auckland Hospital, where a doctor accused her of causing her own illness.

Because of his accusations, Aston was placed on psychiatric watch. She had to undergo rectal examinations and was accused of practising self-harming behaviours. She was suspected of faking fainting spells, fevers, and coughing fits, and there were also suggestions that her mother was physically harming her.

There was no basis for the doctor’s accusations that her illness was caused by psychiatric issues, Aston told the New Zealand Herald. “There was no evaluation prior to this, no psych consultation, nothing,” she said.

She eventually complained to the Auckland District Health Board and the Health and Disability Commissioner of New Zealand. “I feel like I have had my dignity stripped and my rights seriously breached,” she said.

Research suggests women are often much more likely to be misdiagnosed than men. A 2009 study of patients with heart disease symptoms found 31.3 per cent of middle-aged women “received a mental health condition as the most certain diagnosis”, compared to just 15.6 per cent of their male counterparts. Additionally, a 2020 study found that as many as 75.2 per cent of patients with endometriosis—a painful disorder that affects the tissue of the uterus—had been misdiagnosed after they started experiencing endometriosis symptoms. Among those women, nearly 50 per cent were told they had a “mental health problem”.

One reason women’s health conditions are often ignored or misdiagnosed could come down to where the research stands. A 2022 paper states that “females remain broadly under-represented in the medical literature, sex and gender are poorly reported and inadequately analysed in research, and misogynistic perceptions continue to permeate the narrative”. Women’s pain, in particular, is especially under-researched: 70 per cent of people with chronic pain are women, yet 80 per cent of available studies on pain have focused on men or male mice, per Harvard Health Publishing.

[crippleprophet]

do you have any thoughts on functional neurological disorder?

it’s one of the cruelest inventions of modern medicine.

for a bit of context on my positionality i don’t currently have an fnd diagnosis but i am at huge risk of one (my rheumatologist already thinks i have a conversion disorder) & it’s one of the many reasons i’m terrified to pursue a second neurologist after my first one dumped me. fnd is, like, maybe not the pinnacle but definitely a major player in the field of doctors gaslighting us as hard as possible & being furious every time it doesn’t work.

i’m not gonna find these articles bc it gets to a point of self harm for me to (re)read some of this shit but literally doctors are like “the more convinced patients are there’s something wrong the more they’re lying,” “the more symptoms patients have the more likely it is to be fnd and not something really wrong,” etc. again just unfathomably cruel. also the fact that mainstream medicine can unironically write that people with hypermobility are “more likely to have fnd” rather than going huh maybe there’s a neurological component here is just. what the fuck are y’all doing.

a really fun (fucked up) “i told you so” moment with the social construction of the ‘real vs fake’ tics false binary was when doctors literally can’t tell the difference based on their own bullshit criteria.

i highly recommend checking out @fndportal for incredibly insightful thoughts on a lot of these issues. sociological research on post-hysteria diagnoses & the genealogy of hysteria has also been super helpful for me although it’s obviously a very difficult history.

on a peer support level i think disability community is especially vital in the face of these kinds of psychological warfare from doctors. & to anybody who’s been diagnosed with fnd or similar conditions: i believe you. something is really wrong, it is not your fault (& it would be okay, & you’d still deserve effective compassionate care, if it was), you’re not making it up.

obviously i personally want to destroy the whole thing from the ground up, but if i could change one thing about the medical field, it’d be that it needs, desperately & urgently, to create space for not knowing. to say “something is happening here but science hasn’t caught up with it yet.” …unfortunately, to do so would be to destroy medicine from the ground up, because the whole project is predicated on the manufactured authority of knowing our bodies wholly & irrevocably, of rendering our own knowledge irrelevant at best & lies at worst.

also imo cbt, especially for a physical symptom, is evil & in situations where people can ghost their doctors rather than go i wholeheartedly support that.

[zebulontheplanet]

You’re speaking from a place of privilege if you believe self diagnosing autism isn’t valid.

YOU. ARE. PRIVILEGED.

“Oh but it makes us look bad” We already look bad.

“Oh but it invalidates me” Cry about it.

Know your privilege. I hate seeing this. I fucking hate it. POC autistics are being refused diagnoses, women and AFAB people and feminine presenting people are being refused diagnoses, disabled people are being refused diagnoses.

I think that people don’t understand that although yes, there is a lot of nuance, should late diagnosed and self diagnosed autistic people who are low support needs take a step back and let higher support needs and early diagnosed folk talk? Fucking absolutely. But that doesn’t mean that we should be invalidating those that are self diagnosed. Two things can exist at the same fucking time.

Self diagnosis with RESEARCH is completely valid. If you’re a POC then you have a chance not getting diagnosed, if you’re disabled then you have a chance not getting diagnosed, if you’re a woman or afab then you have a chance not being diagnosed. All for the color of your skin or the fact that you look different than the typical white boys who love trains and don’t speak.

Cry. About. It.

I’m tired of being nice, I’m tired of saying this over and over again. Just stop!!! Just fucking stop!! They aren’t harming anyone!!

[spectrumgarden]

I keep thinking about how no one seems to think about nuance when it comes to like, the concept of "autistic traits / symptoms" and discussing them, and how that is intertwined with the push to not consider it a disability. And its complex to discuss, but here's my convoluted thoughts. I know it's long but I hope people will take the time to read it.

There are in fact people who do fit some commonly associated with autism traits that are not impaired by them. Let's make up a guy, for a second:

They like routine and repetition a lot but easily handle change in them. For example they wear the same set of clothes for years with no desire to ever branch out, but if you made them wear something else they wouldnt really be bothered by it as long as they dont think it's super ugly, etc. They like to watch the same movies over and over but happily agree to watch other things with their friends when spending time together, and are engaged and interested in those movies. Etc. They speak very formally or choose "complicated" words for things that could be expressed easier. They however do not face problems with communication beyond annoyance of others because they're able to rephrase things easily to be understood, and they also have a normal back and forth in conversations and initiate conversations normally. They sometimes engage in subtle self stimulating behaviors and recognize the desire to do so during boring or stress inducing times (which pretty much everyone does, btw). They dislike loud environments but do not respond with melt- or shutdowns or any other "severe" reactions, and while for example preferring to go to a museum over a club, they easily go through their daily life in busy areas like city centers, shops or cultural events like parades without issues beyond like, mild annoyance and no desire to stay for longer than necessary. They have strong interests in seemingly random topics and spend quite some time researching or engaging with those, but they do not view the world through the lense of said interest, they do not neglect caring for themselves or fulfilling academic or professional responsibilities because they are so engrossed in their interests, they are easily able to hold conversations about other topics. I could go on.

This person would not be diagnosed with autism by any doctor who pays attention to the impairment clause of the diagnosis. They would probably be told "you're subclinical / you do not meet enough criteria / ..." While his person would probably relate quite a bit to (parts of) descriptions of (level 1 and / or low support needs and / or high masking) autism. And this is an imaginary person I made up, but these people obviously exist (and as a side note, are probably what people refer to when they talk about "everyone being a little autistic" etc)

And this person being told they're not autistic might be upset. Because clearly, they have so many autistic traits. They relate to so many videos! But the thing is! There is no impairment! The one thing that connects all of the symptoms related to autism to the actual diagnosis. This does not mean they do not in fact relate to the autistic experience. This does not mean these parts of their life or personality are fake / non existent / not important to who they are and how they experience things. But it is important to differentiate. If they consider themselves autistic, if the world considers them autistic, it waters down the definition to a point of being categorically useless from a medical standpoint, from a standpoint of figuring out who needs support and in what ways. Who needs (early) intervention, who needs extra support in school or at work or at home or in public.

And like. Humanity at large will probably always want to shove themselves into random categories. "Which character are you like?" "What is your personality style?" "What is your star sign?" or "which sports team do you support", and countless more come to mind. I dont think this imaginary person is wrong or silly for wanting to find a category of people they are like, or recognizing this similarity with some autistic people. I wouldnt even mind if they made up a non-clinical category / group of people who relate to autistic experiences without the impairment. It would get the point across that it is a group of people with shared experiences, but it is not the same as autism.

However autism is increasingly treated like something thats just a personality type without impairment, by people online and offline. And when they go "this is an autism symptom" without nuance, without looking at the need for impairment, or even differential diagnosis, it spreads that attitude. "Liking to eat the same foods is an autistic trait"... or is it normal to have food preferences to a degree if it does not cause you stress to eat new foods, if you are capable of eating other food if hungry and presented with them and not the food you prefer? Or is this person anorexic and their mind has created categories of "allowed to eat" and "not allowed to eat" based on arbitrary categories relating to their fear of weight gain? "Only eating with small spoons at home is a common autistic trait"... or is it a harmless preference as long as you are still able to eat food outside a strict routine set up with zero possible deviations? Or is it a person with OCD and eating with small spoons is a compulsive behavior for some sort of intrusive thoughts?

I could go on forever. But in the end, these short sentences are all the same. They are, at the same time: autistic experiences and allistic experiences, because they are so non specific. They are watered down and any additional information is removed.

autism is about a specific combination of experiences that impair you. That's literally all it is. It does not automatically turn us into a category of "other" that is fully not possible to relate to, because we are human too. And some of it will be relatable to people that are not autistic!

And there is value in discussions of experiences of autistic people that go beyond the impairment, as long as we do not forget about it, or treat it as secondary instead of the defining factor. I dont mind if autistic people bond over something they're not impaired by, that they see as a common experience, for example not easily going along with authority. Being creative. Preferring the small spoon (without being impaired by it while having other impairments), whatever, and call those common autistic experiences. But those are not the pillars of what make up autism and solely relating to them should not be your reason for calling yourself autistic. Neither should relating to commonly impairing symptoms without being impaired by your version of them. The impairments resulting from abnormal development are what makes someone autistic.

There needs to be more nuance, detail, when discussing autism symptoms. And the push to, at the very least, expand autism into an area of experiences that do not cause impairment of any kind, or worse claim it never caused impairment, need to stop. It does not help anyone.

I genuinely think part of the whole "everyone is autistic these days" crowd who likes to go after people and invalidate them has picked up on some of this, but they lack the skills to criticize it for what it actually is and / or they want there to be a simple solution, which is that everyone who calls themselves autistic online who does not fit their very stereotypical view is faking. They are wrong of course. But I dont think this comes out of nowhere. There is something to criticize about how autism is treated in many circles, especially among younger people.

I'm really not sure how to end this post because I like to come to some conclusions on my long posts but just. Uhm. The way some people treat "autistic traits" as completely unrelated to the impairment they cause while staying exclusively autistic traits is wrong. The way people try to redefine autism is harmful and in the end not needed because they could simply invent other words for that experience.

[trans-axolotl]

reading a book about the Bethel house in Japan and it's always so so so cool to see all the unique differences + all the commonalities between different mad liberation/peer support communities. definitely noticing some similarities between the Trieste model in Italy and Bethel house, especially when it comes to embracing problems as opportunities + the model of healing in community, and transitioning from closed hospital wards to community living with open hospital treatment. another key feature of bethel house is self directed research (a translation of tōjisha-kenkyū that doesn't quite get all the political nuance.) the idea is that people engage in self study and self diagnosis to understand their own experiences and then present these in peer support meetings, get feedback, etc.

favorite thing I learned about Bethel house is that every year they have a competition called the Grand Prix hallucination and delusions contest, where people share their stories of hallucinations and delusions and whoever's hallucination/delusion brought the community most together that year wins the prize. like i'm actually so so obsessed with that and almost teared up hearing the casual and accepted way altered states were talked about.

Bethel house def isn't perfect but is such an interesting example of what alternatives to psychiatry can look like and i'm really grateful to everyone from bethel house who publically shares their experiences!

article about bethel house: https://aeon.co/essays/japans-radical-alternative-to-psychiatric-diagnosis

films about Bethel house: http://www.disability.jp/soul/

[kaija-rayne-author]

Would you recognize an autistic or ADHD person if you saw one?

What about an autistic or ADHD fictional character?

Many of y'all will say, of course.

And you'll be wrong.

I'm not talking to hatched autistics and ADHDers. We can usually spot others like us and autistic/ADHD coded characters in fiction.

Definition: A 'hatched' autistic or ADHDer is someone who knows they're one or the other or both, AND they understand and accept that pretending to be neurotypical is bad for us.

It actually kills us, so, yeah, bad. The leading causes of death for autistics is unaliving or heart attack from the stress of living in a world that was most certainly not created for us. In some ways, this world is antithetical to us.

We also experience the stress of what's known as 'masking'.

Our average age of death is 36 years old. Think about that for a second. 36. And the rates of unaliving in autistic and ADHD kids is utterly obscene. The suicide watch for parents of autistic kids starts at 8 years old. 8.

(I don't say this for everything, but self-diagnosis is absolutely valid for autism and ADHD. In a world where people can still be institutionalized or lose their kids because of an autism diagnosis--this is fact for Britain and several US states. France is awful for autistics-- self diagnosis must be valid so we can figure ourselves out without endangerment.)

Masking is where a traumatized autistic (and I've also never met or even heard about an untraumatized autistic/ADHDer) will create a, persona, almost, that lets us function in the world.

It's rarely intentional, my youngest son started masking at 4 in pre-kindergarten because he wanted other kids to like him and want to play with him. Even though our home is very supportive of diversity, especially about autism and ADHD, y'all... he was *4*.

Being autistic and/or ADHD is so damned lonely. Especially if you don't know why you're different. So we do our best to adapt. That can cause issues.

Masking isn't meant as a lie. It's survival instinct. Because even though the world absolutely doesn't treat us like we're human beings, we still are. We want to survive and thrive as much as the next hominid. We have all the same needs and desires as any other human.

But what about the rest of all y'all? Can you recognize us?

Last week, a music teacher banned a 6 year old autistic kid from the school concert because 'they would ruin the experience for the other children' this is after making the autistic kid learn and practice the songs for weeks. 6 years old and that kid already has scars from discrimination about a genetic condition he can't help. It's cruel and so damned inhumane. At worst, the kid probably sang off key and maybe fidgetted a bit. But that would 'ruin' the concert. It's not the Estonian Philharmonic Chamber Choir, lady, it's an elementary school concert. It's absolutely not worth scarring that poor kid over. It also happened back in 2022, and again in 2017.

People will have seen 'Atypical' or 'The Good Doctor' or, gods forbid, Rainman and think they know what autistic people look like. (You should probably know that the majority of autistics loathe those shows because the rep is so bad.)

But here's the thing.

You can't see autism or ADHD. Not just by looking at us. It's purely a brain wiring difference. People don't even believe me when I tell them I am if they've seen me in person. And I'm professionally diagnosed as both autistic & ADHD.

Sometimes, there are co occurring issues, like intellectual disability, that are confused with autism, but they aren't actually the autism or ADHD part of things.

I'm an autistic and ADHD advocate. I have a consultant option on my Patreon for people who want advice either for themselves or so they do the right thing by their kids. I'm autistic/ADHD, my kids are too. I've been researching and learning about the topic for close to a decade at this point. I truly know what I'm talking about. I understand the different flavours and experiences of these two types of neurodivergency extremely well.

As an aside, while I have you here, ABA (Applied Behavior Analysis) is never the right thing. You know how gay conversion therapy is bad? The same person (Ivar Lovass) came up with ABA, and it's meant to do the same thing. To torture people, most often children, into pretending to be what someone else wants them to be. It doesn't support or help the autistic person.

Almost unilaterally, ABA causes a PTSD breakdown of self coming into our 30s. I say almost, but I've never even heard of an autistic person who has been tortured by ABA who hasn't developed severe PTSD.

If you tried to use the methods used in ABA on a dog, you'd be guilty of extreme animal cruelty.

Yet, because it's practiced on human children, it's fiiiiine. Big money lobbying has even made it so that ABA 'therapy' is the only one covered by a lot of insurances.

We can thank Autism $peaks for that. They are a hate group. They fit every bit of the definition of one and then some. (So please don't donate to them at the till. They love to pollute stores like Toys 'R' Us.)

Adult autistics have been speaking out against them forever. But since most autistics (80%) are under or unemployed, we don't have the kind of financial sway we'd need to get rid of them. Yes, this even counts for 'the new ABA'.

You can't save ABA. Putting a 2 year old human child through 40 hours weekly of 'training' so that they can look and act neurotypical is just flat out torture. Making a child 'extremely hungry or thirsty' so that they will do what you want is torture. There's just no other way to slice that apple. It's rotten to the core.

But back to my point.

Recently, someone disagreed with my opinion on a fictional character. I feel the character is autistic/ADHD coded, the other person disagreed.

That's cool. Opinions are like assholes, everyone has one. And it's fiction, whatever. I'm not mad or upset. (I'm slightly insulted, because if you're not autistic/ADHD, [and a comparison they suggested made me think they definitely weren't] it's definitely not your place to disagree with one of us who says a character is autistic/ADHD coded. It's disrespectful and more than a little ableist. Simply because so many people have the completely wrong idea about both conditions.)

Regardless, the important part for a fictional character is that a person was able to see themselves in the character, to empathize with them. So it's not a big deal.

But it got me thinking about this.

Would most people recognize the subtle signs? They're almost always extremely subtle.

Ever hear of 'resting bitch face'? It's an incredibly common autistic trait because we either emote less or we emote differently than neurotypicals. In our world, it's known as 'flat face effect'. I have it, and I've been harmed many times because it looks like I'm pissed off even when I'm having a good time or I'm just deep in thought. I've got a firey temper, trust me when I say you'll know it when I'm pissed off.

So. You see a character (or even a person) who doesn't emote a lot? Or emotes extremely subtly? Wellll... that's a good clue.

So, X fictional character (or person) has odd or esoteric knowledge or hobbies. That's a good clue.

Are they nerdy or geeky in some way?

Most autistics and many ADHDers experience what's known as hyperfixation on special interests. Ever see someone get so fascinated by a topic or skill or activity that they get lost in it?

Forget to eat or drink?

Learn to do an obscure craft just because they wanted to know how it's done? That person is likely autistic or ADHD or both. It applies to fictional characters too.

Are they stand-offish? Many of us are for various reasons. One is that we're trying to figure out the 'rules' of wherever and whoever we're with.

Why all y'all insist on staring creepily at each others eyeballs is beyond me. I find it either too intimate, painfully so, or just ridiculous.

That quiet character (or person) who warms up slowly? There's a hint.

Another reason we tend to be cool with strangers is that ever present trauma thing. So many autists and ADHDers get to the point in life where we just don't have it in us anymore to keep trying to make social connections. A very common trait of both autism and ADHD is a lack of understanding of neurotypical social rules. And trust me, y'all have them.

Does the character or person fidget? Either subtly or more obviously?

It's called stimming. I had to learn to do it unobtrusively, so I'll suck air through my teeth (my dentist isn't impressed by this), circle my pointer finger around my thumb, tap the pad of each finger on my thumb in a rhythm, count silently to myself... the list is probably endless. I intentionally leave the cuticles on my thumbs rough, because I often rub the forefinger or ring finger of that hand over the rough cuticle as a stim.

Maybe they rotate their ring around a finger?

Play with their hair?

Stimming is something that calms us down and helps us regulate our emotions. (It's also one of the first things ABA robs us of. It's called 'quiet hands'.) It's really bad to deprive an autistic or ADHDer of stimming.

I used to click the button on a pen so much that I banned myself from having clicky pens because of how annoying it can be to others.

There are healthy stims and unhealthy ones. (Head banging is an example of an unhealthy stim.)

So a character or person who is just, always moving somehow? There's a hint. Or they're rhythmically moving a body part? Tapping fingers? Wiggling a foot or leg? Fussing with their clothing? Rocking?

Is the character or person 'a walking encyclopedia'? In other words, do they know a lot of information about either one or two topics or about many topics?

That character (or person) is often stereotyped as being a computer genius who can make any computer work just by looking at it for a few minutes. But it can honestly be any topic or combination of topics. That's another clue.

Many autists are almost hard wired to be painfully honest. Unless we've been traumatized into it, we tend to be shitty liars. I'm, unfortunately, a very good liar. It's not something I choose to do, because I don't want my trauma to change something so innate to me as my honesty. I had to learn to lie to survive. I don't recommend it.

Does the person or character truly believe in things like honour? Justice? Mercy? Peace? (Many neurotypical people will call these things social lies that keep the world working.) I'm talking a bone deep belief in honour etc. Are they a shitty liar?

I think I've blathered enough for now. I want to make it clear that I don't speak for all autistic and ADHD folks. I'm just one person attempting to share some of the more common traits with whoever wants to read about it.

A final thought.

Nothing can make someone autistic or ADHD. It's a genetic condition. Which is why so many parents find out they're autistic or ADHD when their kids are diagnosed. It's not more prevalent now, it's just that more people are learning about the actual parameters of it. Diagnosis is easier now than 50 years ago. It's been around since ancient Egypt and probably evolved as a way to keep the clan safe in prehistoric times.

We often have heightened senses. Sometimes we have what I call 'predator vision' which sounds awful but just means that my gaze is automatically drawn to movement. Our sleep cycles are also commonly very different than a neurotypical's. We probably ended up being people who would take night watch, stare at the stars for hours, or warn people when food has gone off so no one eats it.

I think we evolved right alongside neurotypicals because we're both needed for a successful society.

Many, many of the world's famed thinkers/creators are considered to have likely been autistic/ADHD based on records about them.

These people include:

Leonardo DaVinci

Michelangelo di Lodovico Buonarroti Simoni

Nikolai Tesla

Albert Einstein

Thomas Jefferson

Charles Darwin

Emily Dickinson

Wolfgang Amadeus Mozart

William Butler Yeats

Vincent Van Gogh

Benjamin Franklin

People who are autistic or ADHD these days that you may not expect?

Dan Ackroyd

Darryl Hannah

Anthony Hopkins

Jerry Seinfeld

Eminem

Courtney Love

David Byrne

Wentworth Miller

Satoshi Tajiri (creator of Pokemon)

There are also many, many people who have shown autistic or ADHD traits and haven't confirmed or it's impossible to confirm because they're deceased and we don't have the right records.

It's considered a massive faux pas to assign a diagnosis of anything to a living human being. So everyone living I've listed has in some way confirmed it. There are many, many other people (especially in creative industries or hobbies) I believe are likely one or the other, but I wouldn't label. That's for them to do.

If you enjoyed this or learned something and you can, please consider a tip or becoming a Patron. My work of words is my only income.

Every historical person is just a 'likely' because we'll never actually know. All we can do is point at the exhibited traits via records and say, probably.

[five-thousand-loaves-of-bread]

in short, think self diagnosis, after extensive research, is valid.

not everyone have access to medical professionals. not everyone have access to competent quality medical professionals. not everyone can afford. medical trauma & medical neglect exist. misdiagnosis exist. medical racism sexism misogyny. etc.

though. to add some nuance: (i am specifically addressing autism but probably applies to most self diagnosis)

1. sites like tiktok and tumblr provide important lived experience lens that hard to find any other place. often play huge part in journey! but tiktok and tumblr should not be only place you do research for self diagnosis.

further, watching one tiktok or one tumblr post is not enough for self diagnosis. know most people who self diagnose isn’t doing this, but do see some people do this.

2. there are late diagnosed autistic people with higher support needs. there are late diagnosed autistic people who are visibly developmentally disabled but their other I/DD diagnosis covered over their autism. etc.

having said that though. overwhelming majority of autistic who self diagnose who are late diagnosed. have lower support needs, are high masking, less visibly autistic. most of them lived their life in nondisabled neurotypical society, mainstreamed, go to typical school, get job, maybe job after job after job fired quit fired again—often forced to be this way, not given choice. which is all distressing. have grief about not being noticed as autistic earlier.

but. you need to know that there are early diagnosed autistic folks, some of them high support needs and/or nonspeaking minimally speaking, some of them who put in special ed, go to “special” schools, who have high support needs, who can’t or not allowed to live independently, who needs full physical assistance with bADLs, who can’t keep own basic safety, who will never able to hold typical job, etc etc… they are still autistic. just because you have trauma about being late diagnosed late identified doesn’t mean for them early diagnosis is a abuse free blessing.

early diagnosed, visibly developmentally disabled people like these often face the blunt of the violence. they are one of the most marginalized groups in our community.

some late diagnosed autistics hold privilege over some early diagnosed autistics. (note i say some—late diagnosis early diagnosis not monolith experiences.)

3. just because you are, say, autistic, doesn’t mean right this second you should be an autistic advocate, or right this second you’re qualified to. i believe all autistic people have important meaningful thing to say about own experience with autism. but being an advocate involves so much more than that.

being advocate involves constant learning, especially from people more marginalized than you and people not similar to you.

being advocate means constant self reflection, means reflect on own privilege and oppression, means reflect on own internalized ableism internalized racism, etc.

being advocate means learning to decenter self, learning how to hold space for others, learning how to apologize and take accountability.

being advocate means learning how to listen.

being advocate means learning how to take responsibility.

being an advocate means addressing own trauma and not project trauma onto others, especially other more marginalized groups.

being an advocate means acknowledging nuance.

newly realized autistics, newly self diagnosed autistics, newly professionally diagnosed autistics (who didn’t know they autistic before professional diagnosis), they all have important place in autistic community and autistic conversations. but being new to this means you have so much more to learn. and you need to learn how to do more good than harm when share own experience and do own advocacy.

4. there is a world of autism experiences beyond your own. listen to them, too.

with all that said. self diagnosis, after extensive research, is valid.

[aspd-culture]

Do ya accept self diagnosed people here?? /genq

Yep, assuming you have done your research or are in the process of researching. And I mean, I'm not gonna quiz you or anything. We assume everyone is here in good faith unless given serious reason to believe otherwise.

For those with access to professionals, they very often won't evaluate for ASPD, sometimes due to ignorance, but mostly to avoid forcing a stigmatized diagnosis onto someone.

For many, help around them is stigmatized, and many specialists are out of pocket only and expensive.

A lot of people just do not have the access to healthcare and/or professionals, or need to avoid diagnosis for their line of work.

And many people choose on their own to not pursue an official diagnosis for various reasons, any and all of which are valid.

Who am I to say you don't have ASPD? You know your experience better than anyone else could. If you've done your due diligence to learn the other half of the equation - the criteria, symptoms, development conditions, and differential - then as far as I'm concerned, there is absolutely no reason not to believe you.

And even if it were to turn out that someone who self diagnosed after all their research didn't have it (which honestly is pretty rare), that's okay too! You took the time to educate yourself on a very stigmatized disorder and that's never a bad thing.

As long as you aren't spreading misinformation, whether you are correct or not in your self-dx you are hurting no one.

I literally have no idea why people *wouldn't* support educated self-dx, and I'm genuinely sorry that that is something they have to check to ensure they're safe on pages that are supposed to help people.

Tldr, we absolutely accept researched self diagnosis here!

Plain text below the cut:

Yep, assuming you have done your research or are in the process of researching. And I mean, I'm not gonna quiz you or anything. We assume everyone is here in good faith unless given serious reason to believe otherwise.

For those with access to professionals, they very often won't evaluate for ASPD, sometimes due to ignorance, but mostly to avoid forcing a stigmatized diagnosis onto someone.

For many, help around them is stigmatized, and many specialists are out of pocket only and expensive.

A lot of people just do not have the access to healthcare and/or professionals, or need to avoid diagnosis for their line of work.

And many people choose on their own to not pursue an official diagnosis for various reasons, any and all of which are valid.

Who am I to say you don't have ASPD? You know your experience better than anyone else could. If you've done your due diligence to learn the other half of the equation - the criteria, symptoms, development conditions, and differential - then as far as I'm concerned, there is absolutely no reason not to believe you.

And even if it were to turn out that someone who self diagnosed after all their research didn't have it (which honestly is pretty rare), that's okay too! You took the time to educate yourself on a very stigmatized disorder and that's never a bad thing.

As long as you aren't spreading misinformation, whether you are correct or not in your self-dx you are hurting no one.

I literally have no idea why people *wouldn't* support educated self-dx, and I'm genuinely sorry that that is something they have to check to ensure they're safe on pages that are supposed to help people.

Tldr, we absolutely accept researched self diagnosis here!