#chronically ill mom

[joellesolo]

I FINALLY got my hair touched up this weekend and I matched my dress to my phone case and popsocket 💜💙✨

This road has been SO long, but I'm finally starting to like what I see when I look in the mirror... I've been battling bdd since I was eight so it's a real trip. Here's to recovery and the steps we take to get there.

[thoradvice]

you don't have to be glad that it's not worse. that goes for everything. disability, trauma, mental illness, grades, finances, whatever. you're /allowed/ to be upset that things are the way they are. you don't have to be grateful for your situation - bad is bad. somebody else's suffering doesn't make yours less painful. it's okay to be angry

[plague-parade]

if upon being told about someones illness/condition, your first thought is to say “have you tried X?” i want you to step back for a moment and think to yourself “if i thought of X after hearing about this condition for the very first time, the person who has this condition very likely has thought of this and possibly tried it already”

we are tired of constantly being told to try the same things by people who didnt know our condition existed five minutes ago.

you dont need to offer any solutions or try to fix us. i know it might seem like a polite thing to do or that it shows you care, there are other ways to show us you care.

[thedisablednaturalist]

literally my boyfriend is my painkiller.

Whenever I'm with him my pain goes down so much I can ignore it. Yea sometimes there's days where nothing helps the pain but at least he's there to take care of me. Most times tho his presence has a drastic effect on my pain levels. Maybe it's cause when he's around I feel less stressed and more safe and secure? Or maybe it's cause he's basically a human-shaped heating pad

[chronic-counter-user000]

PRAISE THE FUCKING LORDS WE HAVE A CANE

CELEBRATION

MY FIRST MOBILITY AID

[ohgreat-moretapes]

Tim I noticed a lot of indigenous patches on your jacket, are you Native?

Idk what my dad was 'cause I never knew him, but yeah my mom is (or... Was.. I guess..) Muscogee, the tribe native to the part of Alabama I'm in.

If I remember correctly she came to Alabama from Oklahoma (where a lot of Natives were displaced to in the 1800s) to "get back to her roots."

But yknow, I was separated from her in childhood (which tbh is upsettingly common for Native families) and I was raised in a very white very Catholic asylum so I'm not as connected to the culture as I'd like to be.

-Tim

[sickiehugs]

When a character is feeling super sick and shitty but they don't have a fever, so they aren't taking it seriously or resting because to them, they aren't really sick unless there's visible proof. Maybe it comes from when they were growing up, and their family never took their illness seriously unless there was a fever. Maybe they would accuse them of lying to get out of things. So now, they worry if that really is the case. They work themselves to the bone and feel like they're going to collapse, but they aren't really sick unless they have a fever.

Bonus points if they have a partner who cares about their well-being, and as soon as they see them in the state they're in, they immediately make a fuss and insist that they rest. The character somehow feels good, even though they don't want their partner worrying, because someone is finally making it a big deal. It's finally real, it's finally serious.

[800-dick-pics]

Were about to be without power!

TLDR: My mom missed so much work leading up to her heart attack that bills bounced from her accts and now we are scrambling because the internet and power are basically being shut off back to back! CA: $sleepyhen OR $grumblybear

VN: wildwotko OR XochiRose

My mom has been dealing with an increase of various undiagnosed chronic illnesses for the past two months and was in the ER 6 times before her recent heart attack. Since she basically is unable to work right now her last check isnt going to cover much of anything.

I have a job starting in late Oct but I still need internet to finish my schooling/get certified as an herbalist. I do plan on selling my art again but that also requires internet access, and since my partner is not a legal resident finding jobs is really really difficult for them right now. There is a lot of shit going on in my life right now, Until I get my 1st check at the end of Oct or sell some art between now and then I dont have any income to cover any bills (my own phone has been unpaid as well). We can go without internet for a while but I really dont want all of our food to go to waste, because that was the last food I was able to buy for our house. The electric/gas is $181 and the internet is $320

CA: $sleepyhen OR $grumblybear

VN: wildwotko OR XochiRose

[tumble-tv]

I love waking up at 2 in the morning when my muscle relaxers wear off and lying in pain while any movement causes my legs to spasm. It's really the best part of my day. /sarcastic

[bizlybebo]

if you’re thinking of developing a chronic illness Don’t this gluten free shit has me eating like a rabbit

[joellesolo]

I know I didn't make a follow up post about Disneyland, but long story short, I survived, and it was incredible. I wish instagram still was connected to tumblr, you would've seen all my updates. If you want to see the pictures I posted, here's my instagram (you have to scroll a little because we celebrated both Easter and Lily's fourth birthday since we've been back) but it was amazing and I've since been suffering from the post-Disney blues more like depression 😭 since we've been home.

Galaxy's Edge was the BOMB and I just had to share my freaking ROGUE SQUADRON HELMET that I didn't even know EXISTED, because I wore my HU rogue squadron tank top (with the hoodie that you can't see) of course on Star Wars Land day (our last day) and it was just too perfect to pass up. It is so cool you guys. I AM SO COOL NOW. I CAN BE ROGUE NINE WHENEVER I WANT. I'M BASICALLY CORRAN HORN NOW!!

The blue milk was delicious! I wish I could've tried the green milk because it's supposedly even better, but it has grapefruit in it (damn you psych meds!!) so that was a bummer, but oh well. The x wing was SO COOL, and so was the Millennium Falcon (again, go to my instagram to see it (am I fishing for likes?! maybe 😉)) and while we couldn't ride the Rise of the Resistance because they don't do single riders, I was an engineer on Smuggler's Run and the group I was with was really welcoming and it was pretty fun! Also, my R2D2 ears were SO cute but SO uncomfortable which was a bummer, I had been wanting them for months and ended up preferring the cheap etsy ones I got me and the girls (you can see them in the instagram pics from the first two days!). But we met R2 while I was wearing the R2 ears, so, you know, that was PRETTY FUCKING COOL 😱

Last but not least, we found these amazing ILYIK spirit jerseys and while I typically am not a fan of the spirit jerseys I just couldn't pass these up. We have ILYIK engraved on our wedding bands, they were on my R2 wedding heels, on our cake topper, and on our third anniversary we painted this which has been above our beds ever since (this fall is our eighth anniversary)(look at us, what babies!):

We did rope drop to fireworks every single park day, with one rest/pool day, and fuck it was exhausting and I was in soo much pain and so exhausted, but it was so damn worth it. SO WORTH IT YOU GUYS. I cried when we left the gates the last night, because it had been soo magical and such an incredible time and I had been so happy and... when am I going to be that happy again?! Fuck if I know. Seriously 😭 hence the post-Disney blues/depression...

It was just amazing. Magical. Everything you could've hoped for. The girls had the best time. I was so stressed out and sure, I forgot ninety percent of my personal hygiene stuff because I had to pack everyone else's shit but hey that's motherhood for you.

Okay, this was supposed to be a Star Wars souvenir appreciation post but it's getting away from me a bit... anyway. I survived Disneyland 2024. I wish I could go back. Someone take me back?!

[dinkbear]

what is it about using a mobility aid that makes people forget you’re human? 🤔

[thedisablednaturalist]

I hate how many of us physically disabled people have been harassed by street preachers because they see us as a way to prove their faith instead of actual human beings

[eeveekitti]

WC/RW DAY 3: HUNTER

this is redsong, the deputy of drizzleclan! she is actually a purebred somali, and was a kittypet [named hunter] before being drawn to the wild by a strange starry-furred cat...

being a purebred, she has some health complications that result in chronic pain

[ik its day 4 i promise i'm doing gourm later]

[800-dick-pics]

BLACK DISABLED ELDER NEEDS MEDS ASAP!!!

My mom just told me shes been out of some of her heart and blood pressure medicine for days! Shes on a cocktail of meds to keep her heart from spurting out blood clots which has caused her to have mini strokes.

I need like $95 to get a her meds and $20 to get to the pharmacy (its raining) , this is urgent! Without those meds shes at a VERY HIGH RISK of having another stroke, which would send her to the ER

Even if I have to walk to the pharmacy i need $95 ASAP! These medications have been the only thing keeping my mother from further declining in health!

CA: $sleepyhen

VN: @/wildwotko

$0/$95!