Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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KIM KITSURAGI - “Is that. My kineema.”
COMPOSURE [Medium: Success] - Something in him is about to break, *big time*.
EMPATHY - And it’s not going to be pretty, do something!
- DRAMA [Formidable] - Everything is fine!
- “Sure is.”
DRAMA [Formidable: Failure] - Surely he’s aware that he’s not the *only* person in the world who owns a Kineema?
YOU - “Is it really *yours*? I mean, plenty of people have their own Kineemas, right? Like working men, government offices, uh, firefighters I guess, maybe even animal control people? Exactly! A million different people who could’ve driven it into the uh…”
DRAMA - Pause, my liege! Ixnay on the Ineemakay!
YOU - “It could even be our *mysterious* joyrider!”
KIM KITSURAGI - Your frenzied babbling falls deaf to the lieutenant's ears. Instead, he approaches the broken vehicle, sunken in the ice. He moves with a caution and gentleness you haven’t seen him display before.
INLAND EMPIRE - It must be cold and lonely down there, in the icy water. Maybe he could sense its sorrow, calling to him…
PERCEPTION (SIGHT) [Easy: Success] - His hands, which are always stiffly placed behind his back, are trembling.
ENDURANCE - This is the shuffle of a tired, tired man.
HALF LIGHT - He’s going to do something drastic because of you. Oh god, terrible! You’re a terrible liar! You can’t look at this, you just can’t!
VOLITION [Formidable: Success] - It's not *you* who drove his kineema into the sea. You have plenty of faults, but this one is decidedly not yours.
KIM KITSURAGI - He kneels down with his head bowed, casting his face in shadow. He plants a hand on the ice to stabilize himself, squinting to get a better view of the motor carriage. “Detective, it says ‘57’ on it.”
YOU - Sweat drips down your brow, and you feel a terrible headache coming. “Maybe our joyrider has an affinity for that number?”
LOGIC - He's not stupid, he knows that it's not that.
KIM KITSURAGI - “57.”
YOU - “What about 57?”, you brace yourself.
KIM KITSURAGI - “Precinct 57.”
YOU - You wince. “Kim, look-”
KIM KITSURAGI - “When I woke up in the Whirling-in-Rags with no memory of what happened during the days before, I've taken note that something of mine has gone missing.” He grits his teeth. "A very. Important. Something."
He runs his hands over his face, messing his already unkempt hair in the process. Regret creeps up on his features. “God. Fuck. They’re going to fire me over this, they’re not going to hear me out.”
EMPATHY - Desperation settles in the lieutenant's tone. Sadly, you find yourself in agreement, even if you don’t want it to be the truth.
YOU - “People are more valuable than machines, Kim.”
KIM KITSURAGI - “Not people like me.” He rasps.
YOU - “…”
KIM KITSURAGI - Before you can say anything more, you fail to notice the lieutenant carefully walking onto the edge of the ice. He looks over the frigid water, a dizzying blue that mirrors and distorts his exhausted face back to him.
YOU - “Kim?”
KIM KITSURAGI - Seconds pass as he looks to be contemplating something. Out of nowhere, he casually takes another step where the ice ends and the sea begins. It happens all too quick for the lieutenant to even voice a call for help— if he even wanted to — his body plunging into the cold water before your eyes.
YOU - “KIM!!!!”
uhhh bonus stuff? sorry i have swap au brainworms pfttt
(im not sure what skills kim has at the moment so rn he only has narration as his inner monologue ok whoops, i would like to keep harry as the guy who thinks in dialogue trees so im still figuring it out pfttt)
also, this was done bc i wanted to expand on these old scribbles of mine, just like an idea, i just think that he'd be having an even worse time wheezes
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Eddie, in the middle of a live-stream: Hey, Stevie. I was thinking about something you said the other day and I’ve got a question
Steve: …Oh-kay?
Eddie: The other day you said that your parents used to make you go to benefit dinners with the mayor, right? Mayor Kline?
Steve: Um, yeah? I think. They were donors. They campaigned for him.
Eddie: Uh-huh. That’s what I thought.
Eddie: So.
Eddie: Your parents helped fund you being drugged and tortured by Russians.
Steve:
Steve, taking all this in: Huh.
Eddie: Huh, indeed.
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