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#it's also for me like... 'are my aids helping me because i am disabled or am i just an Attention Seeker'
cripplecharacters · 6 hours
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Hi! I have a myriad of minor chronic conditions and symptoms, but nothing that's actually been identifiable enough to be diagnosed by a doctor. That's a relevant piece of information, because there's a character who I'm writing with more severe/debilitating versions of some of my own symptoms, and I'm struggling with giving him any actual defined diagnoses because of it. The actual question here is: If I'm basing these symptoms off of things that are happening with my own body, and the character is not in a situation where he'd get a diagnoses in-universe, is there a reason I can't just leave it as a mystery?
I suppose the main reason I'm struggling with the question in the first place is that upping the severity of the symptoms in question means that, unlike myself, the character will be using mobility aids, which makes me feel like I should do more research on why he'd be using them. I have no idea why, once in a blue moon, my right leg just decides to refuse to hold my weight for 10-45 seconds, but I do know that if I know that if it happened more regularly/for longer periods of time I'd probably invest in a cane due to instability walking. I'll be posting this work in a space where people will be able to ask me questions about it directly and I can already feel the comments being typed lol. So, I feel like I should have an answer beyond just "His symptoms are based off my own and unfortunately I don't have a diagnoses", but like... do I actually or am I just getting in my head about this?
Hi,
It’s completely okay to have a character who doesn’t have a specific condition or diagnosis you can point to if you’re basing it off your own life experience.
The truth is that this happens all the time. I also don’t really know why my knee is awful and sometimes can’t hold my weight or is incredibly painful to bend, and I’ve been to doctors (who had suggestions but no specifics) and was prescribed physical therapy. I did the PT. It didn’t do much, but I tried it.
You clearly have an experience with your conditions and symptoms and just because you haven’t gotten a diagnosis doesn’t mean your disabling symptoms aren’t real. It also doesn’t necessarily mean you’ll never get a diagnosis, either.
I completely understand your hesitancy, though, because the truth is that some disabled characters are created with a vague idea and end up having some sort of Ambiguous Disorder that is just for plot reasons. That can be harmful and ignore the realities of real-life conditions and disabilities just for something to be more Appealing or Plot Relevant.
But it doesn’t look like that’s what you’re doing at all—you are in fact pretty well-researched, because you’re basing your character primarily in your lives experience and, in good faith, making them not exactly the same as your own.
“His symptoms are based on my own, and I don’t currently have a specific diagnosis” is a reasonable answer. It’s true, and it’s not dismissive or misleading in any way. You can also add “I did research on how A and B would make someone need/do X or Y,” as needed. Like specific mobility aid research, or potential conditions, or related symptoms.
Overall, you can feel confident in your creation of your character and that your depiction is reasonable, and it also might make you more comfortable to answer questions if you feel equipped to elaborate about the symptoms or the aids rather than about the diagnosis.
Hope this helps! :)
— Mod Sparrow
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uncanny-tranny · 9 months
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The frustrating thing about having good days with pain or bodily irritation or mobility or whatever else isn't that it's a "good day." It's the feeling that you are either greatly exaggerating your suffering or worse, that you're secretly wanting attention/admiration for your suffering. I think people sometimes are confused as to why good days in terms of disability can be distressing to some, but it is precisely that you almost... overthink the Implications of good days.
It isn't that you want to be suffering, it is that you are taught you will only be "worthy" of help if you are suffering in the Right way (and having any good days are often seen as a sign that you aren't "truly worthy").
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healingheartdogs · 1 year
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Love having talks with my parents (/s) where they tell me I "need to stop living in fear and get back out in the world" and that they haven't stopped living because of COVID and they don't even mask and it's fine because they got it once and it was just like allergies to them and "it's not even that bad it's just like the flu or a cold", ignoring that I also have had COVID before and was in the most extreme all over pain I have been in EVER in my entire chronically ill chronic pain suffering life for over a week to the point that I was mentally begging the universe to just let me die toward the end of it so it would finally be over and am now left with significantly worse chronic fatigue, chronic pain, and heart issues than I had already before because of long COVID. Also my sense of taste and smell have still not fully recovered, which is a sign of lasting neurological damage.
But it's just fearmongering, clearly, and I'm just falling for government propaganda (even though the government has said COVID is over and that we don't need to take precautions anymore because they value profit over human lives). Sure. Makes sense.
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tittysuckersworld · 1 year
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y'know what? love love love designing disabled characters. love chronicly ill characters. love characters with invisible disabilities. love characters that dont technically have a disability but are not fully abled(if that makes sence). love characters that choose to not wear prostetics. love characters that choose to wear prostetics. love designers that think about how the things would affect the characters actions personality story and in general affect them as a person. love you all aids. love you aids designed for characters and their settings. love you customized aids. and especially love people that try to show this representation right
#is this sorta self indulgent? yes#am i not exactly gushing about a specific character? no#am i mostly just making this post because i like designing characters a lot and like designing specific help aid stuffs for them? mayhaps#wish i could ask more thing tho-#like. have asked sped teacher about prostetics if she knows anything but she dosent#am will talk to psych teacher more about brain stuffs that could come with it#but i dont have a physical disability nor do i know anyone with one#and i dont wanna just find someone because that would be so mean and rude i think#idk i wouldnt mind if someone just talked to me to ask about my sensory stuffs#but i dont wanna just interact with someone based on one part of them yknow?#just feels disrespectful when you have a whole person in front of you and no consent to ask about that stuffs#but like is so so fun with this stuffs. making a character that is technically blind and technically has a bunch of prostetics#he has a body built like limbless hajime#but because of the world he can have prostetics that he can sorta feel with#not really touch but if he surrounds it with water he can feel that water moving. so he can tell what he touches eith the prostetics#if he dose that. same with his eyes. he cant see color#nor can he read. but he can sorta understand blocks of whats around him with the airs water vapors.#so he would feel conflicted with that. he dosent really want to see. cause he dosent know what its like. but he also cant really fit anywhe#or with his prostetics. he most alwase has them on and can feel the problems with that. but he can also fully control 'full limbs'#if that makes sence???#idk again not disabled not blind nor have any prostetics. but its just so interesting figureing out this stuff#like cause my oc is in a sorta medival setting. he dosent have brail. but he also likes to do puzzles and play cards with his friends#he just needs to sit away from the table with a friend sorta sitting on him so they can wisper to eachother whats going on#and just- fisbfjsndushdjw idk idk idk idk but just gotta say. if anything. love the characters in general. love making this character#love designing stuff so he can be as confortable as posible wile also giving him the biggest range of motion and having things#modded to specificly be for him#all in all this appreciateing post secretly also oc art post mwahahahah#if wanna know more about oc figuring out how to make ask blog for him and his friends :>
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nothorses · 9 months
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"the public education system is intently evil and all teachers are abusive because it was the worst experience ever for me personally"
guys, look, I'm legitimately sorry that happened to you. that's fucked up. it shouldn't have happened, and it shouldn't be allowed to happen again to you or anyone else. I'm sorry.
public school was hard for me too, at times, and I'm still suffering the consequences for the harsh grading, the arbitrary deadlines, the hours of completely useless-to-me homework. I could name a few teachers who have been pretty fucking terrible. the fact that nobody considered getting me evaluated for ADHD has had an impact on my self image and academic success that I can't erase.
and also.
I grew up in an area where education, in particular, is incredibly progressive-leaning. educators are working really hard to create and try out education philosophies and practices that prioritize kids and their learning, rather than teachers and what they think kids should learn.
My sex ed was comprehensive, and came entirely from school. My gay sixth grade teacher taught me about HIV/AIDs in a useful, accurate way. In high school, I learned about the way orgasms work & I was prepared not to feel shame for normal stuff.
I learned that Communism was not what the USSR actually practiced, and what it really means. I learned about atrocities and, specifically, the genocide of indigenous people committed in/by the US. I learned about the military industrial complex, the school-to-prison pipeline, and I learned about manifestations of racism specific to my local area. I learned about Stonewall, and the intersection of the civil rights movement with gay rights and disability justice.
My creative writing teacher taught us about LSD, and the real reasons we shouldn't do it, after a hilariously ineffective assembly run by some local cops. He spoke gently, carefully, and emphatically about his friends and his own experiences. Later in the semester, he read us a story he wrote about two gay men finding each other in a deeply homophobic environment.
My sci-fi teacher made me feel safe & seen as a kid with "weird" interests. My US History teacher helped me research and put together a 10-page paper on the modern relevance and mission of Feminism. My government teacher made me feel appreciated for the work I put into the class, and the thought I put into what I said in it, even though he disagreed with a lot of it. My sixth grade teacher bought me books to read with his personal money, whichever ones I asked for. My third grade teacher made me feel safe. My science teacher in middle school made me excited for and passionate about science, and saw and nurtured the effort I put into her class.
A lot of stuff sucks, absolutely. But I am seeing new teaching methods being tried out all the time, and I am watching teachers get really excited when I teach their students about the roots of modern graffiti in US black history & to question property laws, and just...
There's hope. there are so many people doing so much work to make things better. so many people agree with you on what education should be, and are trying so fucking hard to put that into action, and so many public schools- not just teachers, but whole schools and even districts- are really doing that work. so much is getting better.
I had more to say, about necessary childcare and trusted adults and outside contacts and time away from abusive family. But like. Please just sit down and listen to more people on this, and please talk to educators and education professionals about what's really going on in this big huge world of philosophy, science, and practice.
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lesbxdyke · 9 months
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Decided to steal my own tags from This Post because I didn't want to detract from the very good points being made about wheelchair accessibility in the art
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So I'm disabled. And I often have to use crutches as a mobility aid. Sometimes one, sometimes two. And even with that, I still sometimes can't get around.
There have been numerable occasions in my life where something has been marked as 'accessible' that is not accessible to me, because it was made with ONLY wheelchair users in mind.
And like I said in my tags, it's a genuinely great thing that things are now being made with wheelchair users in mind! I am genuinely heartened and happy that wheelchairs users are being recognised in public spaces and accommodated for!
But they are not the be all and end all of physically disabled people.
I need the extra space of a disabled bathroom. Especially as another physical disability of mine causes me to often require space to change underwear or clothing.
However, if I'm having a bad pain day, I can't wash my hands. Because the only sink is at the height for a wheelchair user. So my options are to eschew hygiene and pray that a cleaner wipes down the door handle regularly so others aren't interacting with a thing that I have touched without washing my hands, OR risk furthering my own pain by bending to reach the sink, which could end in me stuck in the bathroom as my back seizes and I cannot move.
As I'm sure you can imagine from reading that, neither option is a good option, but one is a safer one for me. And I hate it. I'm 'lucky' in that I have to always carry baby wipes with me anyway so I'm somewhat able to mitigate the hygiene issue, but what if I didn't? What if I didn't have the extra disability and just had the back problems that required the extra space of the disabled bathroom for my mobility aids? What then?
I also have a radar key (for those not in the UK: disabled bathrooms are often locked. A radar key is a skeleton key for disabled bathrooms all around the UK) so I can always gain access to the disabled bathrooms. Except... I often have to find staff to help me open them anyway because the door handles are low and I can't bend to press them.
Now this post isn't me saying that the world should be built only to cater to me in particular (tho gods it would be nice!)
This post is talking about competing support needs and how my experience as a disabled person, struggling with how so much 'accessible' stuff is only designed for wheelchair users is just as valid as a wheelchair user celebrating that they can use an ATM and a public bathroom without needing the aid of a stranger or a carer.
I've seen quite a lot of people, in real life and elsewhere on the internet, want to call it Ableist when people ask for there to be a different option that would be inaccessible for a wheelchair user to use within an accessible area like a bathroom. They think it's able bodied people, or parents (since often in the UK, disabled bathrooms also double as baby changing, which is a whole different kettle of fish) demanding we take away the accessibility that the bathrooms are there for. They don't think about people on crutches, or canes, or with mobility that changes by day, or who can walk unaided but cannot bend, or, or, or.
Two sinks in a disabled bathroom would change my life. One wheelchair accessible, one not. I could wash my hands. Other people who needed the bathroom could wash their hands. Everyone could be hygienic in an accessible way!
Two ATMs, side by side. One lower, one higher. I can access my money. Wheelchair users can access their money. Everyone can withdraw their money safely in an accessible way!
Maybe there's no solution for some (like the door handle) but if others were solved, then the remaining ones would bother me a lot less. It's a lot less frustration and humiliation inducing to say "Hey, can you open the bathroom for me?" When you know you'll be able to wash your damn hands once inside, yknow?
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qqueenofhades · 4 months
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Hi! This question has been noodling in my head for a few weeks, and I’ve been really curious to hear your opinion. I’ve appreciated your very thoughtful commentary on the ways the online left in particular have hurt the real and concerted efforts that have been made to navigate through the Gaza war in support of Palestine. I’ve seen a lot of outrage online about Biden bypassing congress in order to make another emergency weapons sale to Israel, which does indeed read as counter to helping to the Palestinians facing endless and indiscriminate violence. I understand that you might not want to answer this ask, because the work that you already do in your life offline and the work that you do here on tumblr to respond to and explain these issues is exhausting enough. Thanks so much for your time and your thoughtful contributions! It’s always really helped me remember to slow down and think critically about the media I consume.
Because you have asked this thoughtfully and in good faith, I will return the favor and give you a careful and extensive answer to the best of my ability. However, obligatory top-of-post disclaimer that I will disable reblogs at the first hint of any wankery in the notes and I will not answer any follow-ups or secondary asks at this time (unless I decide to do so, but I engage with this topic sparingly, judiciously, and only in small doses, so don't count on it).
First, let me say that the moment, I disagree with substantial portions of how Biden is handling the two main foreign-policy crises (Ukraine and Gaza). In regard to Ukraine, I think he's backed off, taken his foot off the gas, and otherwise given Republicans ammunition to keep delaying or watering down a new aid bill, is refusing to disburse military aid packages from the $4 billion of funding remaining that was previously approved by Congress, hasn't sent long-range ATACMS and other critical military hardware that might bring the war to an end sooner, and is not (as of the moment, though recent reporting suggests this might change) pushing hard enough for frozen Russian assets to be transferred to Ukraine for military and/or humanitarian financial assistance. However, I am also aware (unlike, it seems, much of the left-leaning internet) that I am basing these judgments only on my personal impressions, on what is reported (or not reported) in the media (which has plenty of its own problems) and otherwise what is formed in my role as an ordinary American citizen without any kind of special, classified, high-level, or government access. I know nothing more than any of you, and I also know that a lot of what goes on behind closed doors does not appear on Political Twitter and/or the Washington Post or the Guardian or Daily Kos or whatever other aggregate sources of information I or any left-leaning person typically consumes. So it's highly possible (and this is my cautious academic instinct speaking) that I do not, in fact, have a full picture of events. There are also contributing factors that Biden cannot simply handwave aside, even if he did, say, dip back into the $4 billion pot in the meantime. Congress will need to pass a new funding bill for Ukraine aid and the MAGA Republicans have been enthusiastically blocking it to the point where Putin's cronies on Russian state TV praise them effusively for it. We all know about the Republicans and Russia's mutual love affair. So.
The same goes for Gaza, and even more because we have already had reporting about how the Biden administration is walking a behind-the-scenes tightrope in a number of seemingly impossible tasks: keeping the war from spreading to a larger theater, pressuring Netanyahu to dial down, y'know, the rampant genocide (when Netanyahu notoriously doesn't like Biden, was very close with Trump, and would be happy to keep the war going in order to boost Trump's chances of being re-elected and save Netanyahu himself from his own criminal prosecutions), and pursuing a complex policy toward the state of Israel that does not follow the antisemitic Western Online Left's fever dream of "Israel suddenly disappears overnight and falls into the ocean and all Jews die or disappear." We have had multiple credibly sourced reports about this. Blinken is back in the Middle East right now trying to keep the war from spreading. The US under Biden has criticized Israel's essentially empty policy document for post-war Gaza as not being remotely feasible (because it's so vague) and gone so far as to voice support for a two-state solution with Palestinian self-determination (which is itself quite radically different from previous administrations). However, they have also vetoed UN ceasefire resolutions and other essentially meaningless political theater (the UN as a whole has been ruthlessly exposed in the last few years for being completely useless) that are easy to gin up outrage about, and that's what the internet focuses on, rather than any of the other complicated actions taking place.
All of this is to say that no, in fact, I don't blindly support everything the Biden administration is doing in regard to either Ukraine or Israel right now, but I actually have a sense of real-world perspective about it and understand that there are certain immutable realities that we are working with and which will not be erased by some absolute jackasses yelling at Biden in a historically black church at the commemoration of an anti-black terrorist attack. Likewise, as I've said it before and I'll say it again, and as plenty of other people have noticed and pointed out, the Western left is using this as an orgy of pseudo-revolutionary fervor that focuses on using Hamas as a proxy for their own fantasies of violent uprising against their own governments. Because while yes, anti-zionism and antisemitism are two distinct things and represent different aims and goals, it's become more or less irrelevant in allegedly pro-Palestine Western leftist spaces. It's just increasingly rabid, accelerationist, and nihilistic antisemitism all the time, or the obvious usage of "Zionist" to mean "Jew." It's not good. There is no concept of actual restorative justice for Palestinians or other people, such as Ukrainians, Syrians, Uyghurs, Taiwanese, etc, either undergoing genocide or facing the threat of it, because Western leftists have latched onto this cause solely as a stick to beat the Democratic Party with and have no actual moral interest or concern in stopping genocide elsewhere in the world or repudiating it as a method overall. They just want the state of Israel (which they characterize as a "proxy state for white western colonialism" despite the many, many things historically, religiously, and politically wrong with that statement, because it means it now Contains the Right Buzzwords to Oppose It) to be destroyed altogether in the name of "opposing colonialism," but it really seems to be all about opposing Jews. Hmm.
Simply put, Biden is not ever going to pursue a policy of "let's totally abandon Israel tomorrow, never sell it any weapons or allow it to defend its own civilians, and agree that Hamas is actually a good representation or advocate for the Palestinian people" in the way a number of Western Online Leftists seem to think he should do. There is still the fact that Israeli civilians do exist and that Hamas has continued to launch missiles at them daily, inconvenient as that fact might be for the Hamas fanboys (and fangirls) who now populate much of what passes for Western leftist discourse spaces. (Either that or they don't care, because in their view, Israeli civilians are fully acceptable collateral damage by virtue of simply living in Israel in the first place, which -- yikes. Fucking yikes. That is all.) The number of people professing to be lifelong leftists who are Just Shocked at all the antisemitism, or thinking that any and all antisemitism is just artificially introduced into leftist spaces by bad-faith right-wing/Nazi psyops either has not spent any actual time around leftists, or (more likely) simply does not listen to what they openly say. The antisemitism is virulent, constant, and only getting worse. On the most basic level, regardless of the other difficulties around the founding of Israel as a state in 1948 and the fact that doing so on some of the most bitterly religiously, politically, ethnically, and culturally contested territory in the world for over two thousand years was always going to be a massive clusterfuck, the fact of its immediate post-Holocaust creation simply cannot be ignored the way many Online Leftists do. Israel exists because of the worst antisemitic mass murder in recorded history (and that's a high bar). That fact must be incorporated into any actual discussions about its right either to exist or to protect its own civilians. But this gets turned into "Israel exists only as a puppet state of white western colonialists" which is just bad on so, so many levels.
The collective Western Online Leftist feeling seems to be that Hamas are innocent and wronged freedom fighters who are begging for a ceasefire and the cruel Israelis aren't granting them one. This is not true. Hamas has rejected multiple ceasefire opportunities, and continued to launch missiles and retaliatory attacks, because they are terrorists and they do not want or represent any serious opportunity to negotiate in the framework of western liberal democracy. They are treated as helpless woobified blorbos by much of the Western leftist-leaning internet. They are not. In that case, Biden bypassing Congress to sell Israel weapons (which was just something like 100 million of artillery shells, which is not nothing but still not a huge systematic thing like, say, Reagan's Iran-Contra scandal) is not great. I do not support anything Israel is doing to Gaza. It is abhorrent. However, there are reasons for Biden to provide some limited amount of weapons to Israel without congressional approval that do not automatically and mindlessly equate to BIDEN SUPPORTS TOTAL GENOCIDE IN GAZA!!!!!!1 Especially when as I've said, the Online Leftists only care about stopping genocide when it fits their political self-righteousness, and absolutely not at all the rest of the time.
This is representative of the fact that Western Online Leftism has now completed its all-out descent into blind Noam Chomskyism. Chomsky has never met a "leftist" or "anti-Western" genocide he couldn't deny, excuse, or openly cheerlead (going all the way back to the 1970s and Pol Pot/the Khmer Rouge in Cambodia and going up to the minute with Russia/Ukraine and Israel/Palestine). Noam Chomsky is the leftist Henry Kissinger. His ethics and morals are equally abhorrent, he's just as willing to justify total genocide in the name of advancing his preferred political ideology, and while there were (justifiably) celebrations and gloating memes across Tumblr when Kissinger finally bit the dust, Chomsky's beliefs are replicated with slavish adoration in many other Tumblr spaces and spread in some form or another to the rest of the website, which now takes them as leftist gospel (and let's not even talk about Twitter). This represents my absolute frustration with the fact that Western Online Leftism has devolved to such a degraded, mindless, useless, and malevolent level that "cheerlead for any anti-western/Leftist TM terrorist group or state" is taken to be the be-all and end-all of their moral philosophy. Someone remarked that ISIS peaked too early; if they were still at the height of their powers today, they would have a legion of devoted white so-called progressive Twitter users shilling earnestly and angrily for them, and Christ, isn't that the fucking truth.
I know we live in a hard, frightening, complex, and difficult world, and it's hard to sort out what our moral responsibility and action should be at any given time, especially since the answer is always so frustratingly partial and incomplete. Nobody of basic good sense and decency wants to see Gaza leveled while the Israeli state continues to apply a number of violently cruel collective punishments even outside the actual daily bombing of civilians. But for the love of god, let's get rid of the idea that the continued mindless violence doesn't benefit Hamas (because it does; unsurprisingly, sympathy for their cause has soared in Gaza) as much as it does Israel, or that Hamas is some kind of benevolent peacemaker that is being thwarted by the cruel imperialist US/West. And going back to the incident that prompted you to send me this ask: white leftists have often and repeatedly demonstrated their withering disdain for black people, Democratic voters, "mainstream" Americans, and anyone else doesn't buy into the twisted tankie fantasy land where getting rid of Biden would somehow be a massive coup for social justice (by getting Trump, now openly announcing at every turn that he will be a dictator, back into office! Very praxis, much justice. Wow.)
In short: if you, a white person, stand up in Mother Emanuel AME -- one of the most sacred sites for Black churchgoers, who are indeed often heavily Democratic voters -- in the middle of a remembrance service for victims of white supremacist terrorism, after the Black pastor has asked you not to protest inside the church out of respect for the Black community coming together to relive its trauma -- just so you can heckle Biden and feel good about yourself, then Jesus Christ. You don't care about restorative justice for people of color, or literally any justice at all, much less "stopping genocide." You just want to use them as props for your Chomsky cosplay revolutionary fantasies and your sense of self-righteous superiority over literally everyone else, regardless of the real-world consequences. So I have no hesitation whatsoever in telling those people to get fucked. Often and repeatedly.
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chronicallycouchbound · 9 months
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Intelligence Doesn't Equal Morality
Intellect is rooted in ableist systems and stupidity and intelligence are pointless social constructs that don't relate to morals or character.
I try to be a pretty good person, I fight for human rights, I regularly engage in mutual aid, and I care for my community. I try to do the right thing and support causes I care about and make positive changes in the world.
But I also am not very smart. I have several neurodevelopmental disorders, as well as cognitive disabilities. I can’t do simple, basic math, it’s hard for me to remember facts or algorithms, I rely entirely on spellcheck and speech-to-text to write, I failed many classes in high school and I barely passed with a low GPA, I had low pSAT scores and I never took the SATs. I moved around a lot all through school starting in third grade, and I missed a lot of basic fundamentals in learning (like how to do division and multiplication) so when I went to a different school they had already passed it and expected me to know. After my TBI, I could barely read AFTER I was cleared from my “concussion” symptoms because letters and words would flip around and I’d get headaches. Which still happens sometimes.
A lot of people see me as smart because I've learned a lot of academic language and can formulate thoughts into cohesive posts. But I lack a lot of necessary skills and rely on my caretakers to assist me. Things like budgeting and planning are extremely difficult for me. If I need to do simple addition or subtraction, even with a calculator, I quickly get confused and struggle. I forget basic information about myself all the time, let alone other subjects. I'm talking, has to check my ID for my birthday type confused. Doesn't know my name or address or what year it is confused. It happens daily, sometimes multiple times a day. Being able to type out posts like this often takes weeks and many adaptive tools to get there. Focusing is extremely difficult on many fronts, severe chronic pain, ADHD, dissociation, fatigue, migraines, and TBI, are just some of the contributing factors. I struggle daily with many things because of my lack of intellect.
I’m also privileged in the fact that I had some access to education as a homeless youth, that I had some supports in place to help me (towards the end of school), that I was somewhat able-bodied at the time and could walk or bike to and from school when the school system didn’t provide transportation. I was fortunate to have a chance to succeed, and I’m proud that I graduated high school because it was a difficult task for me, and others often aren’t offered that chance or get accommodations. I almost didn’t and I dropped out many times before graduation. I passed on sheer luck and what little privileges I had. 
That all being said, me being stupid (reclaiming it here) doesn't make me a bad person. I don't hurt people because I can't do math. I may mess up things or get confused but it doesn't make me want to harm others.
We often (wrongfully) equate morals with intellect. Being ‘stupid’, ‘dumb’, or an ‘idiot’ doesn’t automatically make someone a bad person. Plenty of evil, awful, and abusive people are extremely intelligent. 
I see this most notably with people advocating for IQ tests to be able to vote. Often from left-leaning people, in hopes it'll make the right (that they view as unintelligent), unable to vote. The reality is, it just hurts some of our most vulnerable members of the community while not actively doing anything to restrict some of the most dangerous members of our community-- those who know what they're doing to harm others and deliberately doing so. My voice matters, and I speak up against injustice and participate in dismantling oppressive systems. Taking away my right to vote won't make the right stop oppressing minorities (which also puts a lot of faith into the two-party voting system, which is a post for another day).
Additionally, legislative measures that discriminate against intellectually disabled people such as IQ tests for voting are also rooted in racism and classism. 
Yes, education can be a vital tool when it comes to addressing discrimination and creating safer communities. But the kind of education that is measured with an IQ test (or any test) isn't the same. Building compassion and caring for others can (and should) happen at any IQ level. We can all practice this, we can all participate.
It harms our communities and stagnates our progress when we equate intelligence with high morals.
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ladyyatexel · 8 months
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Friends, Romans, Tumblrites, lend me your reblogs.
I'm Xel and I live in a society! I think there's a solid chance you do also! So you may relate to the profoundly crappy thing that happened to me and that I once again need a community assist.
I lost a temporary job that was supposed to turn into a permanent job in June because no one there felt safe enough to retire. Only two of us in the apartment were under 50. One of the crew was over 70. Three were chronically ill/disabled. No one felt safe enough to leave in order for me to stay, so I was trained for basically 6 months for nothing.
I have survived on savings from that job until this point, but I'm at the point where I cannot pay rent. I'm looking into getting help from sources more local to me but the internet has always felt like people who cared about me more than the people I share DNA with, really.
Many of the social services that I was signed up for expired the day that I was supposed to be told that I would be a permanent hire, and since that didn't go down, now I have to start it all again from the beginning, and there are gaps in my security net.
I tell you all of that just to say that I am actually trying to do things, I'm not here to just beg and coast along on some sort of lavish lifestyle where I, uh. Keep living in this dodgy apartment with my cat.
I don't want to bore you with an itemized list, but like 2,000 US dollars would get me through September and October without being worried about it like every 3 minutes. My rent is 700 and change, if you would like to know that. So I'm looking for like September and October rent and money to renew my driver's license, pay a few utility bills, buy a bag of cat food, and refill my medications.
If you have the notion to toss help at an internet pal or the extended reblogged acquaintance of an Internet pal, as is more likely the case, probably, that would be super rad of you.
I'm an artist! You could get things with images on them from me! I sell buttons, prints, and commissioned illustrations if that's your thing. My commissions are going a bit slow as of late - I only recovered from being not really able to walk like 2 months ago, and so I'm doing a lot of catch up like everywhere else in my whole life and trying not to spend too much time at a desk since it aggravates the spine thing that was the problem in the first place.
To be honest, it would be a greater help to me to just receive some Aid rather than full-on commissions, but I completely understand feeling fishy about people getting something for nothing and also feeling bad for being a charity case on the internet, so I'm not opposed! If you want to chat about that, I have a commissions post on the side or top of my blog depending on where you're looking at this!
Ko-fi contains my buttons and is a good place to toss digital dead American presidents if that suits you. I will get hit by some PayPal fees in this process but, I'm willing to call that a call for help on the internet tax.
I promise I'm a real person and not a bot who has made up a cat and is pretending to have interests. My blog has been here since 2010! I've met people on this website in person and everything. I've had embarrassing obsessions no bot would bother coming up with. Speaking of:
Similarly to times before, I would like to be able to do something in order to feel like I have earned some kind of support, and as of my birthday last week I have resolved to try very hard in the next year to conquer my fear and absolute mortification about many of the things I make, so I will once again go digging into my archives for things I can post for you to enjoy as thanks and tribute! I also have a poll running right now to see what kind of buttons people want!
Thanks for taking a look! Be nice out there, take care of your spines!
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alpaca-clouds · 20 days
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How to make a "world" more accessible
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Let's talk a bit about accessible worldbuilding. I am thinking here first about Solarpunk worlds, but also about other scifi and fantasy worlds, that often do not think about this at all. Again, there is this nasty tendency to just assume that there are no disabilities in those worlds - and it leaves disabled people often feeling left out.
One of the most basic accessibility features one would expect to see in a world would be some sorts of ramps. And don't get me started with "oh, in my world wheelchairs fly!", which is something that actually not all folks reliant on wheelchairs want - as the actual hand-moved wheelchair often gives them a certain control.
It should also be noted that ramps help not only wheelchair users, but also people with baby strollers, and folks who might use other mobility aids like rollators. Heck, in my life ramps have also helped me, when I was travelling with a large trunk. Really, ramps make life easier for a lot of folks! Heck, if we think about a solarpunk world, where hopefully a lot of folks would get around by bike, ramps would help as well.
Of course, in some cases (if feasible in the technology level) there might also be a need for some sort of elevator. Again, not only wheelchair users will make use of that.
Another thing that should help, would be a wider usage of stuff like orientation systems for blind people. Currently those things are fairly spotty. Like some places have them, other places don't. And even where they are implemented, a lot of folks do not know what they are and will walk over it and park their cars on it. Stuff like that, which will once again make stuff more dangerous and inaccessible for blind people.
Then there should more accessibility accomondations for people who are deaf or hard of hearing. Those could mean to install visual signals for warning systems, which often currently are mainly auditory. It could also mean a wider usage of stuff like subtitles if possible in the world. And it also could mean that in the world people are more encouraged to learn sign language.
But those are the obvious disabilities. The stuff folks think off first when they hear "disability".
But there are other disabilities. Personally, for example, I do have some issues with my bowels. So what would be important to me is easy access to toilets whereever I move around. Which also is to say: Yes, dear public transport. Not having a single accessible toilet in your fucking train is an accessibility issue and ableistic.
Or the one accessibility aspect that has slowly been taken away recently due to hostile architecture: Benches and other places in public to sit down on. Because a lot of folks just cannot stand/walk for a long while. This is true for old people, and recently increasingly too for folks disabled through COVID.
There is also the need for shaded areas. As there are several disabilities that do not deal well with direct sunlight. Be it people who react allergic against sunlight, be it people whose eyes cannot deal with too much light, or be it people who might just struggle with their circulation when in the direct sun for too long.
And then there is allergic people. Which is also a big chunk - and in some cases can be quite debilitating. And I might remind people: In a fantasy or scifi world there might be people allergic to some of the worldbuilding stuff. Like in the Witcher Triss is allergic against magic, and in the nice sapphic webcomic Always Human one of the two main characters is allergic against bio-implants. Hence, ideally in an accessible fantasy/scifi world it would be easy to access what kinda stuff is in a potion and what not, to allow folks to be safe.
Lastly, of course, there are neurodivergent folks and... about that I am going to talk tomorrow.
Oh, and by the way: If you are disabled and have ideas of how the world could be more accessible for you... Please feel free to add!
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genderkoolaid · 9 months
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Do you still believe HRT, which unless you have a messed up endocrine system doesn't hurt or sterilize anyone , and SRS, which often calls for reduction or addition of things and doesn't have to entail the removal of any genitals, gonads etc, are in the same vein as being trans abled, and wanting things like debilitating illness, removed limbs, and to use mobility aids etc when physically and mentally abled? /genq
It could've been a trollpost, but I saw someone posting about something that supposedly came from you about how it's the same as removing healthy gonads or to sterilize oneself intentionally to want a limb removed to disable oneself /g
Uh, yeah, at the very least I believe it doesn't make sense to support people's ability to choose one but not the other. [Also as a necessary disclaimer: I am physically disabled and I use both a cane and a wheelchair. It has had a major impact on my life. This is my opinion as a cripple who suffers on a daily basis from both my disabilities and systemic ableism.]
If you get healthy gonads or sex organs removed, you are essentially reproductively disabled. When it comes to phalloplasty, especially RFF, your arm can experience some nerve issues (which for most people is not serious, there are therapies you do to help recover) but you could, potentially, experience some kind of disability. None of this is a value statement about any kind of medical transition because disability is morally neutral. In fact for many people being reproductively disabled is an entirely positive thing! Even though for another person it could be deeply upsetting!
I've fought for a long time against TERF fearmongering about transmasculine transition, specifically HRT, and their warnings that "it will make your good pure body DISABLED!!!!!" which is both ableist and transphobic. It comes from the assumption that a disabled body is inherently lesser and tragic and a place of suffering, and that no trans person would ever take disability for the ability to experience euphoria and relieve their dysphoria. Many of us would rather be disabled and happy than abled and suffering. So why do we only get to apply this to medical transitioning for trans people?
Yes, obviously getting a limb removed or paralyzed or losing a sense is going to change how you live and you will have to deal with a lot of ableism. But it's not up to me to tell someone else that they shouldn't pursue happiness and relieve because oh no! They might be a DISABLED PERSON! The worst thing to be in the whole wide world!!!!!!!! Like disabled people already have to constantly hear "wow if I was you I'd kill myself." And while you shouldn't comment your feelings on someone else's condition unprovoked, I think it's way better to see people getting excited to live a happy and active disabled life instead of constant traumaporn. So yeah I think people should have the ability to pursue voluntary disability & I also think it would be cool to see people with BIID reclaim the label of transabled, since it was coined by a BIID activist to create a less medicalized and suffering-focused way of talking about BIID.
(Also, my stance as a mobility user has always been that the only criteria you need to fill to get a mobility aid is thinking it could help you. People already suffer unnecessarily because they are worried they aren't "disabled enough" to deserve an aid. So if someone w BIID feels better when walking with crutches I don't care! Especially if they actively fight against systemic ableism and inaccessibility! I am wayyyyy more concerned with all the buildings in my hometown with no goddamn elevator + crosswalks with no button or speaker than I am with someone using a wheelchair because it helps their dysphoria.)
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AITA for not showing my mom her mail from a government agency?
(submitted march 10th) ✉️🧑‍🦽
i (27nb) live with my parents (50s M+F) and am disabled. due to my disabilities, i have been trying to get on SSI (disability income in the USA). this process takes an extremely long time (i started it last april, 2023, and have still yet to get a verdict) and they check medical records as well as school/work records AND ask for references who know how your disability affects your personal life.
i don't really have anyone other than my parents to act as my references, so i put down my mom as my reference. now, mom knows about my disability and how it affects me, but she refuses to believe it's as bad as it is, and wants me to get a job, even though i can't leave the house most days. she gets annoyed/angry with me when i have to use my cane or other accessibility aids and also makes me do the most chores around the house. this is all the background info.
a couple weeks ago, towards the end of february, mom and i both got letters from social security. i opened mine quickly and responded, and saw hers, but decided not to mention it. after all, when we bring in the mail, we put it all in one place, and mom and dad go through it and deal with the important stuff. the day after the letters came i saw that the disability one had been moved to mom's desk with another important looking letter (looks like some insurance thing), presumably so mom would remember to take care of them later. then she just... never did.
it's been like two weeks. despite how long the process takes, social security DEMAND that you answer them within a few days of receiving their letter, or they'll move forward in their process without a response from you. so the window for mom to answer this letter has almost definitely passed. i never brought it up to her, because 1. i assumed she had seen it and just never gotten back to it, and 2. i thought that her testimony as my "reference" might actually hurt my chances of getting on disability.
reasons i might be TA:
this is mail from a government agency, which is objectively pretty important.
the other important looking letter on top of the disability one hasn't been dealt with either, which might also be time-sensitive.
i'm assuming that my mother wouldn't provide helpful testimony for my case, when she actually might.
reasons i might be NTA(/NAH):
i have very good reasons to believe mom would say my disability isn't as bad as it is, and potentially hurt my case.
she saw the letter and moved it somewhere to deal with later, i didn't hide it from her. she just forgot and i (deliberately) didn't remind her.
social security has mom's phone number too. if they desperately need to speak with her, they can call her (they've called me before in addition to sending letters, so i know this is Something They Do and not just a hypothetical "they could").
by the time this gets spit out of the Processing Vortex™ it's gonna be waaaaaaay too late for the letter(s) to be answered, so this isn't a question of "should i tell her about it?", just "was i a dick for this?"
What are these acronyms?
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cripple-culture-is · 11 months
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Sorry, but if you do not use a mobility aid, then you aren't physically disabled 🤷‍♀️ Only those with mobility aids can call themselves a cripple. I saw your main blog and that you are "physically disabled without mobility aids". That's not even possible. You can't be physically disabled and not require mobility aids.
And the fact that you believe you have the right to use the word cripple rubs me the wrong way. You have to look disabled in order to use that slur. Otherwise it's incredibly disrespectful.
If you can walk, you are not crippled. Crippled means to "cause (someone) to become unable to walk or move normally." If you can walk, you can move normally.
My first full on hate comment lol 🤣 I'm really moving up in the world.
But on a serious note, yes, you can be physically disabled and not require mobility aids. Physical disability isn't always stagnant. It isn't always as simple as someone who is paralyzed being a full time wheelchair user.
Since you used definitions, I'll use definitions. Physical disability is defined as "a limitation on a person's physical functioning, mobility, dexterity or stamina." Also, "any physical limitations or disabilities that inhibit the physical function of one or more limbs of a certain person."
I am physically disabled. I pretty much always have been. I have a mobility disability. I was diagnosed with juvenile idiopathic arthritis at 9 months old, an autoimmune disease. I did show symptoms at 4 months old at the latest though. Arthritis is actually the leading cause of disability and the most common disabling condition for U.S. adults.
I do not currently use mobility aids, no, but I am looking into getting a rollator for college. So I suppose that when I do get that aid, I will finally, in your eyes at least, be considered physically disabled.
However, I have reached a point in my life where I don't really care what people say about my disability. Whether you believe I'm physically disabled or not doesn't change the fact that I am physically disabled under U.S. law 🤣🤣
I got my permanent disability plates and placard when I was about 5 years old, though I probably could've gotten it before then.
I have always said that I have never used mobility aids. And while that's technically true, it's also not. I've never used traditional mobility aids regularly. I used a wheelchair in public once as a child, and I hated the pity looks adults would give me as I used to be more self-conscious.
However, I HAVE used untraditional mobility aids. While most people wouldn't consider them as such, I have used aids that have helped my mobility, mostly as a child, they just aren't stereotypical disability aids.
I was offered a wheelchair as a child, but due to the pity looks I got from adults, I turned it down. My parents worked around that hangup of mine by using things that I was confident enough to use for mobility as well as more acceptable to me.
My parents had bought this long stroller. When I got older, the typical strollers caused problems, in that I couldn't rest my legs on anything. So I had this stroller that had a leg rest that I could use to stretch my legs as keeping them bent for long periods of time physically hurts me.
I also sat in the baskets of shopping carts until I was in my mid-teens. My mother or father would put the cart with me in it and I'd sit in it as if I was merchandise just like everything else in the basket. This was all because I couldn't walk.
Though, what would happen when a stroller or shopping cart wasn't available? I would get a piggyback ride, mostly from my sister, though from my father as well. My mom did it only occasionally as she has joint issues just like I do.
Then, when I was a bit older, my parents bought me a red wagon. We would take it to amusement parks and carry some things in it. We'd use it for food and other stuff. But it's real purpose was to be there in case I got to a point where I couldn't walk anymore.
I have arthritis in every single joint in my body. From my jaw and neck, all the way to my toes. Hips, ribs, spine, you name it, I got it.
As for the use of the word 'cripple' it DOES apply to me. Cripple refers to anyone with a physical disability. And due to my disability, I do have lower body involvement. Hips, knees, ankles, toes, etc. All of it.
As for being able to "move normally", I actually don't completely. I appear like I do, but if you look at the structure of my legs and the way I walk, I do move differently than a lot of people. I find that I tend to limp often, even when I'm not in pain. And I am curious as to if that's because I got so used to limping as a child due to pain that my walking pattern just adopted that, leading me to limp when I'm not in pain. I also sometimes walk as if I'm waddling.
Plus, if you notice, my right knee is actually slightly turned in, which means that somehow, it's out of alignment. Knees are supposed to point forward. My dad's point forward, my sister's point forward, my mom's mostly point forward. Both of mine do not, even though both of my ankles are straight. My left one is pretty straight, straight enough for me to not really notice it. But my right is a separate story.
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Because my right knee is pointed slightly inward, I tend to walk with my right foot slightly turned out.
I'm not sure if the alignment is a knee issue, a hip issue, or potentially an ankle issue. This wasn't an issue that was ever pointed out by my doctors as a child, cause my knees have been like this for a while. I did have a lot of knee inflammation as a kid.
But back fully on topic, cripple punk isn't contingent on the use of mobility aids. Plus the assumption that I have to "look disabled" in order to be physically disabled is very ableist and leads to those like me getting harassed when we use our handicapped parking permits. I'm invisibly physically disabled, I have always recognized that. But me having an invisible disability doesn't change the fact that I am physically disabled. And come this time next year, I will probably "look disabled". Not that I believe disability has a look. It doesn't. Believing disability has a look is ableist and perpetuates harmful stereotypes. I AM physically disabled. I AM crippled, mobility aid or no mobility aid.
You don't know my history, you don't know me. You don't know my day to day life.
In order for you to believe me, you'd likely have to see my diagnosis papers and the proof of my disability. But you are not entitled to that information. I don't have to show it to you, and I'm not going to.
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drdemonprince · 2 months
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I deeply agree that weve got to meet people where they are at, and that there are multiple factors to consider in a masking situation. But I’m gonna be real as someone who was deeply disabled by covid something still urks me about the way people have been discussing covid protection with you. It is all so overwhelmingly from the perspective of someone not sick. It’s all about how one made the choice to not mask in certain situations and how doing otherwise would ruin ones life, and that’s like, sure, makes sense. But I don’t get that choice. That choice was taken away from me. And I am not making a ill-informed strategic decision in shaming others, I simply have no empathy for the hurt feelings of the people who put me on my deathbed, to be quite fucking honest. I am all for strategic discussions but I am not here to be tone policed by people talking about their choices that I don’t even get to take, sitting here struggling to even type.
Thanks for sharing this. One of the big tension points with COVID is that the target behaviors that need to be changed are located within people who are, statistically, not the most vulnerable -- and so, on a tactical level, we are tasked with extending compassion and aid to people who might not show the same consideration to us as disabled people, if we want to be safe.
As HIV spread throughout queer, sex worker, and intraveneous drug user communities, it was often these very communities that organized in order to influence behavioral change within their own ranks. Gay bars handed out condoms to gay men. Gay sex clubs facilitated fisting nights so people could have safer sex. Needle exchanges run by current and former drug users helped keep drug users safe. The people most likely to be infected were also the people whose behavior could be positively influenced to protect them, and thus protect the community as a whole.
That's not quite the calculus here. In order to protect disabled and high-risk people, we need EVERYONE to be on the same page with regard to COVID mitigation strategies. We need people who are not themselves high risk to mask, test, get vaccinnated, improve ventilation in their homes, etc.
Now, many of these "low risk" people are not actually low risk; the data is pretty abundant at this point that it is in actuality quite hard to pin down who will develop long COVID and who will not, it can happen to just about anyone. And indeed, even many people who know themselves to be high risk are still taking significant risks regarding COVID right now -- because they are forced to go to work in kitchens and grocery stores and live with roommates who travel and etc or because they are so filled with despair they are risk resigned.
So trying to demarcate who is a disempowered victim here and who is an inconsiderate abled person is not actually so easy -- we must resist the urge that has been drilled into us to issue moral judgements about whom is righteous and whom is deserving of suffering. That is not a disability justice politic. No one deserves long covid, no one deserves to die, no one deserves to overdose, no one deserves to get AIDS, no one deserves to perish because they could not handle the loneliness of social isolation either. We must believe that all disabilities are legitimate and in need of accommodation here, and that includes mental ones that make strict mitigation adherence hard for some. (hello, hi, i have crazy risk-taking brain disease, and even so i care about COVID mitigation, and i need community care too).
EVEN SO, it is undeniably true what you are saying, that we are focusing more on the actions and choices and hang ups of the people who have some freedom to choose, and not the people who have been at home for years at this point, completely isolated, because they are high risk or disabled by COVID already.
I would always caution people to remember that there very much are folks who are high risk and have long COVID who are still forced by economic circumstances out into public life every single day. so we can't equate who is at home and who is out in public taking risk with how disabled or sick someone is. But still, I digress, and on the whole you are right, we are concerning ourselves with people who have the freedom to choose how they respond to COVID, and doesn't that seem unfair?
Sure it's unfair! But the people who have the ability to choose how they respond to COVID risk are the exact people whose behavior we are trying to influence here! We want more people to mask, get tested, get vaccinated, socialize outdoors, etc. And so we do have to put considerable resources and messaging into reaching those people and influencing their behavior if we wish to protect disabled and high risk people.
Someone has to do the work of listening to their concerns, educating them, validating their feelings, giving them access to masks and tests, and removing barriers to them taking those kinds of desired actions. a LOT of people have to do that work. You don't have to do that work as someone who is chronically ill, but I'm gonna do it. and I wish more of my comrades would join me in it, for your sake too! We need to be doing the footwork of getting all your neighbors masking so that it is safe for you to go outside!
We also DO want to protect those people who are taking big risks. Their lives do matter just as much to me. Many of the people who are disabled with long COVID were them once. The fact that someone takes a risk does not mean they deserve to get sick and die. Again that is a fundamental cornerstone of a disability justice politic.
But yes, I hear you, it's annoying from where you are sitting to have to hear people who get to out in public and take big risks complaining about how they are sad when they get criticized. You don't have to listen to these conversations. It shouldn't be your job to hold those conversations. But they do need to happen.
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thebibliosphere · 2 years
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Hey, friendly question that you don't even need to answer if you don't have the spoons:
I have APD (Auditory Processing Disorder for those who are unaware, though I assume if someone follows you, they know what that is lol), and I've been considering over the last few years how exactly to quantify it. It is in large part due to my neurodivergencies, but I think it's slightly worsened by the fact that my ears just... make a lot of wax. For these reasons, I often need subtitles, I can become totally lost in certain conversations, when there's a lot of noise, or when I'm speaking to someone who puts different emphasis on words than I expect, or uses a word I am not expecting altogether. Not being able to see someone's lips also makes all of this more difficult.
I also know, from what I've heard and read, that a lot of these things are similar to some of what HoH people experience in the social aspect. I'm not HoH, as far as I know, I haven't experienced any true *hearing* loss, rather, difficulty processing.
My question is, is there a way that I, as a person with APD, can converse with and relate to HoH people from our similarities without making them feel invalidated because I do not experience difficulty with *hearing*? I'm also not sure how HoH and d/Deaf people feel about people with APD requesting similar accessibility aids (closed/open caption, headphones, etc.), especially in cases where there are limited aids available, or how they feel re: APD-ers in general. I don't wish to make it seem as though I expect you to speak for *all* HoH and d/Deaf people, but I am interested in your perspective, as someone who is HoH and has APD. Do you see there being a day when HoH, d/Deaf, and APD will be considered part of the same category, or would it be insulting to the former two categories to have the latter one included in the same breath? Is there ableism that comes from those with APD aimed at HoH and d/Deaf people that we should call ourselves in on (and have I maybe hit some of those even in my attempt to word this well)?
Regardless, thank you for your time, and I hope you're having a good night. Day. Whatever time it is for you 😅
So there's a lot to here that I don't really have the experience to unpack (hopefully, someone else does), but I find it interesting that you are very focused on not wanting to step on anyone's toes in the hoh / d/Deaf community when it comes to needing accommodations for your ADP.
And while I can't speak for the broader community in terms of whether they feel like ADP belongs under the same banner or instances of lateral ableism... I just want to point out that if you benefit from accessibility features like closed captions, headphones, and being able to lip-read... you're not taking resources away from someone who needs them more because YOU need them.
ADP is not well understood, and while the debate rages on over whether it's a learning disability (some places say no, some say yes. Typically, the same places that debate whether ADHD is a learning disability, which for some of us, it absolutely is.) but this stems largely from thinking of disabilities as absolutes and not spectrums that are largely influenced by individual severity.
I've had ADP my whole life, and it is absolutely worse for me than my actual physical hearing loss. Should I not use CC or listening aid devices to help just because my physical hearing loss is not profound?
Some people develop ADP after severe ear infections, head trauma, or conditions like MS. Do they not deserve accommodations just because their inability to process sound differs from someone else who is hoh or d/Deaf?
Of course not. That'd be ableist.
I think, perhaps, you need to be kinder to yourself over this and acknowledge that it's okay for you to use these accessibility aids.
You don't need to suffer more. I promise you.
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frankiensteinsmonster · 8 months
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Hey, sorry I haven't been doing my daily outfit posts lately-- I guess I never mentioned why I started them, but it's this personal project that I'm working on where I take a picture (though, in all honesty, it's a lot of pictures lol) in whatever I'm wearing and I feature my cane to promote awareness and give representation to other cane users and members of the cpunk and Physically Disabled community. I'm working on building up the courage to take these pictures outside as well, because I do them on campus, but we deserve to see ourselves outside as well!
The reason I haven't been keeping up with it is because my partner and I have really been really struggling financially as well as with our mental health (and me with my physical health as well, obviously lol) we moved across the country to go to school and it is So Hard-- I had to drop three out of five of my classes because the course work was just too much in volume and I need a job really bad (which is going to be Hard to do since we don't even know why I'm in such chronic pain yet 🙃 it's hard not to feel defeated!)
Either way, I think going to start posting them with the tag #TheVainCanes and #MobilityAidVainity but I'm also going to host a poll for some options bc I want this to be a widespread community thing!
I'm choosing these names because I've seen from both ableds and disabled elitists this idea that we and our mobility aides need to look like they're fresh out the hospital for us to be Believed and deserving of respect, and anything beyond that voids our suffering and invalidates our experiences-- and I think that's reductive, harmful, and just plain wrong! Our mobility aides are an extension of ourselves and we deserve to dress them up however we want. We deserve representation, and the normalization of Joy and Having Personality While Disabled.
This will be intersectional as well (bc. I mean look at me. Also I don't need a reason!) , people from all identities are welcomed and encouraged to join! This is meant to be a celebration of Us, Disabled, BIPOC, LGBTQIA2S+, and All That Jazz! (If you use a mobility aid, you're in!) We're beautiful gorgeous handsome devils and I think we'd do good seeing how good we all look in a designated tag
Also my cash app and Venmo are @/cherubpunque 👀 if anyone has some spare change I could have that would be an amazing help towards feeding me, my partner, and our two cats!!
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To kick things off, I am a 2S, Afroindigenous person (Gullah and Kanien'kehá:ka!) who experiences chronic pain and fatigue. I have PTSD and a few other brain things going on, less than perfect eyesight, and a great passion for Art, Music, Subculture, and Helping Others whenever and however I can! I'm majoring in art and am working towards becoming a published graphic novelist. Idk I just have a lot of love and support to give, and a big need for love and support for myself as well, and I'm hoping to offer us a good opportunity for us to connect in a space that's just for us! We're already living outside of society's expectations for health, so why should we let these folks decide the way we look while doing it? Express yourself! (I'll also be tagging myself in future as #mothie so you can find me in the tags! Anyways, I gotta go lay down. My back hurts.)
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