#medical survey

[ngsketches]

I got tired of looking these up

OKAY So I love Pokemon PLA But Some of the things to look up for refrence is really hard. And instead of drawing OCS like a normal person. I decided to make my own Ref sheet I am Sane 👍 Also the images I used to ref

[transarsonist]

please read all options carefully if you are not on external hormone sources, or do not have pots, do NOT respond

[homosociallyyours]

This is a post for one of my best friends who's been going through a lot for the past few years. I'll go into more details below, but here's the heart of the matter: My friend has a serious auto-immune condition resulting from the long term after effects of cancer treatments (worsened now by the addition of long COVID to her long list of diagnoses). Over the past few years, she's gotten sicker and sicker and has been forced to change her diet from a vegetarian anti-cancer diet (she's a breast cancer survivor, and fought HARD for her health) to one that's become more and more limited as her body becomes allergic to every food one by one. She's now reached a point where one of the last 2 foods that she was able to eat safely, chicken, is causing an allergic reaction; she has to eat it anyway to survive, so is now very sick all the time.

What can you do?

One of the last hopes that she has to turn things around is something called a fecal microbiome transplant, which has worked miracles for other people with similar issues, but cannot currently be accessed through medical channels in the US for any but one (unrelated) condition. It's really easy to do as a DIY treatment though, it's just hard to find a donor: so we are putting it out there to see if one of you might be able and willing to be that person, or know someone who could do it.

Here is what she has to say about the ask:

Finding the right person to do this is difficult, but actually doing the helping is extremely easy and quick if someone was that person! If you live in the continental US and are fortunate enough to have both physical and mental good health (or know someone or have a child who fit the criteria) and are willing, you might be able to change my life! Please consider clicking through to read more and maybe even come aboard...  (For clarity: this isn't a medical procedure or anything, it is literally just donating poop, there are a few specifics but it is very much from the comfort of your home on your own time.)

You can click here to fill out a google form to see if you might be able to be a donor. The questionaire is detailed: fecal transplant is a bizarre and magical thing in which the patient sometimes can even end up acquiring personal preferences from the donor- the gut microbiome (sometimes called the second brain) is incredible! But this means that any illness, chronic issues, or risk factors you carry may also be transferred to the recipient so while it may feel invasive, getting detailed info in very necessary; I am just too sick already to take on any more problems.

A note- yes, it is possible to buy screened and processed treatments even in the US: unfortunately the cost (~$2k per round of treatment) is way outside my reach, particularly given that it isn't really any better than just getting poop directly from a good candidate (proven via studies), and that often it takes trying a couple donors/ rounds to find a match that gets results. If anyone wants to just buy me that stuff, I sure wouldn't say no to that, but given the severity of my situation (medical and financial; I cannot work due to disability) it is likely I will need to do medical fundraising at some point and I am trying to save that for an even worse point. Also if you have that kind of money to help out honestly it would be better spent on specialists or my astronomical food costs. I will cover all costs associated with this process if I find someone though, of course!

Thank you for reading/boosting/etc, please consider sending the link to possible healthy friends or family who might be a fit, or consider whether you have a child fitting the bill you might be willing to enlist- young microbiomes are the best ones, as children's systems have had less time to be ravaged by the effects of the modern world or the simple deterioration of age.

[soul-cake-duck]

Hello! I'm (very tentatively) approaching a project based around visible body differences and self image- here body differences are things that affect the way you look that are NOT considered 'normal' (yes, I know that's subjective!). As part of this I've made a form to gather info on how people's body differences affect them. It would be much appreciated if you could spare a couple minutes to fill out this form if you have a body difference!

Please rb this so I can reach as many people as possible; thanks!

[fatliberation]

would you be willing to share some of the survey results on this blog? not necessarily people's personal experiences, but just overall findings/conclusions/trends?

Yes - I received over 200 responses, so here are some of the (unfortunately) common experiences I found:

(Big TW for medical abuse here.)

Of course "LOSE WEIGHT!" was by far the most common one, in other countries too - even for things like sinus issues and migraines. in one instance a doctor even suggested weight loss to cure anxiety and depression... without any prescribing medication.

There were multiple reports of outright verbal abuse and public humiliation towards fat patients, including refusal to help a patient get up from falling

Misogyny, misogyny, misogyny. Women and AFAB individuals reported their symptoms being downplayed and receiving incredibly sexist and false information from male doctors

An AFAB person's fertility is valued more than their quality of life

There was a trend of doctors/psychiatrists claiming they can “cure” autism by selling vitamins

"You're too young to have pain / X problem" was VERY common

A lot of pain / breathing problems were blamed on anxiety, even when patients did not have an anxiety diagnosis

Doctors dismissing symptoms as the patient being drug seeking because of assumptions based on race

Quite a few participants shared with me that they were taken seriously ONLY after posing a threat to themselves

Gaslighting, saying that someone's past trauma never actually happened to them

And the number one thing I saw the most of - participants expressed that they no longer wish to seek medical care (to the point where their symptoms progress) because they are afraid of experiencing more trauma.

To the 200+ people who filled out the survey and shared their experiences with me: THANK YOU. I read every single entry. Some of them kept me up at night. You all deserve justice. I believe you. Keep fighting.

[thunderin-brainstorm]

wanted to figure out all RB's scars collected throughout her time in Hisui and i accidentally ended up making a proper ref sheet for it oops. this is what she ends up with after a year+ of wandering the wilds and getting attacked by crazy megafauna, and it's not even including all the injuries that DIDN'T scar, like countless bites, scrapes, bruises, cuts, etc, or ones that leave no mark on the skin, like a badly rolled ankle, a broken collarbone, psychic whiplash from tanking too many confusion moves, soul deep nerve damage from Ghost-type overexposure, etc

a lot of these are covered in the outline of her story i've got plotted out, but i'm sure when i sit down to actually write it as prose there will be more that pop up

[sysciety]

Open system question - how would you personally define ANP and EP? Do you stick closer to what the research/medical definition is, or does it deviate (it's ok if you don't know!) I've been reading parts of the haunted self recently (chapter 1-4 specifically) which has made me curious on what the community perception on the definitions were and how they deviate from clinical ones

[tj-crochets]

Hey y'all! I am once again in health insurance hell, and could really use some help. I have a specific US health insurance question, but it might get long so it's below a read more

My employer offers two health plan options, and they are both absolutely terrible. I want to get my own health insurance, but the insurance broker lady I used when I worked part time says I can't, because I can get health insurance through my employer, even if I opt out. I spoke to another health insurance person today, and she said if I get a letter on company letterhead saying I'll lose health insurance on [date], as long as it's 60 days or less from now, it counts as a qualifying event and I can buy my own health insurance. She said opting out counted as losing health insurance. Do you know anything about this? How do I get health insurance as an individual NOT through my employer even though my employer offers it? The plans my employer is offering are Aetna, and Aetna is the absolute worst and I despise them as a company so much one of my long term goals is to warn people against them. They suck! They refused to pay for my inhaler until I got my doctor to fill out a form like three times, and also I had to email them A LOT and fill out a LOT of surveys with an emphasis on how horrifying I found it that they as a company clearly valued profit over their customer's lives, and would in fact prefer their customers die before they could reach the ER in case of an emergency, as evidenced by their refusing to pay for my rescue inhaler, a necessary life-saving medication. They also require I fill that form out every year, just in case I magically stop being in the small minority of people who get severe adverse reactions to albuterol and levalbuterol

[proustianrevelry]

new fetlife profile

[gayvampyr]

i hate people on this site. i didn’t grow up poor eating sliced bread for every meal and getting by on my shitty food stamps and my parents working 2 jobs just to be told by some cunt in my notes that other people have it worse, that “actually poor” people would be homeless or not able to afford food at all and wouldn’t have a cell phone. tell me you don’t know how the world works without telling me you don’t know how the world works. 2-dimensional ass perspective.

[lifewithchronicpain]

Thousands of people in pain are urging the Drug Enforcement Administration to scrap plans to further reduce the supply of opioid medication in 2024.

The DEA recently announced it would cut production quotas for oxycodone, hydrocodone, codeine and other opioids for the 8th straight year, despite complaints from pain patients and healthcare providers that the medications are already in short supply and difficult to get at pharmacies.

The DEA invited people to comment on its plans in the Federal Register. Over 2,400 have so far – many with heart breaking stories to share about not being able to get the pain medication they need.

“I was finally able to establish a reasonable pain management routine but that was disrupted when my regular pharmacy was no longer able to supply my medication (a moderate dose of Norco) and not a single other pharmacy was willing/able to fill my prescription,” said Jessica Ericksen. “One pharmacy supervisor screamed at my doctor on the phone when he called in to try to get my prescription set up with them. I now have a 1.5 hour round trip drive to get my medication, which is particularly challenging for a disabled person who is unable to drive.” “I am one of the many that has had my life destroyed by the government regulations on pain meds. I haven't been able to get my medications for the better part of a year,” said Paula Perry. “I'm now basically bedridden and praying for death. Stop doing this to people, we are dying and you guys make it worse every year.”

“Most of us in pain have gone through all of the other drugs to treat our pain and these are the drugs of last resort. The opioids don't totally treat our pain but allow us to function,” said Heather Larson. “The DEA needs to stop playing doctor and let the doctor decide what is right to prescribe. If production is cut anymore, people will commit suicide or go to the street for pain medication.” “I have already had to jump through numerous hoops just to be prescribed my meds, but now have to call pharmacy after pharmacy monthly to find my meds, because they are out of stock at every pharmacy around me in a 10-mile radius,” said Jill Bartruff, who suffers from scoliosis. “I also had a surgery in September 2023 and could not find a pharmacy to fill my post op pain meds. I was in immense pain and was unable to advocate for myself to get my meds filled. Imagine being cut open and discharged from the hospital with no pain control.”

“Why do you continue to cut supply when legitimate patients cannot obtain their medications? Many are already out of their meds for weeks on end,” an anonymous poster wrote. “You should be able to see you're making the situation worse.” Are you a U.S. pain patient with an opioid prescription? Please take a few minutes to complete PNN’s survey on how opioid shortages are impacting pain care. It will help us document how serious the problem is. Click here to take the survey. (Read rest of article at link up top)

I've taken the survey, it's a few minutes long and easy enough.

[aprofessionalwithoutstandards]

medic has a folder that says VERY IMPORTANT PAPERWORK on the front and inside is a bunch of sudoku puzzles and then has a folder that says NORMAL SUDOKU PUZZLES on the front and inside is a bunch of paperwork he stole from miss pauling

REALLLLL REAL God he is so funny. I think he likes filling out forms and surveys and etc but never submitting them they just pile up in his room. He fills them out lying on the floor kicking up his feet and giggling

[thestarlitrose]

I'm just curious how many adults are dealing with this in the United States. I've personally called multiple pharmacies without luck.

Feel free to add things you've found that are helpful if you've been without your meds for a while.

[scribesynnox]

Rereading The Greatest Estate Developer (as one does of course), and I just got to the part where Lloyd surveyed the giant Cremo lobster monster in order to find out what it’s made of and now I’m just wondering.. could he do the same with a human?

The human body is chemically equivalent to a mix of water (35 L), carbon (20 kg), ammonia (4 L), lime (1.5 kg), phosphorus (800 g), salt (250 g), saltpeter (100 g), sulfur (80 g), fluorine (7.5 g), iron (5 g), silicon (3 g) and trace amounts of fifteen other elements.

[astrangergivingthestrangewelcome]

I just want everyone to know that there's a museum on the sub-Antarctic Island of South Georgia which is visited by over 10,000 visitors a year from Antarctic cruise ships. Combined with the population of the research station South Georgia Island has a population of like 25 people. South Georgia is like. A Rock. and there is just a building that if you go inside it it's a whole ass museum about whaling and Shackleton like that's some magical realism if you ask me.