#chronic joint problems

[playingplayer2]

I did somethingggggg idk what in the last 45 minutes that fucked up my finger I don't know what I didddddddddd

(my best guess is I fucking subluxated the fucking thing but I don't typically have that happen especially not on my left hand, usually my shoulders, ribs, hips, knees, and toes get all fucked like this but I guess I get to enjoy the every time I shift even a little bit so does my hand

[tumble-tv]

"You're always so chipper and excited even though you're in pain, I could never."

Bethany, if I wasn't chipper and excited about the most mundane things like bees and dice, then I would literally be bedrotting all day every day, sobbing because my entire life is falling apart because I have no answers or relief to pain that doctors think is fake. So I will take joy in my trinkets and rollerskating while my body allows because one day I won't be able to.

[demiboydemon]

So sad about the United Health CEO :( has he tried yoga?

[drifting-bones]

they should invent walking that doesn't make you feel like you're going to keel over and die

[crazycatsiren]

Weather: *changes*

My joints: We're just going to die.

[problem-project]

I was in so much pain here, but my outfit was so cute! 💜

[gracethyomen]

Happy First of May!!

Hello! May is EDS (Ehlers Danlos Syndrome) awareness month! As a person with suspected EDS and with chronic symptoms, this is a very important topic to me. EDS is hard to diagnose, and many patients fly under the radar of healthcare professionals which can cause them to suffer lack of treatment and forces them to live with their painful symptoms.

More Information about EDS and associated variations has been attached below and the infographs were originally found on an instagram account that I follow at the username the_chronic_chronicles

[brain-n-body-in-disarray]

It's the little things that hurts.

The way people don't get you can't do the things they do, at least without costing you so much.

The way the doors of shops or buildings used to fly open at the slightest touch and now they seems to weight a hundred tons.

The way my mother in law asked me if I wanted orange juice and when I said yes she put two oranges and a old manual juicer. I was too ashamed to admit how much it would cost me to do it this way. So I did it, fighting the tears and then couldn't use my arm for a week.

The way I can't get out of my apartment sometimes because even if there is a lift, there's also stairs between my apartment door and the lift and between the lift and the building door. Why make a lift at all if it's not even accessible because of the stairs? (I can't move out. I have neither the money nor the spoons.)

The way the new building the local bookshop moved into makes things so much harder for me than the old one. There was so much unused stairs that I could sit and rest for as long as I needed. Now in the new building the stairs are so narrow you can't think of sitting on them, you'll just block the way. And there's no chair or bench anywhere in this 4 stories building. You just can't sit and rest there.

The way the city is getting rid of public benches and putting in their stead blocks of concrete with metal spikes on them to dissuade homeless people to sleep on them, which is wrong on its own, but also impacts disabled people. There's less and less places where to sit and rest during a walk through the city.

It's people laughing when I can't open a bottle of soda.

It's people gossiping behind my back, saying "oh they are a junky" because I takes so many meds, including the ones for the pain, but not only for that.

It's me being too ashamed to be disabled at a relatively young age and having an invisible disability. It's me being too ashamed to ask for accommodations. It's me being too ashamed to ask for a seat in the bus when all of them are already taken. It's the society making me ashamed of myself.

It's life itself, mocking me, and the world joining in the good laugh at my expense.

[slveepyscwrs]

my joints after the slightest physical exertion be like:

ouch ouchie ouch ouch ouchie ouch ouch ouch ouchie ouch ouch ouch ouchie ouch ouch

[stars-and-branches]

Every winter I want to find whoever invented the electric heating pad and dip them down low and kiss them so sweetly

[enjolrashisace]

I've received my HeDS diagnosis

After 23 years of struggling and medical gaslighting, my condition and struggle is finally recognised and I'll be able to get everything I need. I'm so happy I could cry

[strawberrylemongrass]

hurts to walk on four legs

hurts to walk on two legs

hurts to sit for too long

hurts to stand still

hurts to move

fuck.

[tumble-tv]

SAY IT WITH ME: MEDICAL GASLIGHTING IS MALPRACTICE

[silly-centipede]

I wanna work out and get stronger, it would help with some of my disability symptoms. The ironic bit is that if my condition is what doctors think it is that means I'll struggle to build muscle. And even barring that, my fatigue and my pain make it difficult to walk around campus let alone go home and work out.

My physically abled gymbro friend told me to just do a little every day, and I know he means well but I don't have the energy to get dressed or brush my teeth most days.

[chronicallyuniconic]

"You were fine as a child/teen"-Was I though?

I've been told countless times that it's unfathomable, that it doesn't make sense, that I am chronically ill now, because I was "healthy" growing up, I was "active" and "normal."

"you were fine" they say

Frustratingly, they are wrong. I was not "fine" and I masked my symptoms heavily. In a lot of cases I didn't know that what I was going through was abnormal.

I remember the many times a year (every month/every other month) I was ill with cold & flu, tonsillitis, chickenpox, rashes, broken bones, sprains, stomach problems, pain and exhaustion.

I remember the 2 years in my teens where I had chronic knee and leg pain that was blamed on growing pains. It affected me so much my attendance in school dropped to 62% & irritated my mum so much that I failed to continue finding medical care for it and "carried on" as if I was fine.

Growing up, being ill was a burden, almost not allowed. If you were ill, you were an annoyance, a nuisance, forced to get on with it. It irritated the people around you, if you were ill with a n y t h i n g in my childhood home.

I remember throughout my whole childhood that at least one week out of the month, I'd get so exhausted I would come home from school and go straight to sleep until shouted down for dinner and I'd go back to bed.

Many times I remember coming home from school and college absolutely depleted of everything and faceplanting on my bed for 2 to 3 hours.

I remember how much I wanted to be involved in some activities but didn't have the energy and was accused of being lazy, anti social or ungrateful of opportunities.

I remember being hospitalised with chronic stomach pains, they suspected appendicitis, but when they could find nothing I was released home with nothing further done for another 15 years. I was accused of attention seeking or just wanting to skip out school.

I remember being unable to tell anybody how I felt whether it was physical or mental. When I did reach out I was told I'm too soft, I'm being dramatic, I'm just making it all up. When I did say "I'm in pain" I was told its not that bad, I'm not dying and that I "won't get any sympathy" from them.

When I went to University & got freshers flu, I was bed-bound for 9 weeks but told it was depression.

Eventually, I couldn't carry on from all the above. Now I'm bed-bound/housebound for life.

Please, tell me again, that I was "fine"

[crazycatsiren]

"It's the most wonderful time of the year" oh fuck y'all it's cold and my joints are killing me!