#chronically ill life

[deadgirlinthepool]

I went out tonight.

It’s a big deal, because it’s the first time I’ve been gone out at night since being on this preventative medication for my chronic pain.

I’m back home in bed, and I enjoyed my night out with no pain whatsoever.

This has been a long time coming, and I finally feel deserving of this.

🥹🙏🏻🤍

[caterpillarinacave]

Gaslighting myself into believing whatever is hurting doesn’t hurt when it definitely hurts

[thistlesthornsandpoetry]

[evilwriter37]

Nausea subsided, so here’s my middle of the night snack: two cappuccino biscotti and four ibuprofen.

[dailydivergent]

There’s no such thing as work-life balance for neurodivergent & chronically ill people.

This is because everything in my life requires work:

maintaining friendships

keeping up with my hygiene

managing bills

making money

remembering my basic needs

sleeping regularly

outputting creatively

All requires some aspect of work for me.

And when everything in your life requires work, your balance goes out the window.

If you're neurodivergent and overwhelmed — I see you.

If you're chronically ill and overwhelmed — I see you.

You're not dysfunctional.

You're not incapable.

You're doing your best.

[potsiepumpkin]

When the chronic fatigue is chronic

[colourmeastonished]

Body swap movie where one of them has invisible disabilities and when the other one lands in their body they immediately collapse catatonic on the floor from the pain and fatigue and the first one is like 'oh damn guess I don't have to worry that I'm faking it anymore'

[s-ccaam-era-crepe]

i think everyone who's ever had migraines should be financially compensated forever btw

[araekniarchive]

@mnvart // Kaveh Akbar, 'Calling A Wolf A Wolf' // @PinkRangerLB on Twitter // @kosmogrl // @devinsturk, '15 Proverbs for the Fellow Chronically Ill' // Jasmine Deporta // Anaïs Nin, House of Incest // the gentle wisdom uquiz by @inkskinned // Rora Blue, 'Sweet Dreams' // Hala Alyan, Dear Layal

[deadgirlinthepool]

I’m really glad I don’t have to be a victim to my illness/disability anymore with this new medication, but I’m feeling stuck in my day to day life.

the world wasn’t built for people like me, and everything is just a little bit tougher.

[may-or-may-not-be-me]

Parents when their adult offspring who's been chronically ill since mid-childhood is still chronically ill even on a family vacation: you are being so inconsiderate. How could you do this to us. You need to pull yourself together

[eclectic-ways]

They should publish books in this format.

FYI: There are apps and plug-ins of this Bionic Reading for Google Play, Chrome, Microsoft Edge (Internet Explorer), Firefox, iOS (Apple) and on WEB

[thelupuslady]

[jemineye]

for the record, disabled people don't have to automatically know their limits. we are allowed to push ourselves and learn our limitations. what is not allowed is able bodied or even other disabled people who think they know us tell us that we have to keep going. my disability and body are not science projects for anyone to play with.

[fallenstarcat]

“well it’s good your tests came back normal!”

no. it’s not.

a normal test result doesn’t mean i don’t have symptoms anymore. it just means we’re no closer to an explanation.

i’m still struggling. my symptoms are still getting worse. we just don’t know why, also meaning they don’t take me seriously.

a normal test result is not a a happy thing when disabled.

[crippledbanshee]

I fucking hate it when people say I'm going to be dependent on my mobility aids. Like, hell yes, I am dependent on them because I'm disabled and their function is to help me live better, I need these aids, they are not just ornaments.