#gluten intolerance

[talkethtothehandeth]

If you have celiac and buy the brand Van’s for their waffles, please know that 9 days ago there was a recall because some of the packages of the gluten free waffles may contain “undeclared” wheat. And if you have celiac, you know “may” might as well mean “does”.

This recall only applies to boxes with the matching lot codes and numbers, and do not pertain to other products that Van’s has to offer. These boxes were distributed in AZ, CA, FL, GA, IL, NC, & WA. Please check your boxes immediately to ensure your own safety and save yourself the painful reactions to gluten. It’s advised the purchased packages be either thrown out (or given to someone who can eat wheat so as not to waste it) or return the product to where you’ve purchased it from.

“The U.S. Food & Drug Administration website published the recall July 3. It applies to certain packs of Van's Gluten Free Original Waffles with lot code UW40193L, expiration date Jan. 19, 2024, and UPC 0 89947 30206 4. According to the Van's recall, some of the packs of waffles may contain undeclared wheat.”

[shiftythrifting]

Shifty Aches and Maladies collection!

[n4682]

shout out to the ace-spec/aro-spec people who are allergic to gluten and cant enjoy garlic bread

im wishing the best for yall

[crippleprophet]

still trying to sort through the layers of this ableism & antifatness but it’s particularly painful that society treats eating gluten-free as something rooted in a desire for weight loss when

i gained more weight in the year after figuring out i have celiac than any other year of my life

including going up two shirt sizes

& going from being read as (small)fat but not having any access issues around size separate from mobility aids to being outside the bounds of straight sizing

because my body can absorb nutrients now

& for most people who ‘need’ to be eating gluten-free, you will gain weight!! & we, including those of us who were already fat, should be given space to celebrate that!! hallelujah that my body is still here to grow!!

[rosethornewrites]

Mad right now.

In a fit of desperate longing for bread a few weeks back I consumed part of delicious loaves of stuffed bread. Like one was stuffed with Bavarian cream and drizzled with chocolate. The other was stuffed with 4 different cheeses and herbs. I figured surely it’s worth it.

It was not. The concrete it turned my digestive tract into was horrible and only finally do I maybe have it out of my system after weeks of pain.

So I went to the store today for gluten free bread, as I was out, because I wanted a sandwich. I got a loaf that sounded good, all ingredients I wanted, and made a roast beef and Swiss sandwich with mayo and spicy mustard. It was amazing and I was surprised it was gluten free. I decided to grab another piece, and then I saw the word “wheat.”

The loaf was labeled flourless, but the first ingredient was sprouted wheat. So not actually gluten free at all.

I almost started crying because I’ll get weeks of pain for this mistake. And I don’t have any gluten free bread for sandwiches on top of that.

I fucking hate this. I want a shot that will make it possible to eat bread.

[itsaspectrumcomic]

my mom thinks that diet will cure my audhd. she's putting me on a "special diet". is that a real thing because i don't think it is.

I can't speak for ADHD, but there is little to no scientific evidence that special diets can 'improve' autism, let alone 'cure' it.

There is some evidence to suggest autistic people are more likely to have an intolerance to gluten:

'A review by Valicenti-McDermott et al (2006) found that 70% of autistic children had gastrointestinal problems compared to 42% of children without a diagnosis of autism.' - Autism and gluten and casein-free diets from the National Autistic Society

so if you are actually gluten intolerant and you stop eating gluten you might feel better and have less stomach issues, but as far as I know there's not a direct correlation with autism, and being autistic does not mean you're also gluten intolerant.

Here are some articles and studies you might find helpful:

'National Institute for Health and Care Excellence (NICE) advises not to use exclusion diets such as gluten and casein-free diets as you may miss out on certain nutrients. In children this may lead to weight loss and affect their growth.' Autism and diet (bda.uk.com)

'...a review of data from 27 clinical trials...shows that there is little to no scientific evidence to support the bulk of these diets.' Analysis finds little evidence to support dietary interventions for autism | Spectrum | Autism Research News (spectrumnews.org)

Here's a link to the study the above article mentions

The best diet is a healthy balanced one with the right proportions and a good variety from all the food groups.

[byler-alarmist]

Europeans are the only ones who make gluten-free bread products that don't taste like they're punishing you for being born

[weebstr]

my therapist: your ocd tells you that there are millions of things that you can't see that will kill or harm you in some way but that isn't true

me: okay! thank you!

my doctor: celiacs makes it so that there are millions of things you cannot see that will harm you or could kill you BTW

me: 😟

[autie-j]

No mutual! Don't reblog the "reblog to give your mutual warm bread" post! I'm gluten intolerant! Aaaah!

[spaghettimakesflags]

Celiac Disease and Gluten Allergy Pride Flags!

[closetnerd62]

Hatchetfield headcanon of the day

Richie Lipschitz is gluten free.

[femmerose98]

I made my first ever loaf of bread - and it’s gluten free! I was eating a slice at midnight because it had finally cooled down enough 🤣😅 it’s sooo delicious!!! I haven’t been able to eat bread in months and I’m so so glad to make my own gluten free bread now!! 🥰🥰

[shiftythrifting]

Goofy ask but can the "i refuse to tolerate gluten" shirt come in black for my very goth mother? I totally understand if thats not a possible addition to the store

Your very goth mother is so valid. Variants added!

[myfirewillwarmthesun]

Yaaay my bloating is finally going down after ingesting too much gluten for the St. Patty's day.

[lastoneout]

It really is so fucking tragic that I, one of the few genuine oatmeal cookie enjoyers in the world, am am unable to have gluten. Like y'all can eat oatmeal cookies and you don't even appreciate them. And here I sit. Bereft of oatmeal. Empty and alone. What kind of nightmare hell world is this.

[crippleprophet]

[ID: the “wait, it’s all [blank]” meme of one astronaut pointing a gun at the other, edited to read “wait, it’s all celiac?” / “always has been.” with the word celiac in a groovy pink font. end ID]

happy celiac awareness month 💓🖤💓 folks expressed interest in my #Controversial Opinion, so here we go:

as someone who “has” non-celiac gluten intolerance, i don’t believe it exists.

this, as with all of my diagnostic opinions, is built from both health research & sociology, specifically the genealogy of (my) disabilities – how the labels we use & the divides we create between diagnoses are socially constructed. conditions don’t announce themselves as discrete entities; instead, labels are given based on, at best, current medical understandings of symptoms + clinical visualization measures (imaging, bloodwork, genetic testing, etc). conditions that were once considered two separate things may eventually be restructured under the same diagnostic label, & what was once considered one singular disease may be divided into separate categories, in response to new information or the new recognition / respect of existing information.

the issue with this system, though – with access to healthcare which is predicated upon diagnosis, which is itself predicated on checklists of symptoms & clinical visibility – is that we don’t know shit. our bodies are not required to present symptoms in accordance with the ICD 10, & chronic illnesses are very much an “ask four doctors, get five answers” situation.

for example: without any of my symptoms, imaging, or bloodwork changing, i’ve been diagnosed with active ankylosing spondylitis, ankylosing spondylitis that is in remission, fibromyalgia, & spondyloarthropathy. the only difference is the doctors: their belief or lack thereof in my symptoms, their familiarity with current research, & the diagnostic systems they abide by. under the NHS, it was definitionally impossible for me to have ankylosing spondylitis that was not visible on an MRI, therefore i must have been in remission, even as my symptoms were just as debilitating as before & treatable by immunosuppressants.

how this pertains to celiac: as with all chronic illnesses, symptoms of celiac disease are a broad spectrum. some people have severe growth impairment from a young age; others may only have minor skin manifestations. other common symptoms are vague & potentially attributable to any chronic illness, such as fatigue, depression, & gastrointestinal issues. crucially, though, damage to the small intestine is still occurring even in people with celiac who do not flare after consuming gluten.

following this,

the diagnosis of non-celiac gluten intolerance has nothing to do with symptom presentation or severity. it doesn’t even mean there is no clinically visible damage to the small intestine. rather, it just means you didn’t pass the test:

in my case, not only was the (notoriously unreliable) antibody blood test negative, but so were subsequent tests for the genetic markers associated with celiac.

two people with the same exact experiences can get put into two different boxes, solely based on bloodwork – but that’s not how genetics works. it’s pretty much impossible that only those two markers dictate whether or not someone has celiac, or any given disease, because genetics are infinitely more complex than that; equally, plenty of autoimmune disorders can have a genetic component but are not exclusively found in people with that particular marker (ankylosing spondylitis & HLA-B27, for example).

therefore, i firmly believe non-celiac gluten intolerance is celiac disease, just influenced by other genetic factors and/or antibodies we haven’t yet identified.

there are a whole host of issues created by the false divide of celiac vs non-celiac gluten intolerance, certainly including things i’ve never considered, but here are a few examples of what i refer to as diagnostic violence, the physical & social consequences of these forms of categorization:

celiac disease increases people’s risk for small bowel cancer. but if it’s been determined by the medical establishment that according to their criteria, you don’t have celiac disease, then you won’t receive cancer screening.

since a food intolerance is not considered an autoimmune disease, there is no medical evidence of an underlying cause of arthritis, for example, making it that much harder for people to receive diagnosis & treatment for autoimmune symptoms.

diagnostic paperwork & a letter from a doctor is almost always required to receive accommodations, & food-related accommodations are notoriously difficult to obtain at universities which require the purchase of a meal plan without sufficient gluten-free options, for example.

as a response to the dangerous ableism permeating societal attitudes toward gluten-free food, many people (diagnosed) with celiac fall back on communicating the seriousness of their needs at the expense of their undiagnosable peers. “it’s not just an intolerance!” i read over & over – never mind that gluten made me so sick i lost a significant amount of weight, my hair fell out, i had signs of multiple vitamin deficiencies, & i could only keep down liquids.

this is honestly the most blatant example i’ve come across of the complete arbitrariness of diagnostic categories, but it’s far from the only one, & i’d love to hear other folks’ controversial opinions – what physical disabilities do you tell people you have without a diagnosis? do you consider yourself to have that condition, or is this just for expediency of communication? how does your undiagnosability affect your interactions with community formed around that diagnosis?

your experiences are real, your symptoms are serious, & it is not your fault that white supremacy demands a categorizability which all bodies inherently fail. join the club – we’ve got plenty of gluten-free snacks. 💓🖤💓