#Crohn's&Colitis

[desultory-suggestions]

Sending love to everyone who has health issues or chronic pain in parts of your body that aren’t usually socially acceptable to talk about. It’s frustrating to feel like you can never explain your pain to someone because it’s TMI and to feel like you have to hide it. Your pain is nothing to be ashamed of. I see you, and I’m sending you support and strength.

[genderqueerdykes]

i just think it's bullshit that alternative meats, milks, eggs, breads, and other foods are prohibitively expensive. like i don't know how to tell people that not everyone who eats vegan or vegetarian is choosing to eat that way because of their moral beliefs- a lot of people are eating these foods because they have food allergies or intolerances, or have other gastrointestinal issues

i don't have a choice. it's downright cruel to make these different options more expensive. there is no one size fits all diet- every single person needs a unique diet and some folks literally have no choice but to utilize these substitutes. some vegetarians cant digest soy. some vegetarians can't eat beans. i also don't know how to tell you that not every vegetarian or vegan can ingest raw vegetables and fruits, or even cooked ones, for that matter

there are a LOT of health conditions like irritable bowel syndrome, gastroparesis, crohns disease, and other gastrointestinal issues that can cause a person to become very sick or even die if they ingest too much raw plant matter, especially vegetables high in fiber. when these fibers cannot be broken down by a person's digestive system, they can form blockages in the intestines and kill people. not every person on this planet benefits from eating a lot of leafy greans. some people are allergic to chlorophyll. some people are allergic to citric acid. diabetic people have to be careful with certain vegetables and fruits causing spikes or dips in blood sugar, and many people with diabetes end up with gastroparesis, or similar gut issues. there are a lot of reasons why people can't just switch to a diet of salads and fruit smoothies every day.

alternative foods need to be available to everyone, regardless of how much income they make. having safer alternative foods should not be relegated to the rich. these are not just being consumed by spiritual white moms on instagram. these foods need to be accessed by disabled people all over the world.

[thequietesthing]

the incredible harsh quiet revelation that you have when you are diagnosed with chronic illness(es) is that you will never be healthy again. I don't think able bodied people are able to understand what it means to just resign to the fact that your life is not just yours anymore. you share it with a weight that will be with you until you are gone from this world.

[arctic-hands]

[Image Description: the "not what I'm called" meme, showing Something, in this case the text "Crohn's disease/Ulcerative colitis", addressing two kids with the speech bubble "hey guys". In response, one of the kids points and excitedly says "Irritable Bowel Disease!", to which Crohn's disease/Ulcerative colitis replies in allcaps "Not what I'm called". End I.D]

Look I'm tired 😫

[ego94]

stop telling chronically ill people, “don’t let your illness define you.”

i’m not letting my illness do anything. i didn’t ask for my life to be like this.

it’s an unfair expectation to put upon me, to always be happy despite the pain i’m constantly in. let me have my bad days. having bad days does not mean i’m giving up.

[ulcerativecolitisd]

[princess-lvcifer]

Yesterday I went to bleach my hair for the first time and found out the hard way that you can't bleach your hair if you take very strong medication (and if you had a keratin treatment half a year ago, which in my case was both). I take 360mg of Risankizumab/Skirizi (for ulcerative colitis) every 8 weeks and the only side effect I notice is redness and itching in the area where I take it, on my thighs. (Luckily this medicine works as well as corticoids, and it's like the fifth biological medicine I've tried). My doctor didn't warn me that if I bleached my hair after a few minutes it would start to burn to the point that it would fall out, and unfortunately my hairdresser, seeing me so young, didn't think I was on such strong medication and didn't ask me. As it was the first time I bleached my hair I thought that the burning sensation was normal, and luckily the hairdresser looked at my hair before the time and was able to save part of the strand, and I have a lot of thick hair. I haven't seen any website that warns about this side effect either, so be careful.

I think it's obvious even in the pics that it is burned. I guess I'll have to try to hydrate it a lot. And I'll try to hide the split red strand with black dye, but next week because the hair needs a rest.

[boopsiesdaisies]

when you've never had a brat summer just the brat diet

banana. rice. apple. toast.

[ozzyonedge]

May 19th is World IBD Day.

IBD stands for Inflammatory Bowel Disease which are mainly Crohn's Disease (CD) and Ulcerative Colitis (UC)

Via Wikipedia:

Inflammatory bowel disease (IBD) is a group of inflammatory conditions of the colon and small intestine, with Crohn's disease and Ulcerative colitis (UC) being the principal types. Crohn's disease affects the small intestine and large intestine, as well as the mouth, esophagus, stomach and the anus, whereas UC primarily affects the colon and the rectum.

IBD is a complex disease which arises as a result of the interaction of environmental and genetic factors leading to immunological responses and inflammation in the intestine.

[gayautisticjewishtexts]

[hallmarkchrismasmovie]

so ive been having a flare up for 3 whole weeks now, symptoms include:

intense upper abdominal pain after eating

vomiting most solids*

intense back pain at the same height as the stomach pain but at different times

headaches

fevers

dizziness

fatigue

weight loss

*this has lessened since i went to the hospital a week ago and they gave me a new round of pantaparazole (which ive been on before because i have a gerd diagnosis)

ive had flare ups before with similar symptoms but this level of vomiting is new and its never gone on this long. the hospital confirmed its nothing viral and nothing super visible like a stomach bleed or something with my kidneys. does this seem familiar to anyone?

i should note that my doctor is adament its not crohns or colitis because of the stool tests shes done. ive had a colonoscopy, a gastroscopy, and a ct and the only thing they found was enlarged lymph nodes in my large intestine and acid reflux burns in my esophagus.

[copperkudzueye]

IBD is Like

“Holy fuck I am going to shit my pants”

“Wait false alarm

“DEAR LORD I WAS MISTAKEN HURRY HURRY”

But in a Walmart parking lot

[h-ypno]

Real things doctors have said to me this month.

[thatchronicfeeling]

Do you have (a) a bowel condition (diagnosed/undiagnosed) AND/OR (b) POTS and have you (c) tried compression garments/shapewear that go over your belly? If yes, has this ever upset your gut? Any thoughts / advice welcome! <3 Longer Version: I have Ulcerative Colitis and POTS. Over the past few months, I've been trying out various kinds of compression to see if that helps my POTS. Trying to work out what has caused my current gut upset. Wondering if it might be connected to the shapewear shorts I was wearing at the weekend? I've been trying out different kinds of compression. Below-the-knee socks'/stockings are helpful. Since I'd seen some folk recommend the socks + shapewear combination, I've been trying that out (it helps with POTS). Maybe there's a difference depending on the shapewear shorts, though? I made sure to get ones that I can easily slide/roll down to go to the toilet. (Two 'accidents' whilst hospitalised with Ulcerative Colitis aged 21 are more than I need in a lifetime.) So, while there is some compression, these are not the tightest shapewear that you can get. I've been trying out different brands. One pair I wore all day and had no apparent problems with them. Then, I tried a different pair, which I wore all day (~14hours). These ones have slightly stiffer fabric (they're probably a wee bit tighter too). After I took them off, I felt very bloated. Overnight my belly started to feel achy/tender and this continued all of the next day. In terms of sensation, this was the same kind of soreness after lots of diarrhoea, or a colonoscopy. But I hadn't had either of those. Today, my gut doesn't feel as tender, but I'm experiencing urgency. Could the shapewear shorts have caused this? (or is something else going wrong with my colitis that I need to work out?!) I know nobody can have a definitive answer to this, but if you have any similar experiences relating to shapewear/compression (or even a corset), I'd really appreciate hearing your perspective! <3

[mycptsdstory]

Found yet another diagnosis that can be caused by trauma;

Crohn's disease

Colitis

Funny how trauma can cause so many illnesses.

I know there's so many more, but still, trauma can do wonders to the body.