#and medical abuse

[bemamar]

I am sorry if this ignorant but in my country there’s a common belief that autistic adult people cannot develop adult brain, many times on TV they showed us these type of autistic people who their brain stop developing but after seeing so many autistic on social media I found out that I may had misinformation ever since I was a kid.. I could not found helpful articles because of the lack of awareness here so if it’s ok to ask you why do people share this kind of info and how true it is ?? Going through social media I came with the idea that there was some misunderstanding about this.

               Hey anon, glad you seem to be seeking information. That is... yeah. Definitely a no. There are of course, many other disorders that can happen  alongside autism, just as they can happen with non-autistic people, and those can be of course a challenge, but that doesn’t mean that is the reality of every autistic person, or that those people should be infantilized either. On the contrary, really.

Just to give you my personal experience, I grew up autistic and I didn’t even know it until one year ago, so that might tell you something. I’ve graduated highschool and I have a degree in Architecture and Urbanism. Nowadays I am an English teacher, and I also work with translation, design, publication and selling of books. A lot of autistic people work in very complex industries that take care of things such as infrastructure, health (like vaccines!), technological development, and so on. Others don’t. Others teach, others are amazing artists, others live an academic life, others like working with their hands. That doesn’t mean one is more developed than the other, we’re just different people with different interests, same as anyone. 

This is a very complex subject and I can give you two wonderful channels to get you started if you really want to learn more: Chloé Hayden and Paige Layle who have tons of research on those things.

From my own dedicated research, the central (summarized!!!) points I can give you are these: there are two main reasons (and a consequence), as of my understanding, for why people believe that autistics are only children, that we “disappear” when we grow up, or as you said, that we stay stuck in a childish mental age. 

The first one is that most referenced, known, and used studies for autism are still ones that were done decades ago. Back then, professionals thought only young male (white) boys could be autistic, so all of the stablished research for autism is based on how a very specific demographic could behave, or react, or present the disorder. So if we’re talking about a whole rainbow spectrum, we’ve only ever studied one shade of one color and one length of that color, and nothing else. That’s also the only image that’s ever been projected for people on media, so whenever anyone thinks autism, they think of the caricature of the young white boy who’s nerdy and quiet and lonely and prone to outbursts if upset. 

The second problem is that a LOT of the organizations who claim to study autism to help autistic people, are run by non autistics that have no interests in helping adult autistics, or listening to us, and actually just keep looking for ways to either get rid of it (which would be like trying to get rid of my bisexuality, or the color of my skin) OR they’re trying to identify all of the genetics so they can stop us from being born at all by identifying autism in the womb (eugenics).

The consequence of those things, and of the fact that many autistics have different ways of communicating (like non-verbal autistics, who would communicate via text or other means), means that the people who are actually represented when talking about autism are the non-autistic parents of autistic children. They are the ones the studies, the organizations, the aid etc are meant to help. The parents. And parents have to parent children, not adults. So any articles, any programs to help, any government aid, it’s all aimed at the parents, as though like I said, children grew out of their autism eventually (impossible), or as though, like you said, we didn’t grow up at all. There is a major focus on autism as a burden for the poor neurotypical parents who can’t understand their child, while ignoring the autistic person themselves.

Yes, there are many of us who have more special needs than others, and those should be respected, there are as I’ve said, co-conditions that can occur, there are a lot of us, as I’ve mentioned, that have difficulty speaking up or speaking verbally at all, but not being able to communicate what is on your mind in a way that is comfortable for non-autistic people doesn’t make your mind underdeveloped. It doesn’t mean you shouldn’t be listened to when decisions are made about your own life, it doesn’t mean you can’t accomplish whatever you want to do with accommodations, and it doesn’t mean you can’t understand the world around you or have amazing talents, or just want to sit on your couch and watch tv and have a regular job. 

We’re people of all kinds because we’re people. We have different needs, and only the people who have them can tell you about that, I could never speak for them, I can only speak of my own needs. But you can research more and learn the nuances I could never put into a singular answer. That’s the gist of it. I hope you do continue to learn! And I wish luck to autistics in your country, I’m sure there are many more of them than you imagine, and there must be communities over there too, because we exist all over the world, and we definitely don’t stop existing or become neurotypicals at 18 years old.

[genderkoolaid]

medical literature about intersex people be like "there are problems that can be caused by forcing surgery on babies. luckily we are solving this by forcing surgery on even younger babies. it is vital that this baby CANNOT be left alone to develop normally. here is our 36 step guide on which surgeries you should force on which babies. also some people have said that forcing surgeries on babies might be "harmful" so consider that too I guess"

[thebibliosphere]

Whenever I talk about the medical neglect and ableism I've encountered as a victim of the healthcare system, there's always some cockwaffle who feels entitled to come into my inbox and make the argument of "not all doctors" while talking about how "people like them" (because it's always someone in a field of medicine who does this) are doing their best and it's really hard because so many people fake being ill to get on welfare (Yikes), but like, yeah, obviously #not all doctors, because if all doctors were negligent, bullying scum bags, I'd be dead.

But here's the thing: while I truly believe that the majority of doctors are doing their best in a system stacked against them and their patients, their presence does not negate the mass harm caused by the bad ones. And there are far more bad ones than you realize.

Fuck, John Oliver literally did a segment on this last week:

Yes, the truly bad, malicious doctors are in the minority. Most are just horrifically burned out and fighting a losing battle against a system, killing both them and their patients through a lack of funding and resources and profound overwork.

But the malicious ones do exist, and they will go out of their way to harm patients who don't kowtow to them.

I almost lost my life because when I was in my early twenties, I told a doctor I didn't think she was listening to me, and I disagreed with her assessment of my mental health (she was not a mental health doctor, and I was there for heart palpitations and chronic pain). She retaliated by putting "non-compliant" in my file.

There was also a fun little "doesn't show respect" note too that lives rent-free in my head because I know I wasn't rude. I was polite. I just didn't agree with her, and my refusal to accept her off-handed comment that "you probably have bipolar or BPD" (again, I was there for heart palpitations and chronic pain) meant I was "refusing care."

I wasn't. I just refused to be slapped with a mood/personality disorder when I was there because I kept fucking fainting when I stood up.

(Spoiler alert: it was dysautonomia)

That "non-compliant" marker followed me around for years. It followed me across an ocean and effectively ensured that any doctor I saw was going to treat me like absolute dogshit because no one wants to help Difficult Patients. It wasn't until I was so undeniably ill, literally on the brink of death, that anyone helped me.

I'm alive because of a good doctor. And all the good ones that came after him because of him.

So, I know they exist. You don't have to tell me that.

But I really fucking need you to acknowledge the bad ones and that you're part of a system with a long, long history of abusing minorities and vulnerable people. I need you to acknowledge that because it's the only way we're going to survive this godforsaken nightmare and make things better.

So yeah, #notalldoctors, but if you feel the need to say that because someone talking about being literally left to die by the medical system hurts your feelings, I'm going to have to ask you to take a step back and ask yourself if you're going into medicine for the right reasons.

Namely: do you want to help people, even the "difficult" ones?

Even the ones who might disagree with you?

Even if they're on welfare?

Even if they'll never get "better" in a way that means "cured"?

Just a thought. But hey, what do I know. I'm just someone who experienced hemolytic anemia because doctors kept telling me I was anxious and needed to exercise more 🤷‍♀️.

[smoov-criminal]

i just rbed a post about something similar but. i need my white disabled to folks to be more aware of the privileges they have when navigating the healthcare system. every bit of medical ableism one can experience can be made even worse by being a poc. some of us can't threaten to report a doctor to the ethics board, or refuse care from healthcare workers who aren't masking, without jeopardizing our access to care in general or even our physical safety. we are more likely to be seen as drug seeking, or marked as noncompliant, or experience medical abuse and neglect. that's not to say these things don't happen to white disabled people, but i just think it's important to recognize how dangerous receiving medical care can be for disabled poc specifically. please keep this in mind when giving advice on navigating healthcare.

[intersectionalpraxis]

It's not "going to be a good outcome" if his patients don't "align with his values" -you mean people who don't align with your genocidal apologism and zionist terrorist agenda have the potential to be harmed during their surgeries??

That medical license needs to be revoked.

You can also report him here:

One of my friends is a nurse, and has had to treat people and work with staff who are racist pieces of shit, but she would be the one losing her job/be isolated if she tried to address it with her management team. Seeing zionists like him proudly say he would use his position of power to hurt and abuse people... just despicable.

Also update: to the recent anon who was berating me in my inbox for 'labeling him a zionist' I did a little more research on him, and this is my update for those interested in reading my follow-up.

He's pro-Israel and was in Jerusalem with his family when the October's 7th attack happened. Here is some more context:

[cistematicchaos]

Actually lol I think disabled people who've been abused/neglected by doctors/nurses should be allowed to be as pissed as they want about it and people who berate them for not understanding how hard being a doctor/nurse is or some such should literally shut the hell up. There is nothing immoral about being angry, especially about shit like this and if you think disabled people don't understand how hard capitalist systems can wear you down, well, you're not just mistaken but ignorant as fuck. 

[giritina]

(Edit: just to be clear I don't mean to emphasize this girl with the tattoo as the primary perpetrator if this stuff. Idk her story, it's in kind of bad taste but there's more to this than a tattoo)

I saw this great video discussing a critique of "lobotomycore"/"lobotomy chic" and the erasure of the racist history of lobotomies.

I can't add further on the subject of race, but as a person with schizotypal I did connect it with this image

(Source, though I have not verified it by sifting through the archive)

"Lobotomy chic" and the humor surrounding it is used so often by people who I've seen have zero empathy for schizophrenic people. For disables people generally.

Even just looking at how they treat an actual lobotomy victim, Rosemary Kennedy, even when she's that archetypical 40s white woman. Her disability is erased.

Here's a popular tiktok about her. No context, just images of her younger self and her older self. Simply "she was normal, glamorous, and then she became strange, disabled." Oftentimes, her intellectual disability is treated more as a conspiracy theory than a fact of her not receiving enough oxygen at birth. People are happy to relate to her as a ~poorly behaved woman~, but not as an intellectually disabled one.

It just reminds me how this has become a sort of coquetteish phrase and a universal joke that erases everything except the low support needs disabled white woman's experience. The idea that for your eccentricities, you'd be at risk. That you might be the only one at risk, so there's no need for solidarity with the intellectually disabled, the schizophrenic and psychotic, anyone with profound or uncomfortable disabilities. Times ten thousand if those disabled people are black. And god forbid they are disabled, black, AND homeless.

[crimeronan]

house md is wild cause it feels like in creating a show based on "irreverent doctor who is garbage, unlike the saint docs on all the boring medical soap operas rn" they completely accidentally created one of the most compelling and important concepts of all time, in "disabled chronic pain doctor distrusts medical institutions because of his experiences with addiction and disability, therefore he is constantly breaking the law and hospital administrative policy rules to get marginalized patients care that they would otherwise be denied, and the show uses this as a way to spotlight various forms of institutional patient inequity"

but BECAUSE the writers lucked into this concept by accident and have no idea WHY it's important, half of the show is Also "doctor commits constant heinous malpractice on vulnerable patients and treats them like shit and traumatizes them and this is considered a normal good protag thing to do because it will always be shown to be retroactively justified, because actually the patient always Was lying or being unreasonable, and this doctor is so so so smart and special that no rules ever apply to him, and no consequences will ever be shown" which is obviously. eaugh

so when it's good it's SO SO SO SO SO FUCKING GOOOOOD but it's also like. not something i can in good conscience recommend to Any other chronic illness people. u feel me.

[4spooniesupport]

[cemeterything]

Please in no way shape or form feel obligated to answer this but since I so rarely hear about MEDICAL abuse as opposed to, ya know, the more traditional verbal/physical type (tho I think that they often go hand-in-hand) and I want to compare experiences. Was your mom "always" alternative for EVERYONE or did she make exceptions for herself? For example my mom never got me vaccinated and, like yours, withheld all sorts of medication under the guise of "protecting" me but when she got diagnosed with a chronic illness she started taking whatever the doctors gave her under excuses of her pain being "unbearable" or HER doctor not being a quack like the others, etc. Honestly it's been 4 years since I've had any contact with my mom but what makes me the maddest looking back was her hypocrisy.

my mom is on the opposite end of the spectrum in that regard. she categorically refuses to participate in any medical treatment that conflicts with her personal principles, and claimed she would kill herself if she was faced with no choice but to be vaccinated during covid (needless to say i haven't told her i'm fully vaxxed), and i believe her, because once when she had a fever so high her body seized up and she went into shock she refused to let us take her to hospital and told me she'd never forgive me if i dialled for a doctor. the whole experience needless to say didn't make me trust her opinion more, and i'm aware of how ableist and dangerous her "if your body isn't strong enough to deal with its health issues naturally it's because you're doing something wrong" stance is. i'm really sorry your mom is such a hypocrite though, that's hellishly infuriating.

[genderkoolaid]

im being genuine but im an idiot so forgive me if asking this sucks, but for doing surgery on babies, aren’t those for when like the um. parts won’t function to keep the baby alive? that’s all i’ve heard of,, if they’re forcing cosmetic surgery to affirm the sex binary that’s so horrid, i don’t know how to think about it

Oh they are absolutely forcing cosmetic surgery on children to enforce the sex binary.

There are times where surgery on children is necessary for healthy functioning, but when talking about intersex children, surgeries are regularly done for no other reason than making the child "look normal." Medical literature regularly tells doctors it's vital to pick a sex & perform whatever surgeries they deem necessary to make the child's body fit that sex, often including forced HRT at puberty. They often argue that not forcing them into the sex binary could result in trauma– but that trauma only exists because they will live in an intersexist society that tells them they should be ashamed of their body. It's a real "being trans will make you depressed because of how I will treat you" type situation. & a lot of people are lied to about surgeries performed on them as children, because doctors tend to be weird about admitting that intersex variations exist & act like they are doing people a favor by not telling them.

That's why being against forced surgery is such a big part of intersex activism. If you want to know more check out advocacy groups like InterACT:

[thebibliosphere]

Remembering a 'fun' moment through the haze of drugs yesterday when I asked the nurse for something to brace my knees with because I could feel my hips starting to dislocate when they turned me onto my side.

The nurse, god love her, got down to my eye level on the gurney and very sweetly told me that when joints click, they're not actually dislocating, and it's just ligaments sliding over each other causing gas pockets to crackle and pop. This is true for most people and is actually what makes that satisfying crunch sound when you go see the chiropractor. So I knew right away she was thinking, "A chiropractor has told her this; this will be an Educational Moment."

Meanwhile, I was trying to figure out how to tell her I know this, and that's not what is happening as a teeth guard was being slipped between my teeth when my GI doctor went, "Did you not read the note I put in her file? She has EDS. When she says it's her joints, it's her joints. Listen to the patient!"

He then showed her how to hold my shoulders in place while he was doing the upper endoscopy exam so my shoulder wouldn't randomly slip out and make my chest muscles seize. As I was laying on my side and he was double checking my position he leaned in and let me know with a wink that he'd asked a physical therapist what to do and hopefully I wouldn't be in too much pain with my joints tomorrow. (I am not.)

He also brought an extra nurse in from the allergy department (Sam) to monitor for signs of anaphylaxis because, apparently, it looks different when the patient is sedated. The fact that I "woke up" from my sedation (I don't think I actually fell asleep) and gave him a thumbs up when he announced "excellent prep" to the room at large made some of the nurses flutter because they'd given me enough fentanyl to knock out a horse, but I have a vague memory of the allergy nurse and the GI doctor sharing a look over the top of my head before starting to talk to me in calm measured tones to let me know it was okay that I was awake, but I needed to stop moving. Was I in any pain? Could I squeeze Sam's hand once for no and twice for yes? Okay, good, we're almost done...

It was a weird but validating experience.

[neuroticboyfriend]

honestly you probably shouldn't go into the medical profession if you aren't prepared to treat patients with dignity and respect - even if your job exploits you, even if your bosses suck, even if you're exhausted.

yes, you are allowed to have feelings and be tired. but you have to be willing and able to either admit when you can't do something (and take the consequences), or put how you feel aside and do your job. for the sake of your patient.

you and your job may be harmed by the medical industrial complex's wrongness, but to your patients, you are part of the complex that is also gravely failing them. you have the power to be a force of goodwill and care, or an instrument of oppression.

that is what you're signing up for when you become a medical professional. don't like it? don't become a medical professional.

[intersectionalpraxis]

This is what Farouq looks like after severe medical neglect. This is when he reunited with his family. He is severely ill:

Palestine Captives on X, shared some of his story.

⚠️tw: torture, medical abuse and neglect, solitary confinement⚠️

As someone pointed this out already -Western media will STILL paint the IOF as a 'democracy.' This is beyond evil and inhumane. I hope for Farouk's recovery, and for ALL Palestinian prisoners to be released.

UPDATE! For those reading this on or after January 6th, -Farouk received his first round of chemotherapy. I hope the best for Farouk ❤️

[yuridovewing]

i really hate how the fandom’s excuse for jayfeather’s shitty behavior (and outright medical malpractice in certain cases. looking at the time he refused to help squilf in labour bc he couldnt be bothered and later blamed her for how bad it was) is “well the clan was ableist to him growing up, so fuck them!” ok how does that excuse him screaming at and berating the cats that didnt do any of that. or the babies.

[nerves-nebula]

dream i had. the rest was too meandering and complicated but i really liked this part of it. what ended up happening is that a bunch of people's heads got swapped and this angler fish's memories belong to an evil scientist/doctor.