Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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okay but a like post-series fic i want that's like: steve harrington being the only man left in hawkins fighting monsters
and not like a 'everyone died, last man standing' way but just. they beat it back, the story ends, nice little tie-up and neatly concluded, eleven loses her powers because their world is completely cut from the other. and life goes on. eddie (yes, eddie lives au don't fight me) goes off with his band, robin-nancy-jargyle off to separate cities for college. the kids go to high school, graduate high school, and scatter across the country. joyce and hop buy a beach house far-far-far away from goddamn hawkins indiana.
steve though. steve stays. he does it too without comment, takes all their calls telling him all these amazing things. the years pass. the calls are fewer and far between. he's mostly in contact with only dustin and robin. except robin's out of country doing some crazy temp job in some remote country, she never catches him at home right now so just leaves him messages. and it takes a couple of weeks for dustin to realize he hasn't gotten steve on the phone.
frantically he calls around "have you heard from steve???" except the most people talk to steve anymore is like phone calls during holidays and holy shit what could have happened??
and what if it's back?
cue everyone who can in that moment, rushing back. eddie hopping on a flight from fucking london direct to indianapolis somehow, heart in his throat. he manages to meet hopper in the airport and they pick up max and dustin at the bus station.
they get to hawkins that is even more different that what they left. a smaller town, a town that shuts down completely when the sun sets. it's creepy and deserted.
except for the fucking upside down monsters of course.
and they're in their stupid little rental in front of this demogorgon and they're screaming but then the thing just goes splat on the concrete and steve fucking harrington is blinking owlishly at them.
"Oh, hey guys!" he calls jogging up to the driver's side window. "Wow, what brought you back down this way? You should have told me, I would have told you about the curfew!"
turns out steve just forgot to pay his phone bill that month, didn't even realize he was missing calls and he's been fighting monsters the entire time because actually they WEREN'T cut off from the upside down at all and he's just been casually fighting monsters for the remaining hawkins residence—the whole town knows now and steve's the guy you call when you have a monster problem
sidebar: WAYNE still lives in hawkins, and he and steve are best friends, eddie munson you are gonna LOSE YOUR MIND
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