#fibro stuff

[chronically-izzzzle]

These cordless heating pads from Amazon have been a LIFESAVER! $20 bucks (so not super cheap) but you can wear them to sleep or I wear them to class and OMG I do not know how I have functioned without them! The slightly upgraded model has a vibration mode that is super helpful for circulation and if you have issues with IBS too! ❤️❤️❤️

[chronically-izzzzle]

Brain fog be like…

Me

[kittycommitte]

@spoonie-living

[rhiandoesfandom]

Fibromyalgia is so ridiculous.

What do you mean the name just means "muscle hurt"

What do you mean the pain is worse when it rains

What do you mean its a whole body systematic thing that half of doctors think is make believe.

What do you mean my body is so tired I could sleep for ten years.

[insidestory1]

Getting used to thinking of myself as disabled is wierd. I've had awful health problems for a long time. I've always struggled with executive functioning and with handling life in ways that other people don't. But up until I got diagnosed with autism and fibromyalgia, I always thought of my struggles as just me being bad at life. Me not dealing with life like I should. I blamed myself for it.

Then suddenly I got those dianoses and realised that I counted as someone with disabilities. For the first time in my life, I was being told that there was a reason I was struggling. That I deserved to have that aknowledged. That I deserved support. I still find it hard to get my head around, and I still get imposter syndrome sometimes. Like, there are people out there who have to take fifty kinds of medication everyday, or who can't get around without a wheelchair. Am I sure I'm not just making a fuss about nothing? Getting used to feeling I have the right to apply the term "disabled" to myself and to validate my own struggles is still a work in progress. But I'm getting better at it, and things are slowly moving away from the days when I would constantly blame myself for things I couldn't help.

[simplepotatofarmer]

current chick update:

there's a total of nine chicks hatched! we've got a bunch of polish, one mosaic, and three easter eggers (one fibro).

there's about nine more eggs pipped and since i'm doing a split hatch (by one day so it literally didn't effect anything), there's some eggs that won't pip until tomorrow.

like, i know there were 39 live eggs at lockdown but that humidity drop was bad so i don't know exactly how the rest are going to go.

but i'll be honest, after that humidity drop, i really didn't expect any of them to hatch so i'm already doing better than i thought and i'm already so in love with them.

[afniel]

I miscounted how much of my fibro med I had left.

It's compounded. It'll be a few days before it gets to the pharmacy.

It also costs more than twice what it used to, despite being about 25 cents' worth of a staggeringly common medication.

I've been off it for going on three days now and I was okay days one and two but today...is not great. I haven't had this much vertigo in a very long time and I'm too tired to do much. Showering sitting down and then crossing the street for breakfast pretty much wiped me out.

Bluuuuhhh. I keep telling myself hey, at least it's a tolerance reset, I'm gonna feel SO great when I do finally get it refilled...but that's not much comfort right now while I'm tired enough that even my ADHD meds are just making me yawn instead of waking me up at all.

[creekfiend]

ppl who have used T in topical gel form, how many days of application did it take before u started feeling/seeing changes?

ETA: specifically low dose T, specifically looking at stuff relating to chronic illness & pain but anything else is fine data too

[homesickwings]

Maybe I have chronic pain because I'm meant to fly, not walk or use my muscles too much 🧐🧐 think about it. I'm a being of light and I'm literally supposed to float. What if this body is just too heavy

[facingfibro]

some days are days that feel like I can’t take another step and that moving forward isn’t apart of my vocabulary.

it feels as if no matter what I do I find zero joy and satisfaction from it. if anything I feel more exhausted and overwhelmed after doing anything.

I used to have dreams and goals and have things that made me feel relaxed and satisfied. like the morning rain or the sun pouring in through the sunroof, a good song on a beautiful warm day, my dog cuddled up to me, my favourite meal hot on the stove, a coffee from the best coffee shop. now those things just make me feel nothing. of course I am grateful for everything I have and everything I am able to receive and afford. but these things don’t provide me with any sense of happiness or satisfaction. just numbness.

I think of the time I could be spending doing other things more productive. I think of the money I could be saving. I think of the money I could be making. I think of how my house could be cleaner, more organized.

my mind wanders to places that are impossible to relax.

[chronically-izzzzle]

[kittycommitte]

[rhiandoesfandom]

"at least it's not a disease that progresses"

I'm sorry, actually, I'm not. What the fuck kind of 'encouragement' is that?

Not to mention I'm already in an immense amount of pain from my CHRONIC PAIN SYNDROME that is literally designed to just give me pain.

"oh but it's not actually damaging your muscles and joints"

Fuck off. Fuck all the way off. I am in pain ALL OF THE TIME. And that is valid damnit.

[xxpunkbovidxx]

I believe having a cane has improved my quality of life by miles already and I've only had it for a day or two, who knows what a wheelchair would do for me

I may have to graduate from a cane to forearm crutches though, I put too much weight on it

[simplepotatofarmer]

WHOA!!!!

f2 fibro EE alert!!!

[brother-genitivi]

just a little fibro thing that's making me sit in my feelings is that people really don't realise a walking stick makes you walk significantly slower than their walking pace. or that asking if I'm okay (which I appreciate) every 2 minutes when I look like I'm in pain (I am) isn't always going to be met with an optimistic answer. because yeah, I am in pain! at any time of the day it's a 5 or a 6, and at night it's a 6 or 7. and it makes me angry and sad and sometimes, I think, incredibly unlikeable. I'm so envious of everyone who can walk without wanting to scream at their hips or knees or that specific point where your foot connects to your ankle and I don't want to be. my best friend waits for me, walks at my pace, gives me time when I'm in pain, but not everyone's like him and neither can I or would I expect them to, at all. just makes me feel a little lonely watching everyone else walk off together while I'm stuck behind hobbling 😭 but alas, that's life