Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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you were raised in comparison.
it wasn't always obvious (well. except for the times that it was), but you internalized it young. you had to eat what you didn't like, other people are going hungry, and you should be grateful. you had to suck it up and walk on the twisted ankle, it wasn't broken, you were just being a baby. you were never actually suffering, people obviously had it worse than you did.
you had a roof over your head - imagine! with the way you behaved, with how you talked back to your parents? you're lucky they didn't kick you out on your ass. they had friends who had to deal with that. hell, you have friends who had to deal with that. and how dare you imply your father isn't there for you - just because he doesn't ever actually talk to you and just because he's completely emotionally checked out of your life doesn't mean you're not fucking lucky. think about your cousins, who don't even get to speak to their dad. so what if yours has a mean streak; is aggressive and rude. at least you have a father to be rude to you.
you really think you're hurting? you were raised in a home! you had access to clean water! you never so much as came close to experiencing a real problem. sure, okay. you have this "mental illness" thing, but teenagers are always depressed, right. it's a phase, you'll move on with your life.
what do you mean you feel burnt out at work. what do you mean you mean you never "formed healthy coping mechanisms?" we raised you better than that. you were supposed to just shoulder through things. to hold yourself to high expectations. "burning out" is for people with real jobs and real stress. burnout is for people who have sick kids and people who have high-paying jobs and people who are actually experiencing something difficult. recently you almost cried because you couldn't find your fucking car keys. you just have lost your sense of gratitude, and honestly, we're kind of hurt. we tell you we love you, isn't that enough? if you want us to stick around, you need to be better about proving it. you need to shut up about how your mental health is ruined.
it could be worse! what if you were actually experiencing executive dysfunction. if you were really actually sick, would you even be able to look at things on the internet about it? you just spend too much time on webMD. you just like to freak yourself out and feel like you belong to something. you just like playing the victim. this is always how you have been - you've always been so fucking dramatic. you have no idea how good you have it - you're too fucking sensitive.
you were like, maybe too good of a kid. unwilling to make a real fuss. and the whole time - the little points, the little validations - they went unnoticed. it isn't that you were looking for love, specifically - more like you'd just wanted any one person to actually listen. that was all you'd really need. you just needed to be witnessed. it wasn't that you couldn't withstand the burden, but you did want to know that anyone was watching. these days, you are so accustomed to the idea of comparison - you don't even think you belong in your own communities. someone always fits better than you do. you're always the outlier. they made these places safe, and then you go in, and you are just not... quite the same way that would actually-fit.
you watch the little white ocean of your numbness lap at your ankles. the tide has been coming in for a while, you need to do something about it. what you want to do is take a nap. what you want to do is develop some kind of time machine - it's not like you want your life to stop, not completely, but it would really nice if you could just get everything to freeze, just for a little while, just until you're finished resting. but at least you're not the worst you've been. at least you have anything. you're so fucking lucky. do you have any concept of the amount of global suffering?
a little ant dies at the side of your kitchen sink. you look at its strange chitinous body and think - if you could just somehow convince yourself it is enough, it will finally be enough and you can be happy. no changes will have to be made. you just need to remember what you could lose. what is still precious to you.
you can't stop staring at the ant. you could be an ant instead of a person, that is how lucky you are. it's just - you didn't know the name of the ant, did you. it's just - ants spend their whole life working, and never complain. never pull the car over to weep.
it's just - when it died, it curled up into a tight little ball.
something kind of uncomfortable: you do that when you sleep.
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Unpleasant Revelations - DPxDC Ficlet Idea for the Stillborn Au
"Have you met my youngest, Damian, Mr. Masters?"
Its only from twenty years of long, hard experience and practice that Vlad doesn't increase the room temperature from 'borderline uncomfortably cool' to 'unbearably hot' the moment Bruce Wayne pulls his youngest and "only" biological son out in front of him.
He puts only in quotations because twelve year old Damian Wayne looks scarily, uncannily like one Daniel Brown. Jack and Maddie's foster son, second victim of their foolishness, and only other halfa in existence. Second only to him.
It's nauseating how similar they look. From the scowl and terrible glare on the young boy's face, to his brown skin -- which was only a few shades lighter than Daniel's, the shape of his nose, and even the strange winged edge of his eyebrow. Something that Vlad has long since come to find endearing on the child he considered a son of his own. The only difference was that Damian had dark, sharp green eyes.
Daniel's eyes were blue. The same glacier shade as his father's, who stood behind Damian with a proud, oafish smile on his visage.
It was infuriating how similar they look. Vlad might not have rapidly swung the room temperature from one extreme to the other, but he can't stop himself from letting the fury burning within his core from slipping out and raising the temperature up a few degrees.
Because it really only meant one thing.
Damian Wayne and Daniel Brown were related.
Damian Wayne and Daniel Brown were brothers.
Standing in front of him, it was clear as day. He can already picture a phantom image of Daniel standing beside Damian, the same scowl written on his face, the same glare carved into his eyes. The only difference being the dark, exhausted circles beneath them that seemed to be permanently painted onto his skin. The only thing missing being the permanent loneliness and vigilance permeating his being like a scar.
This, if revealed, would be enough to ruin Bruce Wayne's reputation. Or, at the very least, darken it quite a bit. The great philanthropist Bruce Wayne with another secret blood child? One related to his youngest? One that had been put into foster care? Seemingly thrown away?
It would be a firestorm.
One that Vlad is not keen on starting.
It would ruin Bruce Wayne's reputation, yes. But it would hurt Daniel in the process -- the harassment he would face alone might just be enough to break that fragile child completely. That was just not something he could allow. Or, even worse, bring him into his biological father's care and custody -- something Vlad was even less willing to allow.
It's not out of kindness to Wayne that Vlad will keep mum about this.
His grip on his champagne flute tightens, just a bit. He's still aware enough of the world around him to not let it shatter in his hands. His plastered, pleasant smile tightens around the corners, and he forces his focus to slide from Damian to Wayne.
"The resemblance is uncanny, Mister Wayne." He says, slanting his smile to the side slyly. Although he's not talking about the resemblance between Wayne and his son. Rage simmers beneath his skin, burning coal and embers in the core of his chest, nestled between his lungs, as he meets the man's eyes.
Wayne swaggles his head proudly, his ditzy smile widening as he squeezes his son's shoulder affectionately. Bastard, Vlad wants to spit.
He breathes in through his nose, and exhales out through his mouth. The champagne in his hand cools, and stops its unusual bubbling.
The Damian boy scoffs under his breath, his mouth still coiled upward into a scowl. With the revelation of his blood relation to Daniel evident, Vlad's not sure if he should find it endearing or not.
He is not Daniel, so he decides that it's just simply irritating. He decides to ignore it.
"And you said he was your only biological son?" He asks, voice lilting and head tilting. He knows its a suspicious question at worst, insulting at best. But considering Wayne's past proclivities, he can hardly call it an unexpected question.
Damian puffs in great offense, face twisting angrily. It reminds him of Daniel when Vlad insisted that he was wrong about something or other, and for a moment his heart swells, fond.
But this is not his child, and so the feeling quickly crashes and burns, simmering back into rage. This was not Daniel -- this was his replacement. A replacement that Wayne was free to keep.
Wayne chuckles, idiotically, as if he'd said some funny joke. Vlad's other hand, the one gripping his cane -- something he's required ever since he was dispatched from the hospital all those lonely years ago -- tightens instead. He grinds his teeth -- him and Jack Fenton would get along like a house on fire, he hates it.
"I can understand why you'd ask that, Mister Masters," Wayne says, squeezing Damian's shoulder again, "but yes, Damian is my only biological son. Although that doesn't mean I don't love my other children any less."
Bastard.
For all his posturing and flouncing about caring for his city and his children, Vlad never would have thought the Prince of Gotham capable of abandoning one of them.
But, well.
They all have their dark secrets.
And what one man throws away, another man picks up. If Bruce Wayne didn't want the treasure child that was Daniel Brown, then Vlad Masters was more than happy to take him instead.
"I see."
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