#disabled struggles

[fallenstarcat]

sure there’s a ramp, but is it steep? is there a curb at the top? is the ground uneven? do i need a key for the elevator? are the aisles and doorways wide enough? do i have room to turn? is there furniture and clutter in my way? is the carpet difficult to wheel on? can i open the doors myself?

accessibility to wheelchairs is more than just a ramp.

[tucknroll]

when i say “life is such a pain,” i don’t mean it in a nondisabled ‘something unfortunate’ happened way but in i am disabled and i am in so much pain.

[chuchu-sammika]

I am one lucky prick. But at what what cost?

When I turned 13, all that happened was that I lost more mobility.

Merosin Muscular Dystrophy is the type of muscular dystrophy that I have. It is an autosomal recessive form of muscular dystrophy characterized by muscle weakness apparent at birth or in the first 6 months of life. Patients show hypotonia, poor suck and cry, and delayed motor development; most never achieve independent ambulation.

[wizario11]

Something that I noticed is that as my disability started to impact my life much more and effected my ability to take showers more than once a week, if that I started to get more into make up and skin care and the such.

Even though half of the time I don't have the energy for it, it's nice when I look at myself in the mirror and I don't look like how I feel.

It makes me feel like a teenager again lol.

[beepboopiloveyou]

"In my opinion, adapting in the age of AI means finding what makes us human and leaning into it," says Silver. "Artists have learned that skill is what matters, and while admirable, skill has been king for millennia. There’s room for new perspectives."

Perhaps our focus on the value of time-consuming labor and a high degree of artistic skill unduly keeps people from expressing themselves, she wonders. "Art isn’t about skill for me. It’s about emotion, imagination, meaning—the things that make us human," she says. "Is a future where we value those things over technical ability really so terrible? Given an infinite answer machine, those with the imagination and discernment to ask the right questions will succeed. With AI, taste is the new skill."

— Ars Technica article featuring Claire Silver

[mainlysarcastic]

I still hate that in 9th grade English I got points taken off a speech because I was rocking back and forth/ shifting from leg to leg during the speech

Like.. I have chronic Lyme causing chronic joint pain

I physically cannot just stand still without being in extra pain

Why the fuck is standing perfectly still necessary for giving a speech???

[coffinofconfections]

It seriously sucks when you can't even afford to eat because you're disabled. The last bits of food I have at the end of the month aren't enjoyable, it's just solely to keep me alive and I'm losing weight because of it. I'm tired of living like this. I'm too ashamed to keep asking people for money every month. I worry about becoming annoying, or coming off as a leech.

The only food banks in my area I qualify for are run by catholic and christian churches. I've got religious trauma, I refuse to accept help from a fucked up institution that funds orgs that actively want to erase trans people like me.

My books aren't making much money either. When you self-publish, you get paid two months out, and even then, your books make like $1 or $3 a piece. And I don't have the following to make enough money no matter how hard I've worked over the past several years.

I'm drained. I'm going hungry. I feel like I'm giving it all I've got but I'm failing. Will I ever succeed and get out of poverty?

[inkskinned]

love when men cry about body hair bc "it's hygiene" and yet 15% of cis men leave the bathroom without washing their hands at all and an additional 35% only just wet their hands without using soap. that is nearly half of all men. that means statistically you have probably shaken hands with or been in direct contact with one of these people.

love when men say that women "only want money" when it turns out that even in equal-earning homes, women are actually adding caregiver burdens and housework from previous years, whereas men have been expanding leisure time and hobbies. in equal-earning households, men spend an average of 3.5 hours extra in leisure time per week, which is 182 hours per year - a little over a week of paid vacation time that the other partner does not receive. kinda sounds like he wants her money.

love that men have decided women are frail and weak and annoying when we scream in surprise but it turns out it's actually women who are more reliable in an emergency because men need to be convinced to actually take action and respond to the threat. like, actually, for-real: men experience such a strong sense of pride about their pre-supposed abilities that it gets them and their families killed. they are so used to dismissing women that it literally kills them.

love it. told my father this and he said there's lies, damned lies, and statistics. a year ago i tried to get him to evacuate the house during a flash flood. he ignored me and got injured. he has told me, laughing, that he never washes his hands. he has said in the last week that women are just happier when we're cooking or cleaning.

maybe i'm overly nostalgic. but it didn't used to feel so fucking bleak. it used to feel like at least a little shameful to consider women to be sheep. it just feels like the earth is round and we are still having conversations about it being flat - except these conversations are about the most obvious forms of patriarchy. like, we know about this stuff. we've known since well before the 50's.

recently andrew tate tried to justify cheating on his partner as being the "male prerogative." i don't know what the prerogative for the rest of us would be. just sitting at home, watching the slow erosion of our humanity.

[hussyknee]

my disabled ass, after (1)good day: "obviously I am cured. in fact it may have all been in my head. who can say? now to rejoin society!"

me, the next day: "it has come to my attention that i may be chronically ill."

[airagorncharda]

Heads up: If you consistently CANNOT do tasks unless they are at the “Must Happen Right Now” stage, then you have a disability. 

Most people CHOOSE to put stuff off sometimes, but abled people do not consistently feel UNABLE to complete tasks without threat of consequence.

Maybe it’s an executive dysfunction issue, maybe it’s fatigue, maybe it’s chronic pain-- doesn’t matter why, what matters is acknowledging it so that you can move forward. Reach out to resources that are there to help disabled people! Ask for accommodations! They’re there FOR YOU, BECAUSE YOU NEED THEM! Understanding and accepting that you have the limitations you have, and learning what can be done about them, will lead to a much more fulfilling life which you absolutely deserve. 

[fallenstarcat]

here’s your reminder to not stare and point at people in wheelchairs??? cause apparently that’s needed

[tucknroll]

only i am allowed to be upset about being disabled. not the people who refused to believe i was. not the people who refused to accommodate me. not the people who chose to forget to make it easier for themselves. not the people who got rid of accommodations because they were getting in their way. not them, me.

[chuchu-sammika]

Being with my disability and being transfem at the same time sucks because I can’t go outside to change my hair or buy makeup or make myself look pretty in general as easily as others can do it

Some people are lucky to get outside easily. Another thing is that, I’ve been wanting to get a scene/emo haircut because I’ve been wanting to join that community and find more friends, and jam out to the music. Plus I think that community is a good fit for me. But I literally can’t because no one can help me go outside to a hair salon. I’m just stuck in bed most of the time, everyone is busy.

Also I’m not saying that my life is worse than others (which btw, I’m tired of people assuming that’s what I’m trying to say /srs) I’m just saying how I just don’t like my life.

[turns-out-its-adhd]

[saturnsocoolioyep]

In the same vein as "I've been taking my medication for long enough that I haven't experienced any symptoms in a while, I must not need to take it anymore! (Spoiler alert: the meds are why you haven't had symptoms)" I present to you a similarly clownish thought process- "I haven't experienced that trigger in a long time, maybe I was just exaggerating how bad it was and it'll be fine to engage with this! (Spoiler alert: take a fucking guess babes)"

[purpleflameb0i]

Shout-out to all the teachers that allow neurodivergent kids to use their tools during class; whether it be during a class lecture, taking notes, work, etc.

Y'all are amazing