#undiagnosed disability

[appoxy-is-tired-and-in-pain]

when a disability fucks up one year (without accounting for the lost years because of degrading health) of your life before you can even get a diagnosis and that for that year "you're not disabled enough"

once again No diagnosis ≠ No symptoms/illness/disability/...

[painfordays]

I need need NEED ablebodied people to stop bringing up deconditioning (especially in an accusatory tone) every time a disabled person talks about being unable to move much unless they're willing to do the fucking daily PT exercises with us at home. Or is that too much of an inconvenience? Hm?

[melodymorningdew]

Imposter syndrome is a bench

Image description: drawing of a nondescript person with a tired/unimpressed expression on their face right next to a drawing of someone vibrating with excitement

Caption:

Me: "I must be faking my illness. I went on a walk yesterday."

Also me: "MY WALKER AND SHOWER CHAIR ARE ON THEIR WAY"

[eclipse15]

“Does it hurt when you-“ It hurts when I wake up in the morning and when I walk and when I sit and when I lie down and when I go to bed and when I eat and when I drink and when I breathe and when I blink and

[tumble-tv]

A struggle that's not talked about enough with chronic pain: wanting to sit a certain way (ex: criss cross applesauce, knees up to chest, on knees) but not being able to because of the pain and having to keep your legs straight out

[chronicsymptomsyndrome]

As a kid my family used to make fun of me for stuff that is apparently exclusively reserved for “old people” like rolling across the room in a rolly chair to grab something (instead of getting up and taking three steps) or sitting down at a table to do quick food prep like cut fruit or scramble an egg (instead of just standing at the counter for 90 seconds) TURNS OUT what they called laziness was just disability all along haha TURNS OUT I just needed a mobility aid yet here I am today still without one because they gaslit me into believing I was “just lazy” and it took me decades to finally understand that’s not true. haha who knew

[wizario11]

TW: ableism

For all my non disabled people (and disabled people too)

If you think calling out that wheelchair user for moving their legs, calling out the person who uses a aac device for talking, the blind person for look at you when you talk, the mentally ill person for “not seeming mentally Ill”, etc

Guess what…

You just did some ableist behavior

There is no one way to act disabled, mentally Ill, chronically ill, neurodivergent, etc.

Disabilities fluctuate

Not everyone has the same symptoms

Fake claiming is not protecting "real disabled people"

It's harming us.

[dizzy-pops]

Surprise, surprise, they’re trying to dismiss my disability as “anxiety.” Like bitch, I’m anxious BECAUSE of my physical symptoms, not the other way around. And yes, I know that mental health correlates to your physical health, but if that’s the case FOR ME, why would my physical symptoms only start AFTER I started getting mentally BETTER?? It just doesn’t line up, and if you fucking listened, you would know that.

[kingofpeacows]

Finally having a doctor that listens to me and doesn't dismiss my chronic pain or try to tell me I'm fine and will grow out of it??

BASIC HUMAN RESPECT RECIEVED!!!!!!

[painfordays]

Conversations with abled people

If you stay with a doctor who doesnt do anything to diagnose you it's your own fault you're not getting help. If you go to different doctors until you find one that takes you seriously you're doctor shopping and any diagnosis you get as a result of this is invalid and fake and you're making everything up and dont deserve treatment. If you cant be bothered to bring up your symptoms anymore with doctors who have routinely dismissed you / told you to just lose weight / exercise and refuse testing you it's your own fault for not putting in more effort. If you go see the doctor(s) constantly until they might finally figure out what's wrong with you you're taking up resources / time of their day you dont deserve and also any diagnosis you get as a result is not valid because if it was real they would've diagnosed it earlier. You cant fucking win

[melodymorningdew]

I cannot fight for my health and fight the world at the same f**king time.

[foxless]

my brain once again trying to convince me im faking & dont need to use my cane while i am literally in pain and wishing i was using my cane…

pretty gif to feel better

[barelyfunctioning-amber]

I am often surprised at how many things I thought were "normal" about me are just... part of my disabilities, both physical and mental ones.

I found out a lot about myself this year.

I think the cane I finally got is well-deserved, because of my disabilities that with my two infections got much worse over the span of three months or so.

I did this for myself and for my own health, so I wouldn't have to worry myself so much every day at home or on my travels.

I'm learning to overcome my fight with inner ableism and the thoughts that were engraved into me by abled people who never really cared too look into my conditions at all.

I thought I wasn't disabled enough, and then I had my fainting experience after I've suffered through intense head spinning and nausea. At first I thought "I must be overreacting, it's not that bad." and then I realized wait a minute it is really that bad.

I found out that all these little things my body does are actually part of my disabilities.

As much as I force myself to be as abled as possible, I've accepted the fact that I am disabled (physically and mentally) and chronically ill.

That's it. That's my little journey.

(This post is about both physical and mental disabilities)

(This post is safe for undiagnosed and self diagnosed people, as well as diagnosed ones)

-Amber (any pronouns)

(Read my byi and dni before interacting with my posts, thank you!)

[yrfemmehusband]

"it's just your anxiety/depression." No, and I can prove that.

At the start of my second diagnosis journey, I was well aware that my doctors would be happy to blame all my symptoms on anxiety, depression, and PTSD. so, I asked my psychiatrist to evaluate me again to confirm my symptoms are unrelated to mental health (as unrelated as they can be when your debilitating pain causes depression), and he wrote me a doctors note stating that for me.

I really highly recommend this to anyone on their diagnosis journey, even if you don't use it it's amazing to ease your medical anxiety. And if your doctor does suspect they interact, you have grounds for a psychosomatic DX/treatment, and if the treatment doesn't work you can suggest you've already tried the psychosomatic route and that you want to exhaust all diagnostic and treatment options.

Bit of a ramble, but I truly think everyone should do this!

[countfagula]

Never read your clinical notes because I did and just found out how transphobic my cardiologist is.

[wizario11]

If we want change in the disability community we need to stop with the Gate keeping, the gaslighting, and the belittling

You can't fight for disability rights while still being an ableist, especially when so many of us have multiple disabilities.

Fighting for rights for physically disabled people but then being ableist towards mentally disabled people and vice versa is just going against and back firing on our own community.

(I had to edit this a couple times since before it was worded very poorly. Thank you for being patient with me.)