#community advocacy

[wormonastringtheory]

Hey y'all, this fundraiser only has 8% of its goal, please please help them out. I'll do a drawing via mail (US/Can only) if you do!!!

https://www.justgiving.com/crowdfunding/FamilyRasha?utm_term=QJbJMJrJW

[haveacupofjohanny]

Selena Quintanilla: Beyond the Public Persona

Unveiling the Selena You Never Knew: A Look Beyond the Stardom Selena Quintanilla remains an icon, a woman who painted her dreams not only in the rhythm of Tejano music but also in the hearts of those she touched. #fridayfeature

Few names shine as brightly in the sweeping landscape of Latin music as Selena Quintanilla’s. Known mononymously as Selena, she left an indelible mark on Tejano music and the hearts of millions. In this Friday feature, I want to venture beyond the glitz of her public persona to uncover lesser-known life stories and weave together a more holistic picture of her life and what she left behind. The…

[fallenstarcat]

sometimes i feel like people forget autism is a disability. and that’s not a bad thing! i’m all for disability acceptance, im proud of my disabilities. but i feel like we forget autism can hurt.

it hurts that i have to put more time and energy into socializing than others.

it hurts when i need to move so bad, usually cause im overwhelmed by either my surroundings or emotions, that i thrash and hurt myself.

it hurts that i cant be in places that are too loud or too bright, which on bad days can be as simple as a small, quiet noise or dim lights.

it hurts that i struggle to tell when im hungry, thirsty, tired, etc. so i can’t properly take care of myself. it doesn’t help my insomnia and i get very nauseas and get UTIs.

i 100% believe in autism acceptance. i don’t want a cure. but i also want us the acknowledge that it can hurt. it doesn’t mean my entire life will hurt, but some parts will. and i want a community where we can see both sides, see the hurt, and celebrate it anyway.

[neuroticboyfriend]

IM GOING TO CRY THEY MIGHT INCREASE THE SSI ASSETS LIMIT TO $10,000.

it's a bipartisan bill too! and for anyone unaware, people on SSI (which is different from SSDI), can only have $2,000 in assets (unless they have an ABLE account, which comes with its own rules). this assets limit has been in place for FORTY YEARS and is a giant part of why being on SSI keeps people incredibly impoverished.

i've also heard they might remove the marriage penalty but i don't have the spoons to read or explain it so someone else please add on!

this is huge! please spread the word and do what you can to help ensure this happens!

[marciodpaulla-blog]

The Tale of Two Coffers: Washington's Property Tax and Vehicle Registrations

Once upon a time, in the Pacific Northwest, nestled amidst towering forests and jagged mountain peaks, lay the evergreen state of Washington. It was a state built on the tenets of community, infrastructure, and quality public services. The question arises – how does a state maintain its luster, its schools, roads, bridges, and public services? The answer lies in two stories, intertwined like the…

[crazycatsiren]

I'm not worried about people faking disabilities. I'm worried about disabled people constantly not being believed.

[alex2xander]

Be nice and don't mock tumblr users that communicate differently.

Examples:

1.) Typing quirks

2.) No punctuation

3.) Random Capitalisation

4.) Long run on sentences

5.) Frequently misspelled words

6.) Missing spaces between words

7.) Repeating words and sentences

8.) Posts audios and videos instead of typing

9.) Express themselves through custom emojis

10.) Use an AAC (Augmentative and alternative communication) device

Some users have intellectual disabilities, use speech to text, struggle with grammar, have hand tremmers, have high support needs, etc.

Regardless of how they communicate and their reason why, they still deserve respect. They are trying their best.

[chronicsymptomsyndrome]

I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself through if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

[chronically-evie]

my mom keeps trying to get me to go to the ER when im having a flare up and i have no idea what to tell her.

because ive BEEN to the ER before. you wanna know what they did? while i was sweating, shaking, and sobbing, curled in a ball of pain?

they asked me if i was on my period. when i told them no, they asked me if i was pregnant.

when i told them no, because i wasn't sexually active, they forcibly tested me anyways, and then when it came back negative said, "well maybe you should just take a few deep breaths", gave me liquid ibuprofen, and sent me home.

disabled people, in this particular situation disabled afabs, are never fucking listened to.

the ER staff literally LAUGHED at me multiple times. they pointed at me when i was having one of the worst episodes of my life and snickered.

so no, i do not want to go to the fucking ER. my heating pad, ice packs, and nausea meds are going to help me more than anything a hospital could do.

[todayontumblr]

Tuesday April 11.

Autism Acceptance Month.

Today is Tuesday, April 11, which means we are eleven days into the 30 blessed days of #autism acceptance month, 2023 (previously known as #autism awareness month). April is the month and April 2nd is the day—World Autism Day, to be precise—and these first weeks of spring are a time for uplifting autistic voices of all identities, advocating for acceptance, progress, and sharing in the community's joy. It began back in 1972, as National Autistic Children’s Week, and was founded by The Autism Society to raise awareness and campaign for change in communities, schools, medical facilities, and businesses. And this same vital, wonderful work continues today, and not just for the month of April, of course—but every day of every year. The lived reality is that every day of every month is Autism Acceptance Month, and it is on all of us to do better.

Progress has been made, but there is still so much to be done in the struggle for equality and justice for all those living under the broad church of autism. And if these words sound hollow, then simply read the moving story of Debra Vines, of The Answer Inc., and of her autistic son Jason. She articulates everyday struggles that families can face, and the many joys they experience, too. Her message is simple, but powerful: don't give up on milestones.  

Want to know more, get involved, or donate? Here is just some of an impressive selection of charities sourced by the fine people at the Applied Behavior Analysis Programs Guide, where you can find the complete list of 20 charities and organizations:

The Asperger/Autism Network

The Autistic Women & Nonbinary Network

Autism Research Institute

The Autistic Self Advocacy Network

The Autism National Committee

Happy Tuesday, folks, and here's to better.

[crippledpunks]

shoutout to every disabled person who has to spend a lot or most of their time in bed, on the couch, or laying down. here's to everyone with any kind of mental illnesses or neurodivergence that can cause depressive episodes, migraines and sleep disruption, here's to everyone with chronic fatigue syndrome/myalgic encephalomyelitis, here's to everyone with chronic pain, fibromyalgia, lupus, arthritis and multiple sclerosis, here's to everyone with bad backs, here's to everyone with chronic gastrointestinal issues, here's to everyone with chronic reproductive health problems. many of us have to spend most of our waking hours resting and we're not here by choice, but we're making the best of things. here's to us bedbound bitches

[my-autism-adhd-blog]

Self Advocacy Scripts I Rely on as an Autistic Person…

Neurodivergent_lou

[vivianseda]

Thank you to Our Sensory Life

“I spent to many years thinking it was normal to be trapped like this and I was just 'lazy'.

If you relate to this, please hear me, you're not lazy. I know how bad it feels.”

Photo credit: Dani Donovan

[unbidden-yidden-deactivated20240]

Hey major shout-out to my fellow trans Jews. This year has been hell and it's hard not to feel like we've been completely abandoned, betrayed, shut out, and made unsafe across the full political spectrum.

I'm so sorry; we deserved better. I hope you're okay and standing strong - we will get through this together 🕎 🏳️‍⚧️ ✡️

[tscs-plural-advocacy-blog]

Positivity post cause of recent things. Psychosis is still marginalized and treated like a joke or an insult. We have delusional episodes and it sucks how little there is in the way of resources for it in general let alone aimed specifically at systems. There's an unfortunate number of people who believe these experiences are mutually exclusive, they're not. It's probably actually quite common at least among systems with trauma.

Shout-out to systems with psychosis

Shout-out to systems who've been told they're psychotic and not plural

Shout-out to endogenic/created systems with psychosis

Shout-out to endogenic/created systems that have been told they're psychotic and not plural

Shout-out to people who thought they were systems but are actually psychotic

[neuroticboyfriend]

i want justice for all disabled people. i want us to be able to live freely, to be loved, to have rights, to not be hurt and discarded. i want a better world for us all so deeply. this includes you, whether you think you deserve goodness or not. a life free of oppression is not something to be deserved in the sense of needing to do something to be worthy of it. you inherently need it. you have an inherent right to this and i am sorry we don't live in a better world. but one day we will. we have to.