#Chronic Pain Politics

[paulcronin]

Be aware Sensitive Topic (assisted dying)

I am no stranger to death, you can point to my Catholic upbringing, my large extended family. My parents had 20 siblings between them, and I have many cousins. I have experienced it up close and personal… Read more I have written before about death, suicide and related topics. I shall make a list of these posts presently. On many dating apps, one of the questions is What is your social media…

[talkethtothehandeth]

What is happening with section 504? And what you can do about it? Section 504 is under attack. If you live in any of these states, you can call your representatives.

DISABILITY INJUSTICE AFFECTS EVERYONE. You shouldn���t care “just because” you could be disabled one day. You should care *now*, because this will come back to everyone.

Images from @/myelasticheart on Instagram

[foxleotie]

Even though no one is talking about it, disabled people will be the group that sufferers tremendously (if not the most) compared to other marginalized groups due to this US election outcome.

If Trump repeals the ACA, insurance won’t cover our medical treatments, aids, or procedures. It’s likely that SSDI (many people’s only source of income) will be taken away, other benefits will have a work requirement that is impossible for most disabled people to meet, educational protections will be removed for disabled students, prices of medication (that we need to live) will go up, the list goes on.

Many of us will die, become extremely ill, and/or become homeless due to even just the repeal of the ACA and removal of some SS/SSDI (many people’s only form of income). It’s uncertain what exactly is going to happen and when, but disabled Americans are going to suffer. Please be aware of what’s happening to us these next 4 years, try to advocate as much as you can, and support your disabled and chronically ill community members (since the federal government obviously will not).

[fascistsarefreefood]

If you live in the UK please make sure you sign/share this petition against the planned cuts to benefits

[rhiandoesfandom]

Reposting this on here too because I need ppl to understand.

I am so infuriated at the thousands of people I'm seeing that are like "Here's how to move out of the country" I CANT MOVE. My partner and I are both disabled with three cats and own our home it's the only stable thing in our lives.

I don't want to HAVE to move either! Not to sound like a hick but this is is my fucking country. My fucking gay trans country. My fucking DEI country. ITS MINE. I was born here and I can't live anywhere else comfortably right now. And none of them want me anyway because I'm disabled.

That is why it is so important to think of and include disabled folks in your activism, in your protest, in your fight.

Not only do disabled folks typically fully rely on their state Medicaid and their federal disability payment if they're eligible, they also rely on their local communities, their caregivers, their food banks, etc.

It is hardly ever thought about in emergency situations, how to move the disabled folks. Ya know when there's a fire in a building and the elevator stops working and they say to take the stairs? And if you're a disabled person in a wheelchair you're just shit outta luck?

It's like that.

We can't just run when our rights are taken away. Or at the threat of everything else horrible going on. They could be hunting us for sport and we still can't leave.

[lifewithchronicpain]

The idea that all people are equal should never assume that all people are physically equal.

In other words my membership in this society should never be conditional on my ability to work. I understand many people want to just express that if you work hard you deserve an equal share of the pie. On the face of it, I get it. But you will always be leaving out disabled people who are still humans that exist and deserve dignity whether we can work 8 hours a day or not. Our work doesn’t make us equal, our humanity does.

[rinblid]

I did draw the bros last month tho

Hyperfixated (don't come for me I've got ADHD) on SMB for a few weeks during summer, was halfway through redesigning Bowser when it ended and that's the only drawing I managed to finish in time so it's all I've got to offer sorry sjnsnzjs

ALSO they have Hypochondroplasia !

[musingsfromanautisticmind]

Terribile story of an Mexican immigrant living in the USA for 40 years held in custody by ICE and dying under some very suspicious circumstances.

Heart rending

[spacetimeaccordionfolder]

"The soul is subject to the mind and my mind is my strongest weapon" and yeah we knew that the soul could be shaped by the mind slowly already thanks to exposition in arc 1 chapter 8 and that seemed feasible - makes sense that the mind can shape the soul- but then today's page! Erin reshaped his soul! And yeah we knew that from arc 2 chapter 2 but! Not just malformed, unusually high capacity soul channels that needed some shaping and sealing so he didn't have headaches always but like. He opened his own soul. He moved the channels. WHAT?? okay yeah I can see why he's "my mind can do anything I can handle all this" guy his mind literally reshaped his soul. "No one has mapped the Storm of Magic because I haven't tried yet" guy made his own miniature maelstorm as a teen no wonder he was so confident he could navigate the Storm.

I'm having a low ache everywhere, high pain in a few areas, pain day and Erin is feeling even more relatable than usual. He can feel his channels opening, so he'll be able to properly channel and not have chronic headaches or however his malformed soul links affected him- he's been there for months and is so close. So close to a solution and is told to wait. Of course he immediately overstretches his abilities and injures himself again. His smile in panel 7 feels like that of someone finally able to do something they haven't done in a long time, he's marveling in what he can do, of pushing through whatever pain or difficulty is there and being- and then there's the consequences of that.

I just. He.

okay I don't have a good ending to this post Erin's just neat

[bonnibelleangelica]

Over-sensitive

When you’re part of a marginalized group: disabled, queer, POC- you’re often advised to tolerate discomfort “just this one time.”

But it’s never just one time.

Do they think they’re the first to tell me to let things slide? Keep it to myself? Grin and bear it? I would love to have this be a one time issue. Hell yeah I’d tough it out and reap the rewards, but they’re underestimating how discrimination has bled into every aspect of my life.

I was advised yesterday that if my manager was unfairly targeting me for behavior that was not only allowed, everyone else was doing it at all times, I should just not do it. “Don’t be like everyone else,” they said. But they also said that I was over-sensitive and that this bias wasn’t real. This coworker went on to joke later that she never gets in trouble and she doesn’t know why.

See how it’s not a fair request? Because the advice she was giving was not just for work, it was for my whole life. To avoid being targeted, stay still, stay quiet, stay perfectly behaved. Forever.

But hey, maybe I’m just over-sensitive….

[itsbansheebitch]

More than missing the point

Listen, I'm not a Halsey fan. But I have had chronic pain and the fact that both Pitchfork and Anthony Fantano have called her latest album which is all about her getting her cancer diagnosis "edgy" "childish" "too much" "angsty" "dramatic" and "insufferable" is UNHINGED.

Saying that these songs, about a mother scared to leave behind her 3 year old and how lucky she is to be alive is "giving main character syndrome" is genuinely depraved. It is so insanely cruel I am genuinely shocked that someone with a following like this who is considered to be a relatively reliable reviewer would post.

Seriously, imagine telling a cancer survivor that they are "playing the victim." Songs on the album talk about how people (specifically men) called her dramatic when she started having health issues. Now, both Pitchfork AND Anthony Fantano call her album where she talks about it "too much" and "dramatic." She literally talks about how people assumed she was on drugs when she was getting medical treatment.

Anthony gave Katy Perry's latest album a higher score than Halsey's, which he gave a ONE.

[nobodywasneverhere]

i hate being disabled and queer at a time like this.

i sit during the day watching my phone, seeing news. i see my every right getting stripped away, i watch through text on my screen as people get dehoused, arrested, forced to starvation by a system i want to go out and fight, but, of course, i can't.

my muscles would give out from the stress, i would endure pain for a week afterward which would bind me to my bed. i am resigned to talking to people who already agree with me and sending out small messages to the void of the internet on platforms which continue to contribute to the destruction of my personhood in the eyes of a fascist government; what good does it do? i'm still stuck in bed, nobody and nothing has changed.

i can't vote, i can't hide myself from it, i'm lucky enough to be in a place with such people that if truly necessary, i could move to another country - but my friends would still be here, most of my family would still be here, here in the place that wants me dead, that wants to force me into the lowest caste of a system meant for extracting capital instead of providing healthcare, protecting rights, making sure i can live.

and what can i do? i can hope that someone else cares enough to do something about it, but the chances that they would? that enough people would? that enough people could even understand what i go through on a daily basis? i truly don't like pessimism but it seems unavoidable with something like this.

i would make art to show people my visceral experience, release it to fly on fragile wings into the world, make sounds and sketch lines, write and dance and be wholly a person but my neck aches even with writing this, my wrists feel that they have been crushed, and my back threatens to give out while laying on a bed.

i am being demoted to something less than human in the eyes of a horrifying amount of people in the country which promised would give me safety. i am a political problem in courtrooms, i am a pity story whispered between my teachers, i am a cautionary tale to nazis online that say i am a conniving predator and a poor confused child that only thinks they want to put their great gendered body through mutilation, i am words from a strict authority about perseverance to kids who they find annoying, i am anything but a person.

i am kid, a fucking angry and scared kid. i am a person and deserve to be treated as one.

i will scream and fight until the memory of being at peace has long since faded and until i find myself living in that memory again. even if it's just online. even if it's just anonymous text on a screen.

but still the question gnaws through the flesh of my thoughts - what good does it do when we can barely do anything?

[enbycrip]

I know I’m not doing well rn because a fucking advert from Scope I read yesterday has been going round my head and going sour in my stomach for about 18 hours rn.

It said some variant on “disability doesn’t stop people doing things”.

Before we even get into the difference between societal barriers and personal impairments etc etc - I’m just so *sick* of the level of toxic positivity the whole disability sector seems to be *increasingly* full of.

Particularly while more and more people who depend on social care for things other than intimate care seem to be getting their care packages just cut suddenly without any explanation or warning. This is for things like “keeping your house at basic levels of cleanliness and hygiene”, “washing clothing” and “cooking”. I’ve seen this from friends and strangers on groups I’m in, all across the UK. As if the entire sector has just decided that if you can toilet and get clothing on without needing physical aid to do those things nothing else in your life matters, including being able to eat, wear clean clothing or get rid of rubbish.

We have already seen care packages for leaving your home get whittled away, despite these being still legally guaranteed under the Care Act. The idea that it’s fine to be completely socially isolated as long as someone came to help you with the basics of home care has been largely accepted in so many councils for some years now; that exercising, maintaining relationships with friends and family and getting fresh air was some sort of ridiculous luxury. *Despite* the legal guarantees remaining; the sector just made a pact to mostly ignore them.

And now that seems to have been redefined once again to “if you’re not physically lying in your own filth, the idea that your home should meet basic hygiene standards and you should be able to eat hot food is a ridiculous luxury”.

And I’m lying in my bed feeling like a total failure because getting Cynthie out for a rollator walk and going downstairs to eat dinner 3-4 days a week turns me into being incoherent through fatigue by about 6pm atm. I managed to play Pendragon on Discord last night for the first time in a fortnight and that felt a huge achievement.

And Scope are chirping away about disability not preventing anyone from achieving anything.

*screams*

[tam-is-damned]

i think it's is so incredibly devastating that ICE is taking away members of my community right now. I see a lot of people trying to say that immigrants have value because of what they can provide but yall forget that there are disabled immigrants, immigrants who don't work labor intensive jobs and it shouldn't even fucking matter because no one's worth should be based down to them being a permanent employee for the more privileged. I'm so upset that 17 people in an area close to me were kidnapped by ICE, im sad that 17 people of my community, 17 family members, 17 friends were taken and kidnapped. it is fucking devastating, just absolutely horrific, and it makes me even more mad that yall are trying to say that the only reason they have worth is because they work?? absolutely disgusting. Everyone has inherit worth, everyone, and everyone deserves to exist, and it should never ever be based on what someone can provide.

[cointell]

@carljungmemes on instagram

[girlsoesoteric]

"unemployed ahh"

i'm so loved by the people in my life that they'll take care of me. they don't make me feel guilty and constantly remind me that what i bring to their lives, just by being, is worth more than money. i know my worth isn't determined by my ability to contribute to a capitalist system. i get to make art, learn and read about whatever i want, explore nature, care for the people and little creatures in my life. i get to rest when i'm sick and tired. i get to live for joy. i'm am fr that unemployed friend swimming with dolphins at 2pm on a tuesday.

i fear perhaps you're just a jealous bootlicker!