#chronic problems

[cbspoons]

My body after a day of fun

[mysillycomics]

[bl0w-m3]

[stars-and-branches]

Chronic pain pisses me off cause I'm not even incapacitated for like a cool or badass reason instead my body is throwing the world's biggest temper tantrum because it's raining outside

[nondelphic]

writers who make playlists before writing anything scare me. how are you setting a mood for something that doesn’t exist yet. are you conjuring it. are you a witch.

[disabled-bug]

I’m so proud of people living with chronic health conditions. That shit is HARD. Idk who needs to hear this, but if no one else has said it: I’m proud of you. You’re sticking it out through so much pain and grief. That’s no small feat.

Every small thing you do for yourself health adds up. The grief is heavy and it comes from a place of love. The grief knows the pain is wronging you.

I’m proud of you. I hope on the good days you can be proud of yourself.

Keep going.

[salt-baby]

yes, doctors suck, but also "the medical ethics and patient interaction training doctors receive reinforces ableism" and "the hyper competitive medical school application process roots out the poor, the disabled, and those who would diversify the field" and "anti-establishment sentiment gets applications rejected and promotions requests denied, weeding out the doctors on our side" and "the gruesome nature of the job and the complete lack of mental health support for medical practitioners breeds apathy towards patients" and "insurance companies often define treatment solely on a cost-analysis basis" and "doctors take on such overwhelming student loan debt they have no choice but to pursue high paying jobs at the expense of their morals" are all also true

none of this absolves doctors of the truly horrendous things they say and do to patients, but it's important to acknowledge that rather than every doctor being coincidentally a bad person, there is something specific about this field and career path that gives rise to such high prevalence of ableist attitudes

and I WILL elaborate happily

[desultory-suggestions]

Sending love to everyone who has health issues or chronic pain in parts of your body that aren’t usually socially acceptable to talk about. It’s frustrating to feel like you can never explain your pain to someone because it’s TMI and to feel like you have to hide it. Your pain is nothing to be ashamed of. I see you, and I’m sending you support and strength.

[reasonsforhope]

"A medical technology company in Australia is aiming for a world-first: it wants to launch a blood test for endometriosis (sometimes called 'endo' for short) within the first half of this year [2025].

In a recent peer-reviewed trial, its novel test proved 99.7 percent accurate at distinguishing severe cases of endometriosis from patients without the disease but with similar symptoms.

Even in the early stages of the disease, when blood markers may be harder to pick out, the test's accuracy remained over 85 percent.

The company behind the patent, Proteomics International, says it is currently adapting the method "for use in a clinical environment," with a target launch date in Australia for the second quarter of this year [2025].

The test is called PromarkerEndo.

"This advancement marks a significant step toward non-invasive, personalized care for a condition that has long been underserved by current medical approaches," managing director of Proteomics International Richard Lipscombe said in a press release from December 30.

Endometriosis is a common inflammatory disease that occurs when tissue similar to the lining of the uterus grows in other parts of the body, forming lesions. The disease can be very painful, and yet the average patient often suffers debilitating symptoms for up to seven years before they are properly diagnosed.

While there are numerous reasons for such a long delay, symptoms of endometriosis are often highly variable, unpredictable, difficult to measure or describe, and dismissed or overlooked by doctors.

Today, the only definitive way to diagnose endometriosis is via keyhole surgery called a laparoscopy, which is expensive, invasive, and carries risks.

Proteomics International is hoping to change that.

In collaboration with researchers at the University of Melbourne and the Royal Women's Hospital, the company compared the bloodwork data from 749 participants of mostly European descent.

Some had endometriosis and others had symptoms that were similar to endo but without the lesions. All participants had a laparoscopy to confirm the presence or absence of the disease.

Sifting through the bloodwork, researchers ran several different algorithms to figure out which proteins in the blood were best at predicting endometriosis of varying stages.

Building on previous research, a panel of 10 proteins showed a "clear association" with endometriosis.

For years now, scientists have investigated possible blood biomarkers of endometriosis to see if they could differentiate between those who have endo and those who do not. Similar to cancerous tumors, endo lesions can establish their own blood supply, and if cervical cancer can be diagnosed via a blood test, it seemed possible that endometriosis could be, too...

Proteomics International claims patents for PromarkerEndo are "pending in all major jurisdictions," starting first in Australia.

It remains to be seen if the company's blood test lives up to the hype and is approved by the Australian Therapeutic Goods Administration (TGA). But that's not outside the realm of possibility.

In November of 2023, some researchers predicted that a "reliable non-invasive biomarker for endometriosis is highly likely in the coming years."

Perhaps this is the year."

-via ScienceAlert, January 9, 2025

--

Note: As someone with endometriosis, let me say that this is a HUGE deal. The condition is incredibly common, incredibly understudied, and incredibly often dismissed. Massive sexism at work here.

I got very lucky and got diagnosed after about 6 months of chronic pain (and extra extra lucky, because my pain went away with medication). But as the article says, the average time to diagnosis is seven years.

Being able to confirm endometriosis diagnoses/rates without invasive surgery will also lead to huge progress in studying/creating treatments for endo.

And fyi: If you have a period that is so painful that you can't stand up, or have to go home from school/work, or vomit, or anything else debilitating (or if any of those things apply if you forget to take pain meds), that is NOT NORMAL, and you should talk to a competent gynecologist asap.

[oistrong]

This is very important...

[cbspoons]

So I just went out for a walk and I have just had a fall. My left knee took the brunt of it because my left ankle gave way. My hands are all cut up and bloody,my left knee is all cut open and swollen. I am in so much pain right now!

[crippledpunks]

i was recently denied life-saving gallbladder removal surgery by my GI specialist due to being "too fat" (i'm 300 lbs and very muscular) and "needing to lose 10 -15 pounds and waiting 2 - 3 months in order to get the surgery". i was then signed up for bariatric weight loss surgery before i could get the gallbladder removal despite the gallstone stuck in the neck of the organ as well as the other stones inside of it causing me to be incapable of keeping down food

i ended up getting the surgery done by a local hospital with far better doctors, but the initial denial had me so defeated. if you are fat and have ever been denied important surgeries, life saving or otherwise, because of your weight, i am so sorry and you should never have to face that. most surgeries are not impacted by weight in the slightest. this is usually an issue with the surgeon's skill as a surgeon.

i was told by every other surgeon i met that weight has no bearing on a laparoscopic gallbladder removal surgery. at the other hospital i was also told that anesthesia wouldn't work on me or that i wouldn't survive it. yet again i was told by other surgeons that was also not the case. most surgeons worth their paygrade can do these surgeries after just... trying and learning how to work with fat bodies.

i was told by the surgeons and nurses in the ER that it's ridiculous for the other hospital to behave as though fat people will never need surgery of any kind ever throughout their lives, for one reason or another. it's unrealistic. most people will encounter a potential surgery in their life times, no matter their weight and it's unprofessional to just give up when someone above a certain weight threshold needs help.

my heart goes out to you especially if you're trans, intersex, gnc, and queer and have been denied top surgery or other gender affirming care surgeries because of your weight. this is also medically unethical and done for no reason other than fatphobic transphobic bias. you do not need to lose weight to get top or bottom surgery.

take care of yourself. my heart goes out to you and you don't deserve this treatment at all

[extreme-dyke-syndrome]

POV: you are physically disabled

[hyperion-lies]

[thebibliosphere]

Hi, welcome to "Why am I learning this [insert medical thing here] from a Tumblr blogger better known for vampire nipples instead of my doctor?"

I'll unfortunately be your guide because apparently no one else is fucking bothering*.