Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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the thing about art is that it was always supposed to be about us, about the human-ness of us, the impossible and beautiful reality that we (for centuries) have stood still, transfixed by music. that we can close our eyes and cry about the same book passage; the events of which aren't real and never happened. theatre in shakespeare's time was as real as it is now; we all laugh at the same cue (pursued by bear), separated hundreds of years apart.
three years ago my housemates were jamming outdoors, just messing around with their instruments, mostly just making noise. our neighbors - shy, cautious, a little sheepish - sat down and started playing. i don't really know how it happened; i was somehow in charge of dancing, barefoot and laughing - but i looked up, and our yard was full of people. kids stacked on the shoulders of parents. old couples holding hands. someone had brought sidewalk chalk; our front walk became a riot of color. someone ran in with a flute and played the most astounding solo i've ever heard in my life, upright and wiggling, skipping as she did so. she only paused because the violin player was kicking his heels up and she was laughing too hard to continue.
two weeks ago my friend and i met in the basement of her apartment complex so she could work out a piece of choreography. we have a language barrier - i'm not as good at ASL as i'd like to be (i'm still learning!) so we communicate mostly through the notes app and this strange secret language of dancers - we have the same movement vocabulary. the two of us cracking jokes at each other, giggling. there were kids in the basement too, who had been playing soccer until we took up the far corner of the room. one by one they made their slow way over like feral cats - they laid down, belly-flat against the floor, just watching. my friend and i were not in tutus - we were in slouchy shirts and leggings and socks. nothing fancy. but when i asked the kids would you like to dance too? they were immediately on their feet and spinning. i love when people dance with abandon, the wild and leggy fervor of childhood. i think it is gorgeous.
their adults showed up eventually, and a few of them said hey, let's not bother the nice ladies. but they weren't bothering us, they were just having fun - so. a few of the adults started dancing awkwardly along, and then most of the adults. someone brought down a better sound system. someone opened a watermelon and started handing out slices. it was 8 PM on a tuesday and nothing about that day was particularly special; we might as well party.
one time i hosted a free "paint along party" and about 20 adults worked quietly while i taught them how to paint nessie. one time i taught community dance classes and so many people showed up we had to move the whole thing outside. we used chairs and coatracks to balance. one time i showed up to a random band playing in a random location, and the whole thing got packed so quickly we had to open every door and window in the place.
i don't think i can tell you how much people want to be making art and engaging with art. they want to, desperately. so many people would be stunning artists, but they are lied to and told from a very young age that art only matters if it is planned, purposeful, beautiful. that if you have an idea, you need to be able to express it perfectly. this is not true. you don't get only 1 chance to communicate. you can spend a lifetime trying to display exactly 1 thing you can never quite language. you can just express the "!!??!!!"-ing-ness of being alive; that is something none of us really have a full grasp on creating. and even when we can't make what we want - god, it feels fucking good to try. and even just enjoying other artists - art inherently rewards the act of participating.
i wasn't raised wealthy. whenever i make a post about art, someone inevitably says something along the lines of well some of us aren't that lucky. i am not lucky; i am dedicated. i have a chronic condition, my hands are constantly in pain. i am not neurotypical, nor was i raised safe. i worked 5-7 jobs while some of these memories happened. i chose art because it mattered to me more than anything on this fucking planet - i would work 80 hours a week just so i could afford to write in 3 of them.
and i am still telling you - if you are called to make art, you are called to the part of you that is human. you do not have to be good at it. you do not have to have enormous amounts of privilege. you can just... give yourself permission. you can just say i'm going to make something now and then - go out and make it. raquel it won't be good though that is okay, i don't make good things every time either. besides. who decides what good even is?
you weren't called to make something because you wanted it to be good, you were called to make something because it is a basic instinct. you were taught to judge its worth and over-value perfection. you are doing something impossible. a god's ability: from nothing springs creation.
a few months ago i found a piece of sidewalk chalk and started drawing. within an hour i had somehow collected a small classroom of young children. their adults often brought their own chalk. i looked up and about fifteen families had joined me from around the block. we drew scrangly unicorns and messed up flowers and one girl asked me to draw charizard. i am not good at drawing. i basically drew an orb with wings. you would have thought i drew her the mona lisa. she dragged her mother over and pointed and said look! look what she drew for me and, in the moment, i admit i flinched (sorry, i don't -). but the mother just grinned at me. he's beautiful. and then she sat down and started drawing.
someone took a picture of it. it was in the local newspaper. the summary underneath said joyful and spontaneous artwork from local artists springs up in public gallery. in the picture, a little girl covered in chalk dust has her head thrown back, delighted. laughing.
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PALESTINIAN FAMILY FORCED TO RESTART FUNDRAISING - PLEASE DONATE!
PROGRESS: £520 / £35,000
a little while ago, I was contacted by Amal Abushaban, a Palestinian mother of 5, for help regarding her Gofundme campaign.
In summary, after spending months raising over $13,000 for her family, she attempted to withdraw the money. She did everything right, she answered Gofundme's questions, she provided the details of her beneficiary and she contacted their support team - only to be left in the dark until an email came one day, notifying her that her campaign had been closed and all donations were now in the process of being refunded.
I tried kicking up a major fuss about it online, as well as trying to pester Gofundme Support on my own account, but all it did was send me in circles as I desperately pleaded for the Gofundme Support person I was assigned to at least re-instate the damn fund. Even worse, Amal got her first email today about refunds going through.
Regrettably, Amal is being forced to start over completely in her fundraising efforts. Her beneficiary has started this Paypal fund for her. Please donate and share!
PROGRESS: £520 / £35,000
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Gotham has always been weird, so when the groundskeeper at the cemetery noticed the Wayne kid’s plot was disturbed, he just chalked it up to more of the same ol’. Alright, so ‘disturbed’ may be a tad too light of a word, but what’s an empty grave in the grand scheme of Gotham? God knows in a city like this one, they could use all the burial room they could get. He figured he’d just jot it down on the website and hope nobody noticed for a while.
Too bad he didn’t account for the 13 year old boy in Bristol who periodically checks the cemetery’s website when he’s feeling particularly lonely.
Plot Removed.
Tim Drake stared at the two words under the heading for Jason Todd’s plot number. Removed? What do they mean ‘removed’? They can’t just remove a plot? That’s a person down there! That’s Robin down there! You can’t Remove Robin!
Calm down. Deep breaths. Assess the situation.
Robin has been dead for 5 months and 14 days. There is no reason for a grave to be removed that early, especially one of a member of such an affluential family. Chances are likely it’s a simple clerical issue. He can call first thing in the morning and make them aware of the mistake. He can have it all fixed in 5 hours.
Just a phone call.
In 5 hours.
…
Tim hates talking on the phone almost as much as he hates waiting.
Well it won’t be the first time he’s snuck out to head to Gotham proper at 1am. It can’t even really be considered sneaking out if there’s no one home to catch you.
Buses stop running at 2, so he layers a couple sweaters under his coat and grabs his best running sneakers so he can comfortably make the trek back.
Just a quick trip to settle his nerves. Maybe get a few shots in if he spots Batman, but really he just wants to see with his own two eyes that things are okay and Jason can rest.
It’s 1:37 by the time he gets to the headstone reading ‘Here Lies Jason Todd’ and the gaping, muddy pit in front of it.
This- This doesn’t make any sense. This is not removal. This is destruction. Desecration. Somebody did this. Somebody-
Assess the situation.
A hole in the ground, approximately 1.5 feet in diameter.
Mud and grass flung outward but with little force.
Large chunks of earth turned over and shoved away.
No signs of tool marks or clean lines of entry into the dirt.
Dragging claw marks.
Staggering, shuffled pairs of foot prints in the mud.
A trail of dirt.
Something… Something large clawed its way out of the ground here. Something large and bipedal and- and humanoid.
Tim refuses to jump to any conclusions he can see all the facts laid in front of him. He’s going to cautiously follow the trail and simply hope to any god listening that he isn’t the world’s first line of defense against the zombie apocalypse.
He’s been walking for 23 minutes and there’s good news and undecided news. Good news: he’s closing in on the target and the trail isn’t taking him out of the way so his trip home won’t be prolonged. Undecided news: The potential Zombie Robin is heading directly for Wayne Manor.
As zombie apocalypse news, this is very bad. From Tim’s collected observational evidence, his not-so-professional opinion is that Batman, faced with a horror movie level zombie of his dead son, would not respond well, and would likely not fight back.
In Batman and Robin news? Tim’s unsure. If Jason is simply back? What could that mean for them? Batman can have his Robin. He wouldn’t have to continue nearly killing others and himself every night in his grief. Jason could-
No. Stop. Do not jump to conclusions.
Hope only brings heartbreak.
What would Batman do? Get close and see if the target is a threat.
Target is male. Mid-teens. Dark hair. Pale skin. Leaning against surfaces as he walks. Appears injured and disoriented.
Minimal risk assessed. Approaching and attempting contact.
Target identity confirmed: Jason Todd.
“J-Jason?” It comes out as a croaked whisper. Jason shows no sign of acknowledgment.
Tim clears his throat, steps right in front of his path, and tries again.
“Jason. Jason, stop I want to help you.” Still nothing.
“Please, Jason. I can help, I promise I can help!”
Why isn’t this working?! Why can’t he just do something right for once?! He wants this to work, he wants to help Bruce, he wants to fix Batman, he wants to not be alone, he wants-
“Robin!”
Robin jerks to a stop.
Tim reached out his hand.
“Robin. Robin please, I’m sorry you’re going through this, it’s really scary, I’m really scared. But I just want to help you. Help you find Batman. Help you get home.”
Jason just stares at him. Of course he does. Of course it’s not going to work. Why did he even bother hoping he could help?
Hope only brings heartbreak.
His sight blurs as his eyes fill with tears and he starts to lower his outstretched hand.
His arm is slowed as a cold hand weakly grasps his own.
“Don’t… scared… Bat… help… Dad… help.”
A relieved sob tears out from Tim’s chest and he gathers himself together. He yanks his extra sweater off and gently pulls it over Jason’s cold shoulders. Jason lets Tim drag his arm over his shoulders to try and carry some of his weight.
“Okay, Robin. Yeah. Your dad will help us.”
Batman will solve everything once Tim gets Robin home.
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My first ever comic con! And first cosplay too. Of course it's gonna be my boy :] Ramblings about the process are under the cut(Let me know if?? You would want me to elaborate with process images for any of the steps?)
The costume took me forever to make, as I've never done any machine sewing, sculpting, fabric dying or spray painting before but learning all of these was so fucking fun!! I never realised just how many different skills go into making a cosplay but it was so worth it!!!
Almost all of the clothes(except the hat) were purchased first as bases, but all of the detailing was added by me. All of the fabric used was originally just scraps that I was given for free so I needed to learn how to dye and dye all of the stars, they were originally white.
The sewing machine was its own beast that brought me tons of frustration from the lack of skill and knowledge (it was devastating to find out that 95% of fuck ups were my fault and not the machine's lmao). But as a result, a hat sewn from scratch, all of the fur trims, embroidery on the corset, stars and the collar(which is very hard to see on the pictures unfortunately) was all added manually. The stars and the stripes(on the back of the cape) were attached using heat-and-bond adhesive (I WISH I knew about such thing just when I started working on this. It would save me so much time and nerves.)
Then I found out about polymorph(mouldable plastic) and it has become the next thing I wanted to learn, to sculpt the claws and the fangs(yes, they're handmade jfksjs). The claws I then primed and painted in trillion coats because I wasn't satisfied with the colour of the spray paint. The fangs I moulded to my own teeth and then stained with tea to match the colour of my teeth :)c
As for makeup, I used Mehron Paradise water activated paints. At first I wanted to try to save money and bought myself Snazaroo instead, which unfortunately turned out to be a waste. Snazaroo didn't hold on my face for longer than 2 hours, cracking and peeling awfully. Mehron on the other hand survived 11 hours of me smiling, talking, emoting and such and didn't even crease at the smile lines(I'm actually shocked about that). It obviously works like any other makeup which means your skin texture and wrinkles won't go anywhere but Mehron's elasticity pleasantly surprised me. It did obviously smear from sweat and saliva(if you're eating and licking your lips) but if you don't touch the skin it just dries again, self setting. But if it's dry it's fully smear-proof. Highly recommend!
And last but not least, I've decided against painting my hands as it was very risky that I will stain everything I touch at the smallest hint of sweat. So instead I got myself gloves-tights(? Not sure how they're called but it's made from the same fabric as tights) and painted them with normal acrylic paint(did you know you could dye fabric with acrylic paint? I personally didn't), then heat set with an iron and voilà, they're reusable, my hands are not stained after an exhausting day and I don't stain everything I touch. It worked wonderfully which honestly was a surprise as I was really sceptical that acrylic paint will somehow stay in place.
I think this whole thing took me minimum of 6 months with big-big breaks for my school and life in general. But I'm really proud! This project taught me so many new skills and I couldn't have been happier about learning new knowledge, even if it sucked to fail in the meantime.
Everyone at the con was really nice and gave me a large confidence boost even tho it was my first time and I had no idea what I was doing. Taking photos with other people was really awkward/new for me as I hate cameras so I really had no idea how to pose/behave in front of one. But that's okay I think. This whole experience definitely made me want to do this again, so I think that will come with experience. Thank you for reading this far, hope you enjoyed this little summary :)
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