So. I'm super fucking rare, ya'll!
Above is a picture of the literal genetic mutation that I have. It's so rare that it's only been reported in ONE medical article as a bynote of a patient within a study- and a link to said study. It's so rare that genetic databases don't even have a frequency for it... Because it's so fucking rare (and genetic testing is still expensive and prohibitive to a lot of people).
Basically, it's a mutation that causes my kidney to not regulate my blood pressure correctly. Yeah, did you know that your kidneys regulate your blood pressure?! I mean, I did, but I'm wondering if you did.
This mutation causes Liddle's Syndrome, but my mutation is so rare that my symptoms don't entirely match up with the disease. Which is why it has taken doctor's 36 years to diagnose me- but, not really diagnose me, because I don't see my actual doctor until Friday... But, it's pretty clear that the mutation causes issues. So. Yeah.
It's incurable. There are only two drugs approved for its treatment- and they are rather cheap, so that's nice.
I feel like Dorthy Zbornak (Golden Girls) after she got her diagnosis of chronic fatigue syndrome. I had been blown off by doctors for YEARS because I was young and, somewhat, average in weight. I had insane blood pressure and they just... Ignored it? When I pointed out to a doctor that I still had high blood pressure after they increased the dosage of meds (that didn't work), she literally told me in the most condescending voice- "What do you want, more pills?" She also told me that I couldn't be having migraines because they lasted more than four hours and- "Migraines don't last more than four hours, you have something else." A cardiologist told me over a ten minute zoom call that I was fat and stupid, and that was why I had high blood pressure before changing a med that I took for ANXIETY to a different drug that turns out has been upsetting my gastrointestinal track for the last year (and also didn't work). It was the first time I met her. And, she told me to follow up in a week, which I couldn't and never did because she literally never had an open appointment slot over the following YEAR!
And if it needs to be said, this was in America.
But, I probably have a diagnosis now.... So, I can be a case study? Fun.
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Yes, Greece still exists, we didn't all die 2000 years ago. Yes, people speak Greek. You people are so fucking stupid for real. So many of you claim to love ancient shit but can't even acknowledge the actual living culture of the people whose mythology and classics you romanticize. You keep leaving annoying comments about how you just forget Greek people still exist, thinking you're being quirky because you love ancient stuff soooo much that you forgot about the people it came from. You think about it so little you don't even realize that an actual Greek person has to read this shit, making it clear how little you actually care about the culture beyond the romanticized (and westernized) mythology. Don't claim you love Greece, don't use our mythology anymore if you can't acknowledge that we're still around without making it about how little you think about us. It's mind boggling that you'd think a Greek person would read this and think you're anything but obnoxious. Explode.
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I just have to share this beautiful thread on twitter about AI and Nightshade. AI bros can suck it.
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i love that you can get high off of nutmeg and it fucking sucks so you get videos like this
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