#i hate! being! chronically ill!

[veggiesforpresident]

on one hand, i've been coming up with tons of ideas and this time been great for my creativity. on the other hand, i just woke up in the middle of a panic attack because i'm so bored and understimulated i could cry.

so you know. trade-offs.

[gloomydiary]

life is overwhelming me

[crimeronan]

well. this Did just make me burst into tears. (which is probably good since i've needed to cry for days.)

yeah. yeah That's how it feels....

[chronic-lee-lizard]

Here are some filling foods for when you feel nauseous or not wanting to eat!!!

Eggs

Greek yogurt

Rice

Cottage cheese

Pastas (always a good option)

Chicken (maybe a plain rotisserie if you are needing something not overwhelming)

Potatoes, especially mashed

Soups, the broth helps :))

Overall anything protein-rich will help you feel full quicker. I know on nights when I’m feeling super nauseous but I know if I don’t eat it’ll get worse these foods have saved me lol.

[69constellationsinatrenchcoat]

Fun fact: the word 'chronic' means it's lifelong! and the phrase 'chronic illness' means I'm stuck with it until it takes me out, or I take me out. So, to the woman bothering me at a close family friend's funeral today about 'whether it goes away' can shut the hell up. Chronic means I'm stuck with it. Telling me I can think my way out of it when I have things physically wrong with my body will not do anything. No, it's not going away, and praying and trying to force me out of my wheelchair won't do jack-shit (except make me want to break your nose). Trust me, I have tried almost everything under the sun by now.

Besides, I've come to the conclusion if god/s exist, they decided I'm better used as a disability advocate than wasting their precious time on fixing the fact I'm in crippling pain constantly :DDD

[disjournaled-scrolls]

Yesterday, when I was sleeping during a study hall at school, some kids I kind of knew (who KNEW I have a disability) took my cane and started swinging it around, using it like a bat, and playing with it. People assumed I'd given it to them, because when asked to stop, they said no and continued. By the time someone woke me up and told me, they had broken the wrist strap and were pulling apart the pole to stretch the folding elastic. They did not say sorry. They did not take responsibility. They simply gave it back after saying "look, did you know it could do this?" and stretching the elastic again. My friends reprimanded them, but now the wrist strap connection is broken and keeps falling off my wrist, putting me in danger.

The day before this happened, they had asked to hold the cane, and I said no.

Stop feeling entitled to touch people's medical aids. Stop acting like they're not really necessary or important. Stop fucking breaking our shit.

[panicismydefaultstate]

A little note for some partners, friends and family of people suffering from a mental or chronic illness- One of the most kind, supportive and loving things you can do is spend the time to educate yourself in better understanding what they are going through. Showing them that you care enough to spend time and energy reading up on how the illness works (and not just relying on stereotypical or general knowledge that can inadvertently be harmful) and different coping strategies/helpful management tips.

[tenshi-agerasia]

my (belated) (re)submission for the ensemble stars 2023 bigbang (@enstarsbb)

i had the pleasure of drawing for "scattered feathers, new wings" by @chivalri_, a fic focused on wataru and his relations with the five eccentrics and eichi :) read the amazing fic by the equally amazing vari here!!

here's the accompanying animation meme/fanfiction trailer i made:

my etsy for the sticker/sticker sheets!

~ more sticker details at my shop ~

see you all next year!

[olskuvallanpoe]

born to read, forced to be so fatigued that I can’t keep my eyes open even though I really want to read

[portraitofpluto]

everyday when i'm home i'm like "disabled liberation!!! i can use my mobility aids in public and don't owe anyone an explanation!!!" and then i get to the public in question and i'm going over my lines when someone asks What's wrong with you What happened and then i just suffer

[fellowshipofthenoodles]

Our rent has gone up at the same time as our chronic illnesses have both taken a tumble and I’m so frustrated - we love all of our animals, but when we’re really ill, we’re finding it hard to manage to give them all the best…

I think we need to think about rehoming some 😞 and it absolutely crushes me to do that, but I have to think about what’s best for them. No matter how much I love them to bits. If we’re both struggling to give them their best, even if it’s because we’re unwell and can’t help it, it’s not fair to them.

[chronicallyuniconic]

Did a thing yesterday, today I'm suffering.

Noone wants this. Absolutely nobody.

I feel alone in my body, only other chronic pain people know what it's like (ime)

Nobody can do anything to help it. I just have to sit with it, somehow.

These pains are eating me away. Joint pain, muscle pain, skin pain, just existing pain.

I can't speak today, only lay down & breathe slowly. I don't have the energy to push the words out, they come out in whispers.

The fatigue just takes me, I'm falling asleep allover the place. I cannot control it.

Nobody fucking wants this.

Why does this always happen when I'm just trying to live my life?????

Will I ever be unchained from my bed?

[oldfangirl81]

Rant/Vent

I hate how this country handles pain relief.

The ER doc wrote me a prescription for pain and anti-nausea meds. Of course the pharmacy was already closed last night. I spent a shitty night of sleep in pain and nauseated. I counted down the hours until the pharmacy opened.

Get a call from the pharmacy that they can't fill the pain meds because "the doctor wrote it for too strong". No fucking clue what that means. Supposedly they are going to try to get the doctor to rewrite it but since it was the ER I'm not holding my breath.

I did tell them through gritted teeth to please fill the anti-nausea meds asap at least.

Yeah, I'm in tears of frustration. And pain.

[katsy-kitty]

I'm going to vacuum my apartment, which means I'll be out for the next few days.

Keep me in your thoughts.

[yukiwhitetm]

I'm not surprised that my leg is on fire from chronic pain but that doesn't mean I'm happy about it.

[kellylynncurry]

The skeleton inside me is begging to be free

To feel the dirt between its calcified toes

And the sea rush around its marrow core

Let the osteon flourish amidst the wildflowers

— Kelly Lynn Curry

From the book Radiant Poppy