seeing people my age talk about how scared they are of memory loss, which they only associate with old age, is so surreal to see as a 24 year old who has actively experienced memory loss for a long time now
there are causes for memory loss besides dementia and alzheimer’s, i hope y’all know that. dissociative disorders, trauma, brain injuries, thyroid problems, even just stress and lack of sleep can fuck up your ability to store, process, and access memory. and that’s just a few of the many causes i can think of off the top of my head right now.
please stop treating disabled people like some scary “other” that you might become only in the distant, decades-away future. we are your age, too. you may become one of us sooner than you know. stop acting like memory loss marks the end of a life, when so many of us have so much living left to do!
Here’s my metaphor for systemhood that I tell my singlet friends.
Imagine you’re playing a first person video game. You have the controller, you control your character. It’s a normal first person game. You are an alter, the character is the body. This is fronting.
Other people live with you. Sometimes, they come into the room and sit and watch while you play. They sometimes try to guide you, give you advice on what to do next. They don’t always agree, and they can argue with each other. Other times they scream at you that you’re doing everything wrong and you suck at this game. This is co-consciousness.
Imagine how distracting it would be for people around you to tell you what to do, or to scream at each other or at you, even if they have good intentions. It wouldn’t be easy to focus on your game, would it?
Then sometimes, something happens in the game that prompts you to hand off the controller to someone else so they can play and you get a break. This is (some types of) switching. This can be good.
Other times, someone rips the controller out of your hand or fights you for it. This is (other types of) switching. And sometimes, six other players hook up their controllers, but there’s only one character to play as. So all of you have your controllers, but you’re all trying to play the same character. This is cofronting.
Imagine how difficult that would be. Imagine how hard it would be to try and play a game while someone is trying to take the controller from you, or while six other people are trying to play too.
There are also times that nobody is playing, or you can’t decide who should play. What’s happening to the character in the game? What are they doing if no one is playing? This is dissociation. The character is doing nothing. They’re stuck.
This is the best metaphor I have come up with for being a system. It’s something a lot of people get because they’ve played games before.
other dissociative folks: do you dissociate when ingesting caffeine? because we seem to do. we tried to drink big cups of coffee when we had long lectures, but it would have the opposite effect than it was supposed to have
our theory is that how the caffeine affects the body triggers dissociation for us. maybe our brain thinks we are under acute stress, because of the increased heart rate and it dissociates as a learned response from trauma, but who knows. it is just fascinating to us how bodies work
To anyone who was suicidal at age 14 or younger, here’s your permission to grieve. Here’s your permission to not joke about it or just flat out ignore it. Here’s your permission to acknowledge that lost child who felt way more pain than any child should ever feel. You’re allowed to cry for that child, whether you healed or are still suffering the same thoughts. Finally allow yourself to grieve for that child filled with undeserved hurt.