#cpunk system

[disabledsysboxes]

Blog promo??

Hello! We're blue/spirit, also known as the archive, any prns.

This blog is run by our mass effect introjects (currently), garrus and Shepard.

We make userboxes for disabled systems! (And we *aren't* transandrophobic.)

Feel free to check out our rules for exactly what we're willing to make and you're welcome to ask if you're curious about anything.

We would really appreciate a promo to let people know our blog is here!

Tagging for reach: sorry moots !

@systiveboxes @delightfulweepingwillows @hewasanamericangirl @kodiescove @cpunkwitch @the-church-of-strabismus @writingbrainrot @rwuffles @de-rune @chaos-and-ink @cdd-system-terms @sysboxes @disrealities

Credit for our replycons goes to @decayednightmaremogai

[unmaskingdisability]

Cars are a form of mobility aid! Your solarpunk future has to include space for people who still need cars.

Who need to arrive to a parking spot right outside the building ,and not have an alternative of walking a mile if that One Spot is full. Who need safe places to decompress or change medical equipment, who are immunocompromised and risk major health complications from the wrong crowded bus. Who get so overstimulated/in pain/exhausted walking around town that they can't attend the actual event otherwise. Who need space for their medical equipment/backup mobility aids/service dog.

We absolutely need a world where Public transit and walkable cities are the default! And!! There has to be room for disabled people and our needs in your revolution!

[mxmorbidmidnight]

In society one of the main forms of ableism I experience and observe is how someone’s personhood is reduced to their ability to do labour. How much they contribute to society and such. How people advocate for the government to not support disabled people, saying it’s a “waste of money” completely removing the people involved reducing them to terms used to describe animals and tax deductions. In calling for this you call for the death of disabled people. Disabled refugees are far less likely to be accepted as citizens, rather deported or left in detention. Myself and other disabled people have been repeatedly denied healthcare, my government has made it impossible for me to access vital support all to save pennies so they can build new sport stadiums.

[only-knives]

all i want is to be able to smile and feel alive while rolling along in a wheelchair, finally feeling free. i want to be able to go outside and not come home limping, feeling so faint i can't even keep my eyes open, with my feet feeling like they're going to explode. i never want to stumble through multiple blocks, repeatedly hitting my shin on my rollator, again. but it happens almost every time i go into town.

getting a wheelchair (or any mobility aid) for that matter should be as simple as calling a place, driving there/them sending a cab for you, getting fitted, and walking out with your mobility aid (stock permitting). no money needed, no red tape to cut through, no doctors to beg to listen, nothing. just you, a kind human being, and your new wheelchair.

but unfortunately we live in hell.

[theselfishmachiness]

why do people assume my symptoms will just go away when my tests come back negative? like you assuming my symptoms go away when tests comes back kinda makes me believe you never believed i had symptoms at all. im not a hypochondriac, im in fucking pain.

[eliana-system]

People need to know when to stop "giving advice" because half the time you're just blaming people for the situation they are in/ have been in. You need to allow people to complain without making them feel guilty.

I just saw a post of a person talking about their disabled relative dying before they could get a wheelchair, and the horrible treatment they got, how devastating it was. Assholes are in the comments and reblogs giving unwanted "advice". Its obvious they don't know shit and are just looking down on op. You lack context, you lack knowledge and yet the first instict is to judge?

And yes, if you do this you are assholes. You dont need to add if you dont have something good to add. This isnt a debate, its someones life. A simple "do you want advice?" is where you can go is you legitimately struggle with knowing when to give advice.

I've had similar comments so many times. "Maybe if you said no, he would've stopped" "he didn't know any better" "maybe he didn't realise what he was doing"

"You should try to exercise" "Maybe try a little harder" "do you really need to go to the doctor for that" "do you really need those pain meds?"

Why is your fist respond to blame the victim? Wtf? And don't you dare even try to say this isn't victim blaming because it is.

And this is so violent. You know you ain't the first person who said it and won't be the last, and that makes you even more of an asshole. Be responsible for your actions. At this point you know the impact of your words, there is no more "good intention" when you aren't making efforts to stop hurting people.

[chronicallycouchbound]

I wish I could go back in time and give 16-year-old me a hug and tell them that when the doctors say that you’ll be in a wheelchair in your 20s, that it’s gonna be okay and you can put stickers on it!! You will love your disabled self and be so happy in your disabled body and feel the love of a beautiful community that welcomes you with open arms. You will realize you were disabled long before you used a wheelchair but never knew the words for it. You will create accessible spaces that not just allow disabled people, but celebrate disabled people. You don’t have to cry or think no one will love you. You will be okay.

[bleary-tired-crayon]

im so tired of doctors refusing to do tests because of my mental health. i have severe mental health issues and ptsd which can be causes of conditions like functional neurological disorder, which i have. i was diagnosed with fnd, or more specifically the subtype amps, in early november 2024 and that diagnosis does explain some of my symptoms, like chronic migraines, allodynia, muscle weakness, nerve pain, coathanger pain and straight up not being able to move my body sometimes.

the problem is that i have other symptoms that can’t be explained by fnd, i have rashes that come up all the time and usually if my skin is exposed to the sun, i have the butterfly rash that is a classic symptom of lupus, and gastrointestinal issues. i have joint pain that is accompanied by swelling and redness and clicking and subluxation. these are not things that fnd can cause according to my research. i would like to get tested for lupus and a connective tissue disorder because that is what my symptoms that arent fnd seem to aline with.

but my doctors dont want to do these tests because i have a history of mental illness and have limited family medical history.

I CANT WALK WITHOUT ANKLE BRACES OTHER WISE THEY WILL SUBLUXATE. THAT ISNT A NEUROLOGICAL ISSUE.

anyways i hate the medical system and healthcare in general.

btw for those who dont know

fnd=functional neurological disorder

amps=amplified musculoskeletal pain syndrome

allodynia=pain when touched

subluxation=partial dislocation

[horrorcrew-diary]

I just wanna throw my two cents out there as someone who is on the bigger end of the CDD community (I think? We have 100+ followers)

I'm punk. I'm a system. So why am I afraid to use the syspunk tags?

Our old host was pretty active and vocal in cpunk spaces because qi was tired of feeling silenced by doctors for having arthritis at a young age. Qi felt empowered and supported by a community that understood qis struggles. But with the way that things are going now, I cannot see myself active in syspunk spaces (or at least on tumblr. If there was a discord server, I might consider it.)

Punk is anti establishment. Punk is against the grain. Punk is being angry and fighting the system and taking no shit and advocating for the oppressed. But if there's going to be endos claiming refuge in the community that was SPECIFICALLY MADE TO COMBAT THEIR IDEOLOGY, I will not join. I do not want to subject me OR my system to harassment from endos and their supporters.

If you're somehow an endo that I don't have blocked, here's the thing:

You make me feel unsafe. Actively.

I have suffered immesurable trauma and abuse of all kinds. I feel as though endos are appropriating my struggles to seem quirky or relatable. Being abused since infancy is not a quirky personality trait. It robbed us of our formative developmental years, and now I have a disorder that makes the average mentally healthy person shudder.

There is a very large overlap between cpunk and syspunk I think. Fighting for our voices to be heard and understood by medical professionals unites our causes. Endogenics are the antithesis of this movement, because, BY DEFINITION, they are NOT medical systems.

I have a medical disorder. Yes, I also see my alters as separate people and treat them as such, but that does not change the fact that we would not exist if it weren't for our trauma. Our trauma is intristictly woven into our very being. There is no Horror Crew without trauma. There is no ME without trauma. You cannot peel back that layer to find anything hiding underneath. It runs so deep that I'm not even sure what healing would even look like for us.

DID is an ugly disorder. It comes hand in hand with some of the most demonized symptoms in the entire DSM. Syspunk is beautiful because it allows us a space to openly talk about these symptoms and struggles without being silenced.

Or at least it would be in theory! Jesus fucking Christ. We're just as traumatized as fucking war veterans. Would you go to a veteran support group and ask for resources if you weren't one? No. You'd be turned down and told to fuck off. So do it. Fuck off.

[nonbinary-wyvern]

The worsening progression of my disability is a metaphor for capitalism

[disabledsysboxes]

Cpunk - 1

Flag by us, here(link)

Read dni/rules before requesting thanks

[rjalker]

Ableds are like "Yes I know you don't want to literally die, but have you considered that I want to eat out at a restauraunt?"

[mxmorbidmidnight]

Whenever I speak to an AFAB person there’s almost an 100% guarantee they have some kind of health issue that they should be seeing a doctor about, but don’t because “I’m just being dramatic”. I know people who have had relentless chronic pain to the point they are unable to move an entire limb, people who had asthma for years and never saw a doctor about it, girls I’ve grown up with who will be gone for a considerable amount of time and when they come back say “oh you know just period cramps”. I’ve experienced this myself, subconsciously dismissing my own pain due to the amount of times I’ve walked into a doctors office or spoken to an adult I trusted and been told “it’s good for you to struggle a bit” “it’s not that bad”, “stop trying to get attention”.

A medical issue that is debilitating or uncomfortable in your life is something to see a doctor about. You’re not dramatic for not wanting to be in pain all the time, for not wanting to feel terrible and tired and sick. Being in pain all the time is not just something that you’re supposed to live with.

Dismissing people for their pain is yet another thing that makes health care inaccessible.

[cpunkwitch]

Disability blog appreciation post

Because some of you need more recognition

@disabled-systems - a culture is blog for disabled systems run by a longtime follower of ours <3

@whos-that-demon - active in the cpunk community and reblogs plenty of interesting and silly things!

@disabledsysboxes - a userbox blog for systems focused on disabilities and disorders, we made this after finding out disabled-sysboxes was transandrophobic before they archived.

@cpunk-strabismus - good friend and mutual of ours, a fellow system in the disabled and cpunk communities. Absolutely worth checking out their cpunk blog !

@pixelated-blood-cells - yet another fellow system active in the cpunk community! Posts and reblogs some neat stuff!

I may make a part two if anyone else would like to be tagged for appreciation!

Be sure to check dnis before interacting/following people!

[cursed-collective]

Guys, fellas, other wheelchair users,

How on earth does one travel solo with a wheelchair and a fuck ton of luggage? Trying to get to MCM May from where I live on my own with my wheelchair and luggage was genuinely horrific.

I am an ambulatory wheelchair user so I am able to get up and walk a short way, however it's not ideal! A wheelchair does not provide much support whilst walking it and our other hand was taken up by pulling a rather heavy suitcase that threatened to pull either our should, wrist or elbow out of place. The suitcase was a little too heavy for me to lift into the chair also.

My wheelchair isn't anything fancy, it's a generic one rather than a custom high active manual chair (those are HECKIN expensive), specifically the I-go Airrex LT. It was the lightest wheelchair I could find within my budget as I do not see the point in saving for a custom one when I only really use a wheelchair for big events or long days out, and those are rare for me to do.

I don't have a power assist add on (but if anyone has recommendations that will work with my chair feel free to drop them!!), does anyone have any ideas about a solution? I'm stumped

[eliana-system]

"if you don't show your diagnosis you don't have x disorder/illness" sure buddy let me go through the hell of getting diagnosed just for this purpose, and if I already am, let me just post my personal information on the internet this seem so not dangerous and not bad advice thank you so much

What do you mean I can't get diagnosed officially with a severe dissociative disorder because it would be told to my parents and also make it near impossible to get a loan? What you mean doctors could refuse to treat me because they think I'm "crazy" and therefore making up symptoms? What do you mean if I put my disability diagnoses on the internet I would dox myself? What do you mean they're not in English so the assholes wouldn't even understand?????? Yeah I guess that means im faking! yippee my physical and mental pain are totally gone and I don't need my wheelchair anymore!!